Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mystery Gluten!


WhimsiKay

Recommended Posts

WhimsiKay Apprentice

Hi, everyone!

So, I'm sitting here dying -- chills, D, cotton-mouth, all of it -- and I've been at it since about 3am. The catch: I ate nothing bad. I touched, as far as I'm aware, nothing bad! The food was my own, prepared like usual with no gluten int he house to contaminate it and stored in ziplock bags that were fresh from the box. At first, I thought it might be my haircolor that I'd gotten on my hands, but by all accounts, Feria is gluten-free.

I seem to run on a system of about 5 hours, ish. 5 hours after I eat, I drop into full fledged glutening. (The minor symptoms like dry-mouth start earlier.) But I didn't eat anything at ten at night. I was at a friend's house, but I didn't touch anything except dishes and a tea kettle. Now, I may have picked up something from that, but it seems so unlikely because I've been there every Wednesday for two months and haven't had any issues.

That said, talking it out now, I suppose it's fair to say they could have splashed glutenous food on the kettle when they cooked -- you know, like splatters. But if it wasn't that... what on earth could it be?

Before anyone asks, my house has gone completely gluten-free: all detergents, soaps, hair- and body-care products, food, face-care, etc.

:( I'm miserable. I want to stop being sick now.

Have you ever suffered a "mystery glutening"?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



curlyfries Contributor

You haven't been gluten-free very long....could be you have unmasked another food intolerance. Have you eliminated dairy? Many celiacs can't handle dairy until their villi heal. Others have to eliminate soy also. I have had to eliminate dairy and sugar.

jerseyangel Proficient

I would consider an additional food intolerance also. When you said that you had a dry mouth, it reminded me that this is the first symptom I had when I realized I was intolerant to tapioca.

Some common causes of food intolerance (in addition to gluten) are dairy, soy, and corn.

A simple food diary makes it simpler to figure out what may be at fault here.

gabby Enthusiast

Possible culprits that get me all the time at non-gluten-free houses:

-handles of all sorts: fridge door, microwave door, tea kettle handle, cupboard handle, cutlery drawer handle, bathroom door knob, etc

-tea towels

-placemats: they can hold lots of crumbs (even if they've been shaken out), and you could easily rest a wet spoon on the place mat and pick up a few

-plates that were not washed, but just brushed lightly with a tea towel because there was only a slice of bread on it (eek, happens a lot to me)

that's all I can think of for now.

I hope you are feeling better soon though :)

WhimsiKay Apprentice
I hope you are feeling better soon though :)

I was! I mean, aside from feeling wrecked like you usually do afterward, anyway, I was, but now I'm suffering the same symptoms all over again. I'm so upset.

I ate out again, but this is a place that is usually very careful about my food. Is it possible I just got bad luck again?

The thing is, I've had cheese before (the only thing I had tonight, on crackers) and been just fine, but I had brie cheese tonight and I started the symptoms. That said, since I run a 5-hour cycle, as it were, I don't think the cheese would have done this.

Anyway, I'm ridiculously depressed over this and worried that since I don't have an official diagnosis -- from doctors, you know -- that there might be something else going on. I was completely fine for like a solid month, though! Why would it start all over again based on something I've been eating the whole time just fine?

Conversely... I understand that Minute Rice is NOT gluten free. If you use it to stuff a sock (for a heating pad), and then heat it up, and handle it, will the gluten get on your hands from that? I've been using that to soothe my tummy the past few days.

I get this sense that I'm dumb. :(

mushroom Proficient
Conversely... I understand that Minute Rice is NOT gluten free. If you use it to stuff a sock (for a heating pad), and then heat it up, and handle it, will the gluten get on your hands from that? I've been using that to soothe my tummy the past few days.

I get this sense that I'm dumb. :(

Sorry to hear about your double whammy! I don't have an official diagnosis either and have been glutened for the past week. When the symptoms lasted to long dh began asking me if it wasn't all in my head!! Darn, we get that enough from doctors. I assured him it wasn't. Finally feeling better today.

As far as the rice in the heating pad, I have a pad stuffed with wheat that I use for the same purpose and have not had any trouble with it. So I'm pretty sure it would not be that.

Hope you're feeling better soon.

WhimsiKay Apprentice
Sorry to hear about your double whammy! I don't have an official diagnosis either and have been glutened for the past week. When the symptoms lasted to long dh began asking me if it wasn't all in my head!! Darn, we get that enough from doctors. I assured him it wasn't. Finally feeling better today.

As far as the rice in the heating pad, I have a pad stuffed with wheat that I use for the same purpose and have not had any trouble with it. So I'm pretty sure it would not be that.

Hope you're feeling better soon.

Thanks very much. =)

Just out of curiosity, is it wheat or buckwheat? Buckwheat is gluten-free, so you'd be safe! Also, is the material porous and/or prone to getting moist when heated? I'm actually thinking that the "enriched" rice, when it's getting warm, is coating all over my hands through the very loose weave of the sock. Then I eat something or whatever.

So far, it seems to make the most sense. It's one of those cases where the Evil Rice Sock is supposed to be a help to a glutening, only to be causing a glutening, so I use it more to help!

And no, no, no, it is NOT in our heads. <_< (Although I'm sure he's just trying to be helpful and fix the issue -- my husband hates the fact he can't make it all go away for me, which is funny because he is at least intolerant of gluten, too!)

Do you drape the heating pad on your abdomen when you're feeling glutenous? I do, and I find it's a great comfort. I'll even sleep with it! But be careful -- last night, about 3am, I was so miserable that I didn't pay attention that it was too hot. I burned the side of my hip!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



home-based-mom Contributor
I understand that Minute Rice is NOT gluten free.
Where did you hear that? I eat it all the time!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,386
    • Most Online (within 30 mins)
      7,748

    TByrd
    Newest Member
    TByrd
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.