Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh And Pressure Points?


turkeybird

Recommended Posts

turkeybird Rookie

I read an article that says that DH is more likely to occur on the skin in areas where there is pressure, like from clothing. Anyone have thoughts on this? I seem to get more DH flareups on my back and my waist where my clothes (bra, pants) put pressure on my skin. I have noticed a lot more outbreaks on my back since I started wearing a tight sports bra when running. Just curious.

Thanks!

Turkeybird


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
I read an article that says that DH is more likely to occur on the skin in areas where there is pressure, like from clothing. Anyone have thoughts on this? I seem to get more DH flareups on my back and my waist where my clothes (bra, pants) put pressure on my skin. I have noticed a lot more outbreaks on my back since I started wearing a tight sports bra when running. Just curious.

Thanks!

Turkeybird

My first thought would be what detergent and fabric softener are you using? I usually got problems like this from an unsafe detergent. Those areas are in constant contact with the fabric which would have an offending allergen right tight on skin.

Have you tried using a detergent like Arm and Hammer Free and Clear to see if the problem resolves?

flourgirl Apprentice

I get the rash anywhere and everywhere. I've had several flare ups, and it seems there is no pattern, shows up in new places as well as old. It does not mirror both sides of the body on me. There is no place left that I have not had a rash.

For a while the break outs were getting smaller.....smaller areas and smaller blisters. I had a major glutening a few weeks back (still haven't figured out from what). Not only did I do a major backslide healthwise, I had a huge outbreak of DH. I'm hoping to never have to go through this again. I feel like I'm starting all over.

  • 1 month later...
Wednesday from New Orleans Newbie
I get the rash anywhere and everywhere. I've had several flare ups, and it seems there is no pattern, shows up in new places as well as old. It does not mirror both sides of the body on me. There is no place left that I have not had a rash.

For a while the break outs were getting smaller.....smaller areas and smaller blisters. I had a major glutening a few weeks back (still haven't figured out from what). Not only did I do a major backslide healthwise, I had a huge outbreak of DH. I'm hoping to never have to go through this again. I feel like I'm starting all over.

My dermatologist didn't think my rash looked like DH so I tried various topicals and switched to unscented dye free soap and laundry detergent with no success. I didn't understand why I got the rash only in spots covered by clothing until I searched symptoms and kept finding Celiac and DH in the search results and read about pressure points.

My Gastroenterologist had included a test for Celiac in a series of tests but didn't mention it to me,and his staff wasted an extra month when the lab didn't have enough blood samples to perform the test. They kept telling me the results would be "another week" until I called the lab myself and learned the truth. By then I had learned about DH online and requested that my dermatologist test for it because of a family history of autoimmune diseases: thyroid disease, diabetes, liver disease, heart trouble, diverticulitis.

My DH is always mirrored to a degree but more severe on one side. Solorcaine spray and Mometesone give me some temporary relief.

Diagnosed 8 months ago at age 49 and DH was almost gone until I ate Batman Special Edition dark chocolates for weeks thinking I had read the bag and that they were safe. Anyone have Cutaneous Sarcoidosis granulomas at the same time as DH?

lovegrov Collaborator

In general DH is worse at pressure points or where the skin is closer to the bone -- elbows, knees, etc. I had DH for more than 20 years but have never found detergents or fabric softeners to be a problem.

richard

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Ibuprofen

    2. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    3. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings

    4. - Scott Adams replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Oh my goodness medication causing pain !!!!

    5. - Scott Adams replied to Me,Sue's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Knowing what to do when feeling unwell.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748

    GR82BNTX
    Newest Member
    GR82BNTX
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.