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Starting Back On Regualr Gluten Diet...how Long Should I Expect To See Sypmtoms Return? And A Few Other Questions...

Legmaker72

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Legmaker72 Rookie
Legmaker72
Posted

I am going back to eating a reguler diet in order to have my diagnostic tests done and I was wondering, those of you who have returned back to a diet containing Gluten, how long did it take for your symptoms to return?

I've had inconsistant symptoms even on a gluten-free diet, so I am trying to see if any of my symptoms worsen and how soon would I notice. I had pizza tonight...the first Gluten containing food in over a month and a half.

On another note...for those of you with Gluten allergy/intolerance or Celiac, is weight loss always a symptom?

I have never experienced any weight loss.

I have been trying the gluten-free diet as a last resort effort to figure out my GI issues (Ulcerative Colitis..in remission supposedly) maybe IBS, but there is no official test for that...

These conditions are all so similar in symptoms, I just want to narrow it down. If my UC is in remission, why am I still having symptoms...I go on a gluten-free diet, things seem to get better for a brief while, then inconsistant days of symptoms...is it just a fluke? Did I just have a week that was a good one? Is the gluten-free diet helping? Is it a waste of time?

These are the questions in my mind all the time...

Anyhow....Let me know what you think....Now that I have been on gluten-free diet for a little while, and just started back eating gluten containing foods, I'm kind of waiting for the ball to drop....and maybe it won't. Who knows.

I thought about seeing an allergist to test for food allergies...thoughts?

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Legmaker72 Rookie
Legmaker72
Posted
  • Author

The more I read here, the more I wonder if it is worth going back om a regular diet for 3 months to have blood tests done. I just feel like I need confirmation of what I am doing, but at the same time, is it worth it?

fedora Enthusiast
fedora
Posted

weight gain is not always a symptom. When I got real sick I would put on weight, be hungry all the time. I don't think I was absorbing things well so my body held on to what ever it could get. Also inflammation.

If your tests come back negative you may want to go on the gluten-free diet for longer. A month and a half is not real long. I knew I was better without gluten within days, but I had ups and downs for months.

Legmaker72 Rookie
Legmaker72
Posted
  • Author

Well, I think I may have answered my own question. Instead of spending the day at the beach with my nieces, I'm staying home with abdominal pain, cramping and low back pain. So I guess sharing in Pizza night was not the best thing to do.

I do not think I will be going in for the blood tests after all. I forgot how miserable it feels when your insides feel like they are being squeezed in a vice. I guess I will join the club of self diagnosed gluten intolerant folks. It is not worth spending one day like this, never mind three months!

As a medical professional, I am always wanting the definitive diagnosis....I guess I will have to figure out a way to accept the "undiagnosed" diagnosis.

I'll be spending more time here now, but mostly for recommendations on recipes for things like Pizza dough and bread and cookies ;-)

LuvMoosic4life Collaborator
LuvMoosic4life
Posted
Well, I think I may have answered my own question. Instead of spending the day at the beach with my nieces, I'm staying home with abdominal pain, cramping and low back pain. So I guess sharing in Pizza night was not the best thing to do.

I do not think I will be going in for the blood tests after all. I forgot how miserable it feels when your insides feel like they are being squeezed in a vice. I guess I will join the club of self diagnosed gluten intolerant folks. It is not worth spending one day like this, never mind three months!

As a medical professional, I am always wanting the definitive diagnosis....I guess I will have to figure out a way to accept the "undiagnosed" diagnosis.

I'll be spending more time here now, but mostly for recommendations on recipes for things like Pizza dough and bread and cookies ;-)

welcome to the club. I'm in the same boat as you. I went back on gluten a few months back in hopes to get tested, after three days I was in misery, bloated, gassy, heacace,aches and pains,ect- I said "no way." I would also like to have an official diagnosis and I am finding it hard to get people to understand me and my decision, but then I remind myself I am doing what is best for me. Those other people would probably still not completely get it even if I had a official diagnosis. If anything I may see if I can get a gene test. I cant afford enterolab otherwise Id definitly do that.

Jestgar Rising Star
Jestgar
Posted
The more I read here, the more I wonder if it is worth going back om a regular diet for 3 months to have blood tests done. I just feel like I need confirmation of what I am doing, but at the same time, is it worth it?

As a medical professional, I am always wanting the definitive diagnosis....I guess I will have to figure out a way to accept the "undiagnosed" diagnosis.

I've never quite understood the need for a "professional" diagnosis (unless you need the paperwork for something). Do you need a doctor to tell you you have a headache? Just because there is a way to diagnose something with lab tests shouldn't mean that it's required.

Jestgar Rising Star
Jestgar
Posted
I am finding it hard to get people to understand me and my decision,

They don't know a doctor didn't tell you unless you tell them that. Tell them a Celiac professional diagnosed you based on dietary challenges (meaning, of course, any of us on this forum :rolleyes: ).

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HouseKat Apprentice
HouseKat
Posted

Last December, after four months gluten-free I went back on gluten to prepare for the blood tests...I lasted four days. It was horrible. One of the worst episodes I'd ever had. They did take my blood then for testing; the blood panels were useless of course, but the DNA portion found that I'm DQ 5. Then the ignorant GI doc tried to argue that the blood panel "proved" that I wasn't celiac, completely disregarding the DNA evidence, family history, and dietary response. Apparently, 1 + 1 + 1 = 0. Needless to say, I'm never going back to see him again.

Kate

I am going back to eating a reguler diet in order to have my diagnostic tests done and I was wondering, those of you who have returned back to a diet containing Gluten, how long did it take for your symptoms to return?
ravenwoodglass Mentor
ravenwoodglass
Posted
Well, I think I may have answered my own question. Instead of spending the day at the beach with my nieces, I'm staying home with abdominal pain, cramping and low back pain. So I guess sharing in Pizza night was not the best thing to do.

I do not think I will be going in for the blood tests after all. I forgot how miserable it feels when your insides feel like they are being squeezed in a vice. I guess I will join the club of self diagnosed gluten intolerant folks. It is not worth spending one day like this, never mind three months!

As a medical professional, I am always wanting the definitive diagnosis....I guess I will have to figure out a way to accept the "undiagnosed" diagnosis.

I'll be spending more time here now, but mostly for recommendations on recipes for things like Pizza dough and bread and cookies ;-)

Dietary exclusion and challenge with positive results, like you clearly had are also diagnostic. For some of us unlucky ones it really is the only way to diagnose unless we are almost dead. There are some doctors who, if you have been having health issues and the diet results in long term resolution of those problems will give you a diagnosis.

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