Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fibromyalgia And The Gluten-free Diet


home-based-mom

Recommended Posts

home-based-mom Contributor

A friend of a friend :rolleyes: has been diagnosed with fibromyalgia. According to my friend, her friend has been on all sorts of medications, none of which have done any good. My friend also said her friend doesn't cook. They eat fast food or microwave something from the freezer. AND my friend said her friend doesn't do internet. :blink:

SO, as my friend said she would be happy to recommend some reading material that discussed the connection between eating gluten and having fibromyalgia symptoms if I could come up with some, I am putting out a request for any books anyone might know that my friend's friend could pick up either at a book store or the library.

Thanks! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Aleshia Contributor

well, I haven't personally read any of these but this is what amazon came up with when I did a search for "fibromyalgia and gluten" its a pretty long list and its probably not all relevent to your friends friend but I hope it helps! maybe some of the others on the forum could recommend some. or maybe some of them have actually read one or more of these books and know if they are any good!

"What Your Doctor May Not Tell You About Fibromyalgia Fatigue: The Powerful Program That Helps You Boost Your Energy and Reclaim Your Life" by R. Paul St. Amand and Claudia Craig Marek

"Living Gluten-Free For Dummies" (For Dummies (Health & Fitness)) by Danna Korn

"The Gluten Connection: How Gluten Sensitivity May Be Sabotaging Your Health--And What You Can Do to Take Control Now" by Shari Lieberman

"The fibromyalgia handbook, a 7 step program to halt and even reverse fibromyalgia" by Harris H. McIlwain, M.D. and Debra Fulghum Bruce, Ph.D.

The Gluten-Free Kitchen: Over 135 Delicious Recipes for People with Gluten Intolerance or Wheat Allergy by Roben Ryberg

The Fibromyalgia Cookbook: More Than 120 Easy and Delicious Recipes by Shelley Ann Smith and Alison, M.D. Bested

The Gluten-Free Bible: The Thoroughly Indispensable Guide to Negotiating Life without Wheat by Jax Peters Lowell

Wheat-Free, Worry-Free: The Art of Happy, Healthy Gluten-Free Living by Danna Korn

The First Year: Fibromyalgia: An Essential Guide for the Newly Diagnosed (First Year, The) by Claudia Craig Marek

The Fibromyalgia Solution: A Breakthrough Approach to Heal Your Body and Take Back Your Life by David Dryland and Lorie List

Let's Eat Out!: Your Passport to Living Gluten And Allergy Free (Let's Eat Out!) (Let's Eat Out!) (Let's Eat Out!) (Let's Eat Out!) by Kim Koeller and Robert La France

CFIDS, Fibromyalgia, and the Virus-Allergy Link: Hidden Viruses, Allergies, and Uncommon Fatigue/Pain Disorders by Roberto Patarca Montero and R. Bruce Duncan

The Gluten-Free Vegan: 150 Delicious Gluten-Free, Animal-Free Recipes by Susan O'Brien

Feast Without Yeast: 4 Stages to Better Health : A Complete Guide to Implementing Yeast Free, Wheat (Gluten) Free and Milk (Casein) Free Living by Bruce Semon, Lori Kornblum, and Bernard Rimland

The Complete Idiot's Guide to Fibromyalgia by Lynne Matallana, Ph. D., Laurence A. Bradley, M.D., Stuart Silverman, and M.D., Muhammad Yunus

Eating Gluten Free: Delicious Recipes and Essential Advice for Living Well Without Wheat and Other Problematic Grains by Shreve Stockton and Danna Korn

Great Physician's Rx for Fibromyalgia and Chronic Fatigue by Jordan Rubin and Joseph Brasco

Strategies: A Chronic Fatigue Syndrome and Fibromyalgia Journey by Tami Brady

Gluten-free, Sugar-free Cooking: Over 200 Delicious Recipes to Help You Live a Healthier, Allergy-Free Life by Susan O'Brien

Living Well with Chronic Fatigue Syndrome and Fibromyalgia: What Your Doctor Doesn't Tell You...That You Need to Know (Living Well) by Mary J. Shomon

What Do You Do When the Medications Don't Work? A Non-Drug Treatment of Dizziness, Migraine Headaches, Fibromyalgia, and Other Chronic Conditions by Michael L. Johnson

Kids with Celiac Disease : A Family Guide to Raising Happy, Healthy, Gluten-Free Children by Danna Korn

