Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Musicians

LuvMoosic4life

Recommended Posts

LuvMoosic4life Collaborator
LuvMoosic4life
Posted

Any other musicians/artsists out there? I write my own music, wondering if there is anyone else here? :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


darlindeb25 Collaborator
darlindeb25
Posted

I don't write music, but I love it. I have 2 guitars, and am learning to play them. I found a perfect quote one day:

Music is what feelings sound like!
ravenwoodglass Mentor
ravenwoodglass
Posted

I am an artist by nature but not by profession. I love working with stained glass and painting and also enjoy making jewelry and working with textiles. Right now most of my artistic impulses are involved in my gardens and also with my writing. I am working on a childrens book about celiac, don't know if I will ever get it out there anywhere. I am also a published poet but do very little poetry writing nowadays.

What style of music do you write? Do you write the lyrics also?

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

I'm a violinist! :)

LuvMoosic4life Collaborator
LuvMoosic4life
Posted
  • Author
I am an artist by nature but not by profession. I love working with stained glass and painting and also enjoy making jewelry and working with textiles. Right now most of my artistic impulses are involved in my gardens and also with my writing. I am working on a childrens book about celiac, don't know if I will ever get it out there anywhere. I am also a published poet but do very little poetry writing nowadays.

What style of music do you write? Do you write the lyrics also?

awesome! I also am a writer and am writing a book (its a fantasy/adventure, kinda like lord of the rings but not as long and drawn out!! :lol: ) I have tons of poetry and also write lyrics to my songs as well as the music. I really dont know how to catorgorize the music, I guess its folk/rock/metal with hints of jazz and celtic???? am I alowed to post my myspace link here? (prob a stupid question lol)

LuvMoosic4life Collaborator
LuvMoosic4life
Posted
  • Author
I don't write music, but I love it. I have 2 guitars, and am learning to play them. I found a perfect quote one day:

I totally agree with that qoute! the sad thing is most of the mainstream music out there today is lacking it. BIG TIME

lorka150 Collaborator
lorka150
Posted

I'm a musician (BMus and MMus in progress), but primarily a music researcher. I am an artist for fun - I love to paint.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flourgirl Apprentice
flourgirl
Posted

I used to write music and poetry years ago, have even done some recording (again, long time ago). I play rhythm guitar and love to sing, at one time semi-professionally. I play flute and play at the keyboard. Unfortunately have not been taking much time for any of this for quite a while.....partly because I just don't feel good enough to.

I used to sketch a lot, I quilt, make jewelry, dream catchers, do crafts. Basically I like to do anything creative and love to learn new things. Gardening takes a lot of my time in spring-fall, especially now as we've moved to a new house recently.

There is absolutely nothing in this world like making music with a group of people who "fit" together. Singing in harmonies is as close to heaven as this earth gets!!

spunky Contributor
spunky
Posted

I majored in music back in college (in the OLDEN days) and have spent my life fiddling around with folksish, balladish, and now more and more old-timeish music. I've made one celiac disease and have performed here and there a little when opportunities came my way...not too much for the past 15 or 20 years, though.

I used to like to pencil sketch, but don't have time... now I do some knitting, crochet, when time allows for that.

Here's music stuff I've been working on/studying recently... I'm getting more and more interested in clawhammer banjo... recently went to West Va. to study with a clawhammer guy... which I never could have done before... I never travelled or left home much because of my gut... now I'm pretty good and I can get out away from home... a NEW thing for me now... at almost 2 1/2 yrs. gluten free...

here's some of that on my youtube page Open Original Shared Link

spunky Contributor
spunky
Posted

It says above I've made one "celiac disease," what I wrote was that I'd made one recording, and used the initials, i.e., a C followed by a D... and it came out "celiac disease".

LuvMoosic4life Collaborator
LuvMoosic4life
Posted
  • Author
I majored in music back in college (in the OLDEN days) and have spent my life fiddling around with folksish, balladish, and now more and more old-timeish music. I've made one celiac disease and have performed here and there a little when opportunities came my way...not too much for the past 15 or 20 years, though.

I used to like to pencil sketch, but don't have time... now I do some knitting, crochet, when time allows for that.

Here's music stuff I've been working on/studying recently... I'm getting more and more interested in clawhammer banjo... recently went to West Va. to study with a clawhammer guy... which I never could have done before... I never travelled or left home much because of my gut... now I'm pretty good and I can get out away from home... a NEW thing for me now... at almost 2 1/2 yrs. gluten free...

here's some of that on my youtube page Open Original Shared Link

awesome! Thats acctually one of my worries, traveling. My goal is to be able to tour and I'm just thinking now, all I need to do is get CC and I will feel horrible for the next gig :(

here's my "one man (girl) band" project :lol:

its my space.com with "/msauers" at the end (it wouldnt let me post the site :(

spunky Contributor
spunky
Posted

GREAT music! Yes, you should hit the road and go for it!!! As long as you're feeling good by now.

I gotta say, I was pretty nervous the whole time I was away... fearing cc and staying in his little dorm-like cabin... how awful it would be if I got all messed up... embarrassing, interrupting of the whole process, etc. I was scared about that... but I explained it to him before I left that I would be eating ONLY foods I brought myself... brought a big cooler and snacks and stuff and also made a couple of trips to local stores and grabbed a few things... potatoes, tomatoes, etc. I cooked my stuff in his common kitchen, but brought my own pans, forks, spatulas, plates, etc... I'd explained ahead of time about my need to do this so it wouldn't seem strange or hurt anybody's feelings.

Like I said, I did worry the whole time, but it was really the first REAL trip I've taken and nothing bad happened... I was careful about having all my own food and not lettting my food touch anything and not letting anyone else touch my food.

I hope in the future I can get more confident in doing this... I would avoid restaurants on the road, but if you just run to local stores and buy fresh stuff, have a set of pots/pans/plates (camping stuff is light and easy to travel around with) and just be in charge of all of your own food... you should be okay. Don't take any chances... even if you have to be hungry a little while extra... I carried bagged SAFE snacks along in case that happened... but I think it should be something doable.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
    2. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    3. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in...
    4. SilkieFairy
      - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash...
    5. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.