Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Geographic Location

Guest Leidenschaft

By Guest Leidenschaft
in Coping with Celiac Disease

Recommended Posts

Guest Leidenschaft
Guest Leidenschaft
Posted

Hi, this isn't a technical question, rather a request to board users....

While I understand and respect a person's right to privacy, I find it so much nicer to know the geographic region of my new "pal".

Since the time zone feature of the board is often overlooked, it's not even possible to rely on a four hour time difference as an assurance that a person is in the West... Even if we narrow it down to state or province for you concerned about Celiac stalkers :o , it would make sharing with each other so much nicer!

Many of the products, services and resources we share are zonal. For instance, I'm on the East end of Canada in New Brunswick, my mother (16 years gluten-free experience!) is in the West, in British Columbia. Many products I can get, she can't and vice versa. If we are to share our resourses, I think we can best serve each other by knowing if it's even practical to refer a certain product, or service.

Also, as we make "connections" with different people on the board, it would be nice to know what time zone they're in so we can make our posts when they are more likely to be online! I already have a half day's work in while you Westerners are just getting out of bed! :lol:

So, my challenge to all of you is to come out of your geographical closet, click on My Controls, and enter your location! :P

Well, I'm off to do evening chores, likely Mom is just finishing lunch! :blink::lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 63
  • Created
  • Last Reply
bklyn Enthusiast
bklyn
Posted

Ft. Lauderdale, Florida :D

Guest Leidenschaft
Guest Leidenschaft
Posted

Oh PLEASE send me some warmth, I'm freezing my a** off! :( It's even below zero here on YOUR scale!!! -25C for the last two weeks!!!

However, this info is still only available in this post, you must click on My Controls, and edit your personal info so that people who are intersted in you can click on your user name and see your profile!

Thanks! :)

Guest Viola
Guest Viola
Posted

This is a great idea! Also, products in the US are quite often different from Canada as far as ingredients go. They may have the same brand name, and picture on the box, but sometimes in Canada malt is added. This is especially true with cereals. So knowing from which country you are from would help with product discussions. :rolleyes:

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I am in Georgia.

celiac3270 Collaborator
celiac3270
Posted

Live in New York City....NY State, of course :lol:

Guest Viola
Guest Viola
Posted

I Think what Tammy wanted us to do was to edit our signature and add our location to the signature. That way we know the location of the person when we answer a post from any topic page. :) The location just goes with us :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac3270 Collaborator
celiac3270
Posted

Oh, okay :) I have "ny" at the end of my signature--added it maybe 2 weeks ago just for the point of it :lol:

whimsygirl Newbie
whimsygirl
Posted

Just trying it out to see if my edited signature worked! :lol:

Guest Viola
Guest Viola
Posted

That's great whimsygirl ... looks good to me :D

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

Done and Done...

Jeap Newbie
Jeap
Posted

How is my signature.

Lots going on in our little town with Celiac. Local Endo really testing folks.

Local Drug store is putting in a new line from the gluten-free Pantry. Maybe we want have to wait on the snail mail delivery.

Thanks for everyones help. It is good to know we are not alone in this.

God Bless :D

Canadian Karen Community Regular
Canadian Karen
Posted

I am from the Toronto region but am still trying to figure out how to get my profile info stuff to come at the end of my posts..... In case you haven't figured it out yet, I am completely "message board illiterate"...... lol!

Karen

Canadian Karen Community Regular
Canadian Karen
Posted

Hurray!!!! Figured it out!!! There is hope for me yet..... lol.....

darlindeb25 Collaborator
darlindeb25
Posted

otay----now everyone knows where i live too--hehe----i didnt add the formerly michigan part, but most of you here that do know me already know that--hehe :lol: deb

jessman Newbie
jessman
Posted

I'm with Karen; message board illiterate! I'm posting to see if this turns out right.

We've got a good health food store in Key Largo with some gluten-free foods and the owner is very receptive to suggestions for additional products. There's also Wild Oats in Miami for those who want to make the trip up the 18 mile stretch.

Guest Leidenschaft
Guest Leidenschaft
Posted

Good to see so many people coming out of the closet! :D

Man, Broncobux, you get around! :blink::lol:

I've had many different addresses over the years, but so far just gluten-free in NB! Sure glad I've had my mom's 16+ yrs experience with this, although she's learned a few new things since I went gluten-free! ;) This board among them! :)

Glad to have you all as part of my day, I'm learning a ton, and not feeling like such a misfit!

Ding, ding, oh, my microwave is calling! Mmm, Thai Kitchen!!! :wub:

Carriefaith Enthusiast
Carriefaith
Posted

I am from Prince Edward Island, Canada.

Guest Leidenschaft
Guest Leidenschaft
Posted
B) Cool! Somebody in my time zone!! :D
Carriefaith Enthusiast
Carriefaith
Posted

Yea! I don't think there are many people on this board in Maritimes.

2new2celiacs Newbie
2new2celiacs
Posted

Hi all just checking to see if my change went into effect.

-Sarah

celiac3270 Collaborator
celiac3270
Posted

Just a note...

If you change your signature and enter a post you've posted in or click on your user name, it should reflect that change, provided that the you open the post after you make the change or refresh it. It's fine to post, but just wanted to let you know :lol:

Guest Viola
Guest Viola
Posted

I'm so glad to see so many doing this :D Now if only I could see some in my time zone :lol:

Guest Leidenschaft
Guest Leidenschaft
Posted

I'm glad to see the posts! :) Shows me that I had a good idea! :D

Thanks everyone for playing along!

  • 4 weeks later...
Guest Viola
Guest Viola
Posted
Hi, this isn't a technical question, rather a request to board users....

While I understand and respect a person's right to privacy, I find it so much nicer to know the geographic region of my new "pal". 

Since the time zone feature of the board is often overlooked, it's not even possible to rely on a four hour time difference as an assurance that a person is in the West...  Even if we narrow it down to state or province for you concerned about Celiac stalkers  :o , it would make sharing with each other so much nicer!

Many of the products, services and resources we share are zonal.  For instance, I'm on the East end of Canada in New Brunswick, my mother (16 years gluten-free experience!) is in the West, in British Columbia.  Many products I can get, she can't and vice versa.  If we are to share our resourses, I think we can best serve each other by knowing if it's even practical to refer a certain product, or service.

Also, as we make "connections" with different people on the board, it would be nice to know what time zone they're in so we can make our posts when they are more likely to be online!  I already have a half day's work in while you Westerners are just getting out of bed!  :lol:

So, my challenge to all of you is to come out of your geographical closet, click on My Controls, and enter your location!  :P

Well, I'm off to do evening chores, likely Mom is just finishing lunch!  :blink:  :lol:

Can we try and get this started up again? It's such a good idea, and we always seem to be asking if the products are in Canada or the U.S. And even chain stores seem to be East, or West! It's so easy to check out which state or province the post is coming from if your location is in your signature. :rolleyes:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to GlorietaKaro's topic in Super Sensitive People
      2

      Am I nuts?

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference...
    2. Russ H
      - Russ H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Anti-endomysial Antibody (EMA) Testing

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled...
    3. Scott Adams
      - Scott Adams replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Just diagnosed today

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation...
    4. Scott Adams
      - Scott Adams replied to GlorietaKaro's topic in Super Sensitive People
      2

      Am I nuts?

      Your experience is absolutely valid, and you are not "nuts" or a "complete weirdo." What you are describing aligns with severe neurological manifestations of gluten sensitivity, which is a recognized, though less common, presentation. Conditions like gluten ataxia and peripheral neuropathy are documented in medical literature, where gluten triggers an autoimmune...
    5. Scott Adams
      - Scott Adams replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      My journey is it gluten or fiber?

      Some members here take GliadinX (a sponsor here) if they eat out in restaurants or outside their homes. It has been shown in numerous studies to break down small amounts of gluten in the stomach, before it reaches your intestines. This would be for small amounts of cross-contamination, and it would not allow any celiac to eat gluten again.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748
    lalan45
    Newest Member
    lalan45
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Am I nuts?

      By trents · Posted

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • Russ H
      Anti-endomysial Antibody (EMA) Testing

      By Russ H · Posted

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      Just diagnosed today

      By Scott Adams · Posted

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Am I nuts?

      By Scott Adams · Posted

      Your experience is absolutely valid, and you are not "nuts" or a "complete weirdo." What you are describing aligns with severe neurological manifestations of gluten sensitivity, which is a recognized, though less common, presentation. Conditions like gluten ataxia and peripheral neuropathy are documented in medical literature, where gluten triggers an autoimmune response that attacks the nervous system, leading to symptoms precisely like yours—loss of coordination, muscle weakness, fasciculations, and even numbness. The reaction you had from inhaling flour is a powerful testament to your extreme sensitivity. While celiac disease is commonly tested, non-celiac gluten sensitivity with neurological involvement is harder to diagnose, especially since many standard tests require ongoing gluten consumption, which you rightly fear could be dangerous. Seeking out a neurologist or gastroenterologist familiar with gluten-related disorders, or consulting a specialist at a major celiac research center, could provide more validation and possibly explore diagnostic options like specific antibody tests (e.g., anti-gliadin or transglutaminase 6 antibodies) that don't always require a gluten challenge. You are not alone; many individuals with severe reactivity navigate a world of invisible illness where their strict avoidance is a medical necessity, not a choice. Trust your body's signals—it has given you the most important diagnosis already.
    • Scott Adams
      My journey is it gluten or fiber?

      By Scott Adams · Posted

      Some members here take GliadinX (a sponsor here) if they eat out in restaurants or outside their homes. It has been shown in numerous studies to break down small amounts of gluten in the stomach, before it reaches your intestines. This would be for small amounts of cross-contamination, and it would not allow any celiac to eat gluten again.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.