From Fatigued to Fantastic by Jacob Teitelbaum

The Gluten-free Gourmet Makes Dessert by Bette Hagman

Healing Joint Pain Naturally: Safe and Effective Ways to Treat Arthritis, Fibromyalgia, and Other Joint Diseases by Ellen Hodgson Brown

Wheat-free Gluten-free Recipes for Special Diets by Connie Sarros

What Your Doctor May Not Tell You About Pediatric Fibromyalgia: The Program that Helps Boost Your Child's Energy Level by R. Paul St. Amand, Claudia Craig Marek, and R. Paul St. Amand

Fibromyalgia : A Journey Toward Healing by Chanchal Cabrera

Fibromyalgia: Up Close & Personal by Mark J. Pellegrino

The Fibromyalgia Dental Handbook: A Practical Guide to Maintaining Peak Dental Health by Flora Parsa Stay and Flora Stay

Chronic Fatigue Syndrome, Fibromyalgia, and Other Invisible Illnesses by Katrina Berne, Robert M. Bennett, and Daniel L. Peterson

Living Well with Celiac Disease: Abundance Beyond Wheat or Gluten by Claudine Crangle

America Exhausted: Breakthrough Treatments of Fatigue and Fibromyalgia by Dr Edward J Conley

Celiac Disease: A Guide to Living with Gluten Intolerance by Sylvia Llewelyn Bower, Mary Kay Sharrett, and Steve Plogsted

Dangerous Grains: Why Gluten Cereal Grains May Be Hazardous To Your Health by James Braly M.D., Ron Hoggan M.A., and Jonathan Wright

Peripheral Neuropathy: When the Numbness, Weakness, and Pain Won't Stop (American Academy of Neurology) by Norman Latov

Women Living with Fibromyalgia by Mari Skelly, Kelley Blewster, and Devin J. Starlanyl

Emotional Release Therapy by Walter Weston

The 24-Hour Pharmacist: Advice, Options, and Amazing Cures from America's Most Trusted Pharmacist by Suzy Cohen

RiceGuy Collaborator

Well, anyone with health issues simply NEEDS the Internet, I'd say. She's doing herself a terrible disservice.

Anyway, aside from books, my first thought is to search the board for some posts about fibro symptoms going away on a gluten-free diet (I'm sure you've seen a bunch of them as I have), and use the lo-fi version link at the bottom of the page to get a decent view for printing it out. That should give your friend's friend some decent info from others with first-hand experience.

And if she doesn't already take magnesium and methylcobalamin (B12), she should start immediately. Before I started these I had such fibro-like pains there were days I simply couldn't manage getting out of bed. Not to mention I had not been able to walk in well over a year! But this is after going gluten-free, so obviously I think she needs to do that too.

  • 1 month later...
Unclezack Newbie
A friend of a friend :rolleyes: has been diagnosed with fibromyalgia. According to my friend, her friend has been on all sorts of medications, none of which have done any good. My friend also said her friend doesn't cook. They eat fast food or microwave something from the freezer. AND my friend said her friend doesn't do internet. :blink:

SO, as my friend said she would be happy to recommend some reading material that discussed the connection between eating gluten and having fibromyalgia symptoms if I could come up with some, I am putting out a request for any books anyone might know that my friend's friend could pick up either at a book store or the library.

Thanks! :)

Hi Home Based Mom!

I too have a friend who is being treated for fibromyalgia. In conversation, I asked her what her symptoms were. After a few questions and answers, I commented that it sounded like we both had the same disease and left it at that. You know from another thread that I have gluten intolerance and celiac disease, but I'll let the other readers know this too. At the time, the only thing I knew about fibromyalgia was that some people have it and that my daughter who is an RN had told me that fibromyalgia was a name doctors were giving to a set of symptoms that they couldn't explain.

I went home and did some research on the internet and found to my amazement that the possible symptoms of the two diseases are the same. The treatment of fibromyalgia is totally different, and not very successful for most people.

I found a story about a lady who was ready to give up on living due to the symptoms and how a gluten free life totally changed her life. It was included in one of my posts in another thread, but didn't get any comments. I think it may do better here.

Here is the link:

Open Original Shared Link

I hope this helps!

Jack

home-based-mom Contributor

Thanks! That was a very interesting article!

