Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Teen Wanting Celiac Online Friends!


Softballer7

Recommended Posts

Youngceliac16 Apprentice

Hi, I'll be 13 in Feb. and was diagnosed this past spring after having mono for months. I don't know any celiacs and would love to chat with someone who does.

  • 4 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IxMissxMysticxPizza Apprentice
hey im 15 and was diagnosed in December, pm me if you want, or join celiac teens (www.celiacteens.com/messageboard)

hi nikki im michelle im 15 and also have celiac disease and i've been waiting to chat with another teen like me so thanks for the website url!

IxMissxMysticxPizza Apprentice

hi I am a teen wanting online celiac friends too! im 15 and i was diagnoised in the summer of 2005 ever since been longing to have another teen to talk about my celiac problems too. any1 here have aim? im deadlydreamer26 on there. feel free to message me.

  • 2 months later...
Angels~Exist Newbie

Hey! I'm 16. I live in Missouri and don't know anyone else around here with celiac disease. I have msn so if you want to email me my address is: kaseyarleen325@msn.com - you can email me anytime!

Celiac HSR Newbie

Hello, i'm Hannah

I'm 15 and I live in California, I was diagnosed (somewhere around mid FEB.)

I just need someone to vent to.

CeliacAlli Apprentice
Hey guys whats going on?? I was diagnosed w/ celiac disease in early june and have only met one person that has this disease........ anyways hit me up on my face book i would love to get to know you. my name is Alex Stoyanoff. Hope to talk to you soon!!!

Alex.

I looked you up on facebook..haha. are you the pic with like a bonfire ish type of thing??. If so I'll friend you when you reply.

CeliacAlli Apprentice
Hello, i'm Hannah

I'm 15 and I live in California, I was diagnosed (somewhere around mid FEB.)

I just need someone to vent to.

Hey Hannah,

My name is Allison

Just know anytime you want to talk or vent about anything let me know!! Were about the same age so we should be able to relate!

Keep in touch :)

Allison


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CeliacAlli Apprentice
Hi, I'll be 13 in Feb. and was diagnosed this past spring after having mono for months. I don't know any celiacs and would love to chat with someone who does.

Hey,

Anytime if you wanna chat talk to me on aim...if you have one... allisonnn04 or just on here!

CeliacAlli Apprentice
I'll talk!

I don't know anybody on here.

I'm fifteen, from California. I found out I wasn't able to have gluten the day after my birthday last year. So December 2nd.

Hey,

I'll talk too!! haha

So how has it been for you?? What are your favorite dishes and snacks??

LBethanyC Newbie

Hey guys! I'm 18 years old, and I'm starting university in September. My doctor has unofficially diagnosed me with Celiac Disease, and I am waiting for my results to come back to make it definite. I've been living gluten-free for about 6 months, except for the period when I had to eat it to make my blood test accurate. (The first blood test I had came back a false negative, and my doctor said it was because I was gluten-free for months at the time.)

I have been very sick my entire life, but have just recently found out that it was due to gluten consumption. I don't know anyone who has Celiac, gluten intolerance, or anything close to this. None of my friends or family even have food allergies. That makes it very difficult for people to understand. It would be great if I had someone to talk to about it, and I'd be glad to talk to others who need it :).

Feel free to email me! bethany_colbourne_12@hotmail.com.

:).

  • 4 weeks later...
hannah15 Newbie
anyone here wanna talk about like celiac and stuff!!!

If your still on sure I would love to ;)

hannah15 Newbie
Hi, another celiac here new to the forums :P

I was diagnosed at 14 months of age, and now I'm 16 and well.

@Alli. My parents also informed my old school I was celiac, mainly because I entered when I was 10 years, and still not completely aware of what I was allergic of. But after that one time, my parents had no more contact with the school regarding being celiac.

When I used to go to camps or such, my mum would always enter and explain things. It could be a bit irritating at times, but I just accepted it.

The main issue here is trust. If you can show your parents that you can uphold your diet they will start trusting you. For these last two years, any camp / dinner I went to, I ordered for myself because now they know that I know my condition better than they do (since I'm the only celiac in my family. Well my father is slightly intolerant but he still takes gluten).

Also, as for completely emotional. Yes, I do. It's called being a teenager. :P Everyone passes through such days at our age. We just have something to blame it on (even though it might not be directly influential.)

@CranberryThief. Give them a few months to understand that you can handle it on yourself. They'll start backing off slowly themselves. :)

Also, Aim / MSN / Y!IM should be in my profile. Anyone feel free to hit me up. I tend to suffer from boredom a bit :D

Well, we sound alike(exepted for the fact that you were diagnosed earlier than I was) I would love to talk some time, especially since you are a pro.

hannahp57 Contributor

hey hannah! im a celiac hannah too! you're the first one ive met so far :)

im nineteen and a sophomore in college. ive been gluten free a little over three years and have learned to make almost anything i want to be gluten free. most recen success: cinnamon rolls. next endeavors: poptarts

(what can i say?? i miss them lol) and crackers

anyways im on fb and myspace and yahoo... lemme know if you want info!

freeoglutevil Newbie

hey, i'm emma, this is my first post, WOOT! lol. i'm 18 (just now, it's a little past midnight, august 14th and it's my b-day!) so woot woot! haha, i was looking for a good, new chocolate cake.... and then i started reading the teen posts lol so hi! i have been mostly wheat free since i was 8, of course i didnt really understand that when i ate stuff like mac and cheese at my friends houses that it hurt me lol not my mom since i broke the rules lol. but i have been gluten free and dairy free for almost five years now.. and i feel so much better :D

when i first stopped eating wheat, i had been really sick.. like missing an average of 75 days a year out of 180 at school.... the school threatened to hold me back! luckily i was a good little student (when i was there) and my mom was not about to be pushed around lol. but after we went to go see dr. lamson at a clinic that dr. jonathon wright made (he's a pretty major naturopath). i was taken off wheat, then about 3 months later, i slept for almost a month straight.. i mean i got up and went to the bathroom, i would eat (i actually had an appetite! yay! which i didnt before), then go back to bed.... after that month i felt soooo much better.. it was crazy.

before being gluten-free i had emotions like the craziest rollercoaster thinkable, i'm still really emotional but i can handle it better now.. sorta.. haha. all of my friends and family know that i am really sensitive and i cry easily and simple things can just put me in a terrible mood.

i was reading some posts and saw a few comments about being overly emotional... so i just kinda want to talk to some people that are like me because most people i know just don't get how i feel.... maybe its a celiac thing?? lol

but if you aren't emotional i'd still like to talk to you!

Thanks

Emma

CeliacAlli Apprentice
hey hannah! im a celiac hannah too! you're the first one ive met so far :)

im nineteen and a sophomore in college. ive been gluten free a little over three years and have learned to make almost anything i want to be gluten free. most recen success: cinnamon rolls. next endeavors: poptarts

(what can i say?? i miss them lol) and crackers

anyways im on fb and myspace and yahoo... lemme know if you want info!

Hey Hannah!

Would you mind giving me the recipe you used for cinnamon rollls? I've tried making them a couple times and it just didnt work..haha

and if you get the poptarts..I would LOVE to have the recipe!!

Thanks!

hannahp57 Contributor

Open Original Shared Link

this is a link to the recipe i got out of my cookbook from roben ryberg "Gluten Free Kitchen." she really knows her stuff.

i like to change the flour mix though.. last time i did cornstarch equal to the amount called for but subbed half the potato starch for buckwheat flour because i hadnt ever used them. these turn out really well. i roll them out on sugared parchment paper so that you can pick up one side of it to roll them up. the dough is very soft and wet and its really difficult to pick it up to roll haha

good luck i think you'll be happy with them. and im hoping to undertake poptarts really soon :D wish me luck

laundryghost Newbie

Hi! I'm 15, almost 16, and I was diagnosed with celiac a few months ago. So far I've been okay, but it gets hard watching other people eat my favorite foods. We've tried lots of recipes, and my mom's found a really great gluten-free baking cookbook. The bread's not quite as I'd like it, but cookies, cupcakes, and muffins are basically indistinguishable! If I have a party for my sixteenth birthday, I'm going to make all the food myself.

Happy to talk, and oh my goodness, Pop Tarts and cinnamon rolls? You'll have to share. The next things I try will be fresh pasta and possibly moo shu. I miss my Chinese food.

hannahp57 Contributor
Hi! I'm 15, almost 16, and I was diagnosed with celiac a few months ago. So far I've been okay, but it gets hard watching other people eat my favorite foods. We've tried lots of recipes, and my mom's found a really great gluten-free baking cookbook. The bread's not quite as I'd like it, but cookies, cupcakes, and muffins are basically indistinguishable! If I have a party for my sixteenth birthday, I'm going to make all the food myself.

Happy to talk, and oh my goodness, Pop Tarts and cinnamon rolls? You'll have to share. The next things I try will be fresh pasta and possibly moo shu. I miss my Chinese food.

im not sure what kind of pasta you were going to try making... but this is the only noodle i have made from scratch yet. but wow they are good! its a homemade egg noodle: (from Carol Fenster's Wheat free recipes and menus-VERY good book)

2 large eggs

1/4 cup water

1 T canola oil for hand method (reduce to 1 tsp for machine method)

1/2 C brown rice (or sorghum) