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What A Wonderful Community

ohsotired

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ohsotired Enthusiast
ohsotired
Posted

I'm fairly new here, and I found this website while looking for answers to my own issues.

There are enough posts here that sound eerily familiar to my own situation that I felt the need to sign up and participate here.

I'm undiagnosed, but fresh into a gluten-free diet (this is day 3) to see if helps - and so far, so good.

It's great to see a community full of such caring people, and I hope to make a few friends along the way that understand what I'm going through. I won't post my big long history here, but it's available in my blog if you care to read it. ;)

I just wanted to say Thanks for such a great resource. I've learned so much in a very short time.

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Lisa Mentor
Lisa
Posted

Welcome!

I remember when I first arrived here. So many people were here to hold my hand and help me through the world of Celiac.

I hope you feel at home here and if we can help in any way, please ask.

ohsotired Enthusiast
ohsotired
Posted
  • Author

Thanks for the welcome, Momma Goose. :)

I guess that's kind why I'm here, for the hand holding. LOL I've felt like I've been enduring all of this by myself, since I don't *look* sick, I just feel sick most of the time.

I do already feel pretty at home here, because I see myself in so many of the posts written here.

Hopefully I can keep learning about celiac disease and gluten intolerance and help someone else down the road.

Thanks again! I look forward to be an active part of this community.

jerseyangel Proficient
jerseyangel
Posted

I want to add my welcome :D

You've definately come to the right place for support! When I stumbled on this site, I was floored to see people discussing all of the things I had been dealing with for so long. I had never been part of an on-line group, worse yet, I wasn't computer literate and had to ask my son how to post! :lol: I just knew I had to be a part of this!

Let us know how we can help :)

lizard00 Enthusiast
lizard00
Posted

Wanted to add my welcome too!!!

This website helped A LOT, especially in the beginning. I am glad you feel welcome here and please feel free to ask away. The forum is full of incredibly knowledgable and caring people who are always ready to help!! :D

ohsotired Enthusiast
ohsotired
Posted
  • Author

Thanks jerseyangel and lizard00!

I'm still reading and reading and reading and trying to absorb all of this new information, but I will most certainly be asking question soon!

Thanks again all!

curlyfries Contributor
curlyfries
Posted

Welcome aboard!!! :D

Like you, when I found this forum, I read tons of old threads. There was so much information to absorb that I now keep a binder for all my notes. I have numerous sections: Safe Foods, Unsafe Foods, Supplements, Books and Publications, Websites, Restaurants and Menus, Recipes, and also a section for related issues. My daughter has finally decided she needs to be gluten-free so I will probably let her borrow it. ;)

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ohsotired Enthusiast
ohsotired
Posted
  • Author

curlyfries, thanks for the welcome!

I've been reading tons of old threads too, and I suppose I should be saving the information as well!

Maybe you should make copies of your binder for sale. ;) J/K!

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      Guinness, can you drink it?

      By Rogol72 · Posted

      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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