Generic Apprentice

Keep in mind that not everyone gets relief from a gluten-free diet. I was diagnosed with celiac 20 years ago and have been gluten free since. I was diagnosed with fibro 4 or 5 years ago. I have tried elimination diets, nothing has helped. The latest research shows that it has to do with emotional stress and or trauma, that is if it is true fibro.

Di-gfree Apprentice

I've had fibromyalgia symptoms for almost 15 years (I also have celiac). Was just diagnosed with Hashimoto's (and have hypothyroidism). Apparently one of the symptoms of hypoT is sore muscles (fibromyalagia); so I'm hoping once I've been on my thyroid replacement long enough, those symptoms will go away (I hear it does for some people). Not saying she has hypothyroidism; but she could check out the possibility.

Eating fast/microwaved foods, and taking medication to mask poor-health symptoms is not a healthy way to live. It sounds like a fun way to live; but not conducive to actually treating her ailments. She's going to have to realize eventually that she's going to have to start changing her lifestyle. That includes being proactive about her own health - and yeah, I don't know what I'd do WITHOUT the internet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Judyin Philly Enthusiast
Keep in mind that not everyone gets relief from a gluten-free diet. I was diagnosed with celiac 20 years ago and have been gluten free since. I was diagnosed with fibro 4 or 5 years ago. I have tried elimination diets, nothing has helped. The latest research shows that it has to do with emotional stress and or trauma, that is if it is true fibro.

BINGO..........STRESS ALWAYS HITS MY PAIN #'S UP. GOOD POINT. I REALLY THINK THAT THE SWIMMING IN NON CLORINE POOL HAS HELPED ME THE MOST AND THE TEMP IS 92 THERE. iN COLD WATER......... :ph34r: NOT GOOD. I LOCK UP.

JUDY

Generic Apprentice

I lock up in cold water too. I thought I was crazy until I figured out it is fairly common with fibro.

Judyin Philly Enthusiast
I lock up in cold water too. I thought I was crazy until I figured out it is fairly common with fibro.

:lol: All the people in the therapy pool can tell the instructors what the temp is........esp if it's cold

they have trouble regulating it.

are you swimming now? I had to stop for awhile due to 'd' but since i've gotten that under control.......it's been good.

Judy

Generic Apprentice

Unfortunately no. I haven't found a pool in my area that has a decent temp. Olympic athlete training temp is too frigid for me. LOL At least not any within a decent price range.

  • 2 years later...
stef-the-kicking-cuty Enthusiast

I'm on a solution search for my recent what I believed at first was a glutening with then following numbness of my left foot and incredible pain in my left hip, that seemed to get worse, whenever somebody touched me. 3 days ago I came across the above mentioned book "What Your Doctor May Not Tell You About Fibromyalgia Fatigue: The Powerful Program That Helps You Boost Your Energy and Reclaim Your Life" by R. Paul St. Amand and Claudia Craig Marek . I've been reading like a nut ever since and I'm more than half way through :P . It's a great advice book on how to heal, or even cure, the fibro and the often with it coming hypoglycemy, but it does not support the gluten free diet, just a heads up. :o

stef-the-kicking-cuty Enthusiast

I'm on a solution search for my recent what I believed at first was a glutening with then following numbness of my left foot and incredible pain in my left hip, that seemed to get worse, whenever somebody touched me. 3 days ago I came across the above mentioned book "What Your Doctor May Not Tell You About Fibromyalgia Fatigue: The Powerful Program That Helps You Boost Your Energy and Reclaim Your Life" by R. Paul St. Amand and Claudia Craig Marek . I've been reading like a nut ever since and I'm more than half way through :P . It's a great advice book on how to heal, or even cure, the fibro and the often with it coming hypoglycemy, but it does not support the gluten free diet, just a heads up. :o

Ooops :unsure: I have to put up a correction. I have not read the book "What your doctor may not tell you about fibromyalgia fatigue". I did read the other book by the same authors "What your doctor may not tell you about fibromyalgia". Now in the book I've read and which is a pretty old version, Dr. Amand talks a lot about fibromyalgia AND fatigue and because it is from the very same authors maybe it's just an older version of the above mentioned book and they changed the title a little, who knows. But even if it is, because it is from the very same authors I still don't think, they promote the gluten free diet, unless they came to a new discovery with the new book. That could also be possible. I guess, I have to read the new version as well :unsure: .

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,334
    • Most Online (within 30 mins)
      7,748

    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.