Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oh My Goodness


Canadiangirl

Recommended Posts

Canadiangirl Apprentice

It's been awhile since I have posted. I feel like I am in a nightmare! I have been taking the same multivitamin for about 3 years. Its actually 3 pills, through a company of a freind of mine. I assumed ( first mistake) it was fine as when she introduced me to them I was just really begining to understand my Celiac and gluten awareness. A label said " no naturally occuring gluten". I assumed( again...big mistake) it was fine. I ran out of my vitamins about a month ago. I noticed within a week my skin broke out, and I was bruising easily so i ordered a new box. BUT today when it arrived I thought - may as well read the ingredients. To my horror, Maltodextrin AND Modified Food Starch are among the first non-medical ingredients. I felt sick! I called my freind and explained...her reponse? " well, i wonder how much it really contains. sometimes they have to list it b/c its made on the same equipment, or maybe it just has trace amounts" oh my word!!!! I kindly and breifly said, yet again, I cannot even have traces of gluten. Its really not good for me.

Anyways, I have sent the vitamins back. I just cant beleive this!!! And now I am thinking, HOLY COW what have I been putting in my body! Another light bulb just went on as well, I have had this terrible skin condition on my scalp for....ding ding... about 3 years!!!! I wonder if it will clear now?

What can I do to heal? I am soooo choked at msyelf for being so niave! I would sometime throw up the vitamins within 20 minutes of taking them and I thought it was just b/c they were potent! Now I know my body was like " hello!!!! please dont take these!"

Thanks for listening:(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular
It's been awhile since I have posted. I feel like I am in a nightmare! I have been taking the same multivitamin for about 3 years. Its actually 3 pills, through a company of a freind of mine. I assumed ( first mistake) it was fine as when she introduced me to them I was just really begining to understand my Celiac and gluten awareness. A label said " no naturally occuring gluten". I assumed( again...big mistake) it was fine. I ran out of my vitamins about a month ago. I noticed within a week my skin broke out, and I was bruising easily so i ordered a new box. BUT today when it arrived I thought - may as well read the ingredients. To my horror, Maltodextrin AND Modified Food Starch are among the first non-medical ingredients. I felt sick! I called my freind and explained...her reponse? " well, i wonder how much it really contains. sometimes they have to list it b/c its made on the same equipment, or maybe it just has trace amounts" oh my word!!!! I kindly and breifly said, yet again, I cannot even have traces of gluten. Its really not good for me.

Anyways, I have sent the vitamins back. I just cant beleive this!!! And now I am thinking, HOLY COW what have I been putting in my body! Another light bulb just went on as well, I have had this terrible skin condition on my scalp for....ding ding... about 3 years!!!! I wonder if it will clear now?

What can I do to heal? I am soooo choked at msyelf for being so niave! I would sometime throw up the vitamins within 20 minutes of taking them and I thought it was just b/c they were potent! Now I know my body was like " hello!!!! please dont take these!"

Thanks for listening:(

I'm so sorry to hear all that. I hope you feel better soon.

ShayFL Enthusiast

Try not to be too hard on yourself. We all make mistakes. You can correct it now and move on. I hope you feel better soon.

aikiducky Apprentice

Maltodextrin and modified food starch don't automatically contain gluten, they can be made of corn for example. Did you check this with the company?

Pauliina

Ursa Major Collaborator
Maltodextrin and modified food starch don't automatically contain gluten, they can be made of corn for example. Did you check this with the company?

Pauliina

Pauliina, you are right. But why would she throw up after taking them? That makes me think they may have gluten. On the other hand, maybe Canadiangirl is intolerant to corn or whatever the starch is that is in those vitamin pills?

slmprofesseur Apprentice

Usually modified food starch (unspecified source) is usually wheat. You should probably call to find out. I usually go for something that is clearly labeled. Hope you feel better soon!

ravenwoodglass Mentor
Usually modified food starch (unspecified source) is usually wheat. You should probably call to find out. I usually go for something that is clearly labeled. Hope you feel better soon!

In the US modified food starch in FOOD muct be labeled as wheat if it is and in food if it is not specified it must be corn. This same rule does NOT apply for meds or supplements. There are no labeling regs for those and the binders can change at will. Also with supplements ingredients like wheat germ oil and barley grass etc can and are often in items that are supposed to be gluten-free. We need to use care, contact the maker and verify all ingredients on any meds or supplements we use. This applies especially to generic drugs as they can change binders at will.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadiangirl Apprentice

Thanks for all of the replies! This is so nice. I actually did not verify wih the company the source of the maltodextrin and mod. food starch. I paniced! I will do this! how great would it be if i just overreacted!! But i am still pretty sure. The whole scalp/sickness thing makes me very nervous - I'll let ya'll know!

Canadiangirl Apprentice

hello all,

so the compny got back to me very quickly. how nice! however, as suspected:

"The Modified Food Starch in the Double X is derived from corn or wheat

starch, we use both.

At this time, we are not able to certify that all products available

through Quixtar are gluten free. Please note that there are currently no

Canadian regulations regarding the use of the term "gluten-free". We expect

this to change within the next few years, but at this time, a product label

may say "gluten-free" if there is no known source of gluten added to the

product. However, this does not guarantee that the product is actually free

of any trace amounts of gluten."

LAME!

Does anyone know why canada has no regulations regarding gluen free labeling?? Does this mean I can not trust "gluten free" to be gluten free ????

home-based-mom Contributor
LAME!

Does anyone know why canada has no regulations regarding gluen free labeling?? Does this mean I can not trust "gluten free" to be gluten free ????

I'm not sure about Canadian laws, but as ravenwoodglass posted, in the USA allergens in medications and supplements do NOT have to be labeled. It would seem that everyone but the FDA can see how asinine that is, but whatever . . . :angry:

Even worse, once regulations do go into effect, companies will be allowed to label a product as "Gluten Free" if the gluten it contains is below a set minimum, such as 20 ppm. So "Gluten Free" may or may not really be "Gluten Free" so no you will not be able to trust it.

Canadiangirl Apprentice

holy cow. i think this is unbelievably terrible!!!!!!!!!!!!!!!!!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,498
    • Most Online (within 30 mins)
      7,748

    Rated H
    Newest Member
    Rated H
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It looks like their most recent clinical trial just finished up on 5-22-2025.
    • Fabrizio
      Dear Scott,  please check the link https://clinicaltrials.gov/study/NCT05574010?intr=KAN-101&rank=1 What do you think about it?
    • Scott Adams
      KAN‑101 is still very much in development and being actively studied. It has not been dropped—rather, it is advancing through Phases 1 and 2, moving toward what could become the first disease‑modifying treatment for celiac disease. https://anokion.com/press_releases/anokion-announces-positive-symptom-data-from-its-phase-2-trial-evaluating-kan-101-for-the-treatment-of-celiac-disease/ 
    • knitty kitty
      Thiamine interacts with all the other B vitamins.  Thiamine and B 6 make a very important enzyme together. With more thiamine and other vitamins available from the supplements your body is absorbing the ones you need more of.  The body can control which vitamins to absorb or not.  You're absorbing more and it's being transported through the blood.   It's common to have both a Thiamine and a Pyridoxine deficiency.  Keep taking the B Complex. This is why it's best to stop taking supplements for six to eight weeks before testing vitamin levels.  
    • badastronaut
      Yes I took a supplement that had B6 in it, low dosage though. I've stopped taking that. B1 doesn't affect other B vitamin levels? 
×
×
  • Create New...