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Feels Like A Burn

curlyfries

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curlyfries Contributor
curlyfries
Posted

Does anyone ever get the feeling on their skin like they have a bad burn? I have gotten them for years and always thought they were a symptom of fibromyalgia. It's usually on a small spot on my arm and goes away after a day...a mild annoyance. This time it started on the inside of my upper arm.The next day it changed to my upper thigh, and now this is day 2 for my thigh. It is so painful it hurts to touch it at all, and today the area is larger and I occassionally get a sharp stabbing pain. There is nothing there to see. What gives? I don't think it's a gluten thing, as I don't have any of my usual symptoms and I have been very diligent about what I eat.

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RiceGuy Collaborator
RiceGuy
Posted

Do you take any supplements? Specifically, do you take magnesium, B12, or zinc? A deficiency in B12 is my best guess, but the others might also be worth taking. Make sure it is a sublingual methylcobalamin, NOT cyanocobalamin. Take a minimum of 3mg per day. There is no known level of overdose, and studies suggest that the body can't assimilate more than about 5-6mg in one day.

The only other condition I can think of is Morgellan's Syndrome, which is still a medical mystery. However, it doesn't sound enough like that for me to think it is what you're experiencing. This condition is more like a needle type pain (like one or more pins stuck in the skin) and/or scrawling sensations, usually accompanied by tiny hair-like threads protruding from the skin.

curlyfries Contributor
curlyfries
Posted
  • Author

No, I'm not on any supplements yet, just a high-dose multivitamin. I've been planning to add suplements, but there is no money at this time.

Thanks for your help!

jerseyangel Proficient
jerseyangel
Posted

Lisa,

I used to get something similar before I was diagnosed--but it was always on my face. I would feel like my skin was on fire from the inside out--you couldn't tell by looking at me, and my face felt hot to the touch.

Not sure if that's any help, but I thought I'd mention it :)

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

I had that on my face before going off gluten (it came back a couple of times for a day, but I could never figure out why). I also had something similar on my shoulder immediately following a bout of shingles. That one was nerve damage from the shingles, called "post-herpetic neuralgia." It gradually decreased in frequency, until it disappeared after a couple of years.

curlyfries Contributor
curlyfries
Posted
  • Author

I've never had shingles and I've never had this feeling on my face. It was painful just to touch it---just like a bad sunburn. And I've never had the stabbing pains before. In the past it was always in an area about the size of a silver dollar. This one was about 3 inches wide and went from inner thigh to outer thigh. It finally faded away this evening.

Rachel--24 Collaborator
Rachel--24
Posted

I used to have this problem quite frequuently but not so much after I did a major overhaul on my diet 3 years ago.

The stabbing pain is pretty much a thing of the past and the "sunburn" feeling is a "once in awhile" thing now. I'm not sure exactly what causes it...but I *think* one of the triggers for me is MSG...or "free glutamates". No doubt there are other things causing it as well but its definately food/toxin related in my case.

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mftnchn Explorer
mftnchn
Posted

This is similar to what I get or used to get from lyme. Hope that is not what you have.

Sherry

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Is a cellulitis infection a possibility?

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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