Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Discovered Soy Sensitivity

margiemakes

Recommended Posts

margiemakes Newbie
margiemakes
Posted

Hi All

I have been having trouble with feeling sick way more often than the times I thought I had maybe taken a risk or had a chance of CC and so I've been experimenting in excluding dairy (no change) and soy (seems to be heaps better!)

So I am wondering if others on here who are also soy intolerant can give me some advice please:

Are there any soy-based ingredients which are safe to consume in the same way that some wheat based ingredients are like glucose syrup or caramel colouring? Or is it likely to be the whole soy content that I am reacting to rather than a component like gluten is to wheat?

For example I am noticing soy lecithin in most everything and finding that cuts out a huge number of options that were previously on my safe list, hard enough avoiding gluten as it is without avoiding that too...

Also, has anyone got any suggestions for a replacement for soy sauce? My diet has moved a lot to asian style cooking since mostly those kinds of dishes are easy to make gluten free but when I am excluding soy sauce it makes it a lot harder to make stuff be tasty!

Interesting side note for those who talk about being scared to travel - I actually felt a whole lot better when I was overseas recently and eating mostly the same diet that I am on at home, I ate a lot of homemade sandwiches etc, but as soon as I got home I started feeling bad again and realised that the main real change I had made when I came home was switching back to soy milk instead of dairy milk. (Yes I was drinking a certified gluten-free brand of soy milk) so that's what tipped me off that soy was probably my problem!

Thanks in advance!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tom Contributor
tom
Posted
Are there any soy-based ingredients which are safe to consume in the same way that some wheat based ingredients are like glucose syrup or caramel colouring?

YIPES!!! I don't consider those safe at all!!

For example I am noticing soy lecithin in most everything and finding that cuts out a huge number of options that were previously on my safe list, hard enough avoiding gluten as it is without avoiding that too...

Noooooooooooo kiddin - soy lecithin is in a ton of processed foods. :(

I've been soy-free ~ a year.

I have seen ppl say they have a problem w/ soy but are fine w/ soy lecithin. I think I'm not, but I'm not all that sure about it.

Jestgar Rising Star
Jestgar
Posted

I don't worry about soy lecithin, but I also don't eat a lot of processed foods, so I don't get very much in general. Same with soy oil.

Mango04 Enthusiast
Mango04
Posted
I don't worry about soy lecithin, but I also don't eat a lot of processed foods, so I don't get very much in general. Same with soy oil.

ditto

missy'smom Collaborator
missy'smom
Posted

For some it seems that the soy isn't as much of a problem as the carageean in the soy milk. Someone clued me in to that and it explains why some soy milks bother me and others never seemed to. I've also heard that the fermented soy products like soy sauce and miso are less of a problem in some ways.

purple Community Regular
purple
Posted
Hi All

I have been having trouble with feeling sick way more often than the times I thought I had maybe taken a risk or had a chance of CC and so I've been experimenting in excluding dairy (no change) and soy (seems to be heaps better!)

So I am wondering if others on here who are also soy intolerant can give me some advice please:

Are there any soy-based ingredients which are safe to consume in the same way that some wheat based ingredients are like glucose syrup or caramel colouring? Or is it likely to be the whole soy content that I am reacting to rather than a component like gluten is to wheat?

For example I am noticing soy lecithin in most everything and finding that cuts out a huge number of options that were previously on my safe list, hard enough avoiding gluten as it is without avoiding that too...

Also, has anyone got any suggestions for a replacement for soy sauce? My diet has moved a lot to asian style cooking since mostly those kinds of dishes are easy to make gluten free but when I am excluding soy sauce it makes it a lot harder to make stuff be tasty!

Interesting side note for those who talk about being scared to travel - I actually felt a whole lot better when I was overseas recently and eating mostly the same diet that I am on at home, I ate a lot of homemade sandwiches etc, but as soon as I got home I started feeling bad again and realised that the main real change I had made when I came home was switching back to soy milk instead of dairy milk. (Yes I was drinking a certified gluten-free brand of soy milk) so that's what tipped me off that soy was probably my problem!

Thanks in advance!

I never tried this but just found it...yay! allrecipes.com/Recipe/Soy-Sauce-Substitute/Detail.aspx

margiemakes Newbie
margiemakes
Posted
  • Author

Thanks everyone!

I will look at making that soy sauce substitute soon, Purple. :)

I wondered if maybe the soy lecithin was okay because I forgot to check before I ate some chocolate from my regular gluten-free brand that had that in it and felt fine afterwards.

Missy'smom - I have just looked up the soymilk I was drinking and it does have carageenan in it! I wonder if I should try a brand that doesn't or just stick with milk now seeing as that's working for me... I'd like to be able to use soy sauce and soy derivatives if it's not the soy that's the problem but the carageenan!

Tom - The Australian coeliac society recommends wheat glucose syrup and caramel colouring as safe and I have never had a reaction to either! Apparently they are so highly processed that all the gluten is removed during the purification.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    2. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    3. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    4. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

    5. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,020
    • Most Online (within 30 mins)
      7,748
    Ericaa
    Newest Member
    Ericaa
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.