Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oh My Goodness


Canadiangirl

Recommended Posts

Canadiangirl Apprentice

It's been awhile since I have posted. I feel like I am in a nightmare! I have been taking the same multivitamin for about 3 years. Its actually 3 pills, through a company of a freind of mine. I assumed ( first mistake) it was fine as when she introduced me to them I was just really begining to understand my Celiac and gluten awareness. A label said " no naturally occuring gluten". I assumed( again...big mistake) it was fine. I ran out of my vitamins about a month ago. I noticed within a week my skin broke out, and I was bruising easily so i ordered a new box. BUT today when it arrived I thought - may as well read the ingredients. To my horror, Maltodextrin AND Modified Food Starch are among the first non-medical ingredients. I felt sick! I called my freind and explained...her reponse? " well, i wonder how much it really contains. sometimes they have to list it b/c its made on the same equipment, or maybe it just has trace amounts" oh my word!!!! I kindly and breifly said, yet again, I cannot even have traces of gluten. Its really not good for me.

Anyways, I have sent the vitamins back. I just cant beleive this!!! And now I am thinking, HOLY COW what have I been putting in my body! Another light bulb just went on as well, I have had this terrible skin condition on my scalp for....ding ding... about 3 years!!!! I wonder if it will clear now?

What can I do to heal? I am soooo choked at msyelf for being so niave! I would sometime throw up the vitamins within 20 minutes of taking them and I thought it was just b/c they were potent! Now I know my body was like " hello!!!! please dont take these!"

Thanks for listening:(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular
It's been awhile since I have posted. I feel like I am in a nightmare! I have been taking the same multivitamin for about 3 years. Its actually 3 pills, through a company of a freind of mine. I assumed ( first mistake) it was fine as when she introduced me to them I was just really begining to understand my Celiac and gluten awareness. A label said " no naturally occuring gluten". I assumed( again...big mistake) it was fine. I ran out of my vitamins about a month ago. I noticed within a week my skin broke out, and I was bruising easily so i ordered a new box. BUT today when it arrived I thought - may as well read the ingredients. To my horror, Maltodextrin AND Modified Food Starch are among the first non-medical ingredients. I felt sick! I called my freind and explained...her reponse? " well, i wonder how much it really contains. sometimes they have to list it b/c its made on the same equipment, or maybe it just has trace amounts" oh my word!!!! I kindly and breifly said, yet again, I cannot even have traces of gluten. Its really not good for me.

Anyways, I have sent the vitamins back. I just cant beleive this!!! And now I am thinking, HOLY COW what have I been putting in my body! Another light bulb just went on as well, I have had this terrible skin condition on my scalp for....ding ding... about 3 years!!!! I wonder if it will clear now?

What can I do to heal? I am soooo choked at msyelf for being so niave! I would sometime throw up the vitamins within 20 minutes of taking them and I thought it was just b/c they were potent! Now I know my body was like " hello!!!! please dont take these!"

Thanks for listening:(

I'm so sorry to hear all that. I hope you feel better soon.

ShayFL Enthusiast

Try not to be too hard on yourself. We all make mistakes. You can correct it now and move on. I hope you feel better soon.

aikiducky Apprentice

Maltodextrin and modified food starch don't automatically contain gluten, they can be made of corn for example. Did you check this with the company?

Pauliina

Ursa Major Collaborator
Maltodextrin and modified food starch don't automatically contain gluten, they can be made of corn for example. Did you check this with the company?

Pauliina

Pauliina, you are right. But why would she throw up after taking them? That makes me think they may have gluten. On the other hand, maybe Canadiangirl is intolerant to corn or whatever the starch is that is in those vitamin pills?

slmprofesseur Apprentice

Usually modified food starch (unspecified source) is usually wheat. You should probably call to find out. I usually go for something that is clearly labeled. Hope you feel better soon!

ravenwoodglass Mentor
Usually modified food starch (unspecified source) is usually wheat. You should probably call to find out. I usually go for something that is clearly labeled. Hope you feel better soon!

In the US modified food starch in FOOD muct be labeled as wheat if it is and in food if it is not specified it must be corn. This same rule does NOT apply for meds or supplements. There are no labeling regs for those and the binders can change at will. Also with supplements ingredients like wheat germ oil and barley grass etc can and are often in items that are supposed to be gluten-free. We need to use care, contact the maker and verify all ingredients on any meds or supplements we use. This applies especially to generic drugs as they can change binders at will.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadiangirl Apprentice

Thanks for all of the replies! This is so nice. I actually did not verify wih the company the source of the maltodextrin and mod. food starch. I paniced! I will do this! how great would it be if i just overreacted!! But i am still pretty sure. The whole scalp/sickness thing makes me very nervous - I'll let ya'll know!

Canadiangirl Apprentice

hello all,

so the compny got back to me very quickly. how nice! however, as suspected:

"The Modified Food Starch in the Double X is derived from corn or wheat

starch, we use both.

At this time, we are not able to certify that all products available

through Quixtar are gluten free. Please note that there are currently no

Canadian regulations regarding the use of the term "gluten-free". We expect

this to change within the next few years, but at this time, a product label

may say "gluten-free" if there is no known source of gluten added to the

product. However, this does not guarantee that the product is actually free

of any trace amounts of gluten."

LAME!

Does anyone know why canada has no regulations regarding gluen free labeling?? Does this mean I can not trust "gluten free" to be gluten free ????

home-based-mom Contributor
LAME!

Does anyone know why canada has no regulations regarding gluen free labeling?? Does this mean I can not trust "gluten free" to be gluten free ????

I'm not sure about Canadian laws, but as ravenwoodglass posted, in the USA allergens in medications and supplements do NOT have to be labeled. It would seem that everyone but the FDA can see how asinine that is, but whatever . . . :angry:

Even worse, once regulations do go into effect, companies will be allowed to label a product as "Gluten Free" if the gluten it contains is below a set minimum, such as 20 ppm. So "Gluten Free" may or may not really be "Gluten Free" so no you will not be able to trust it.

Canadiangirl Apprentice

holy cow. i think this is unbelievably terrible!!!!!!!!!!!!!!!!!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,685
    • Most Online (within 30 mins)
      7,748

    tdouglas2901
    Newest Member
    tdouglas2901
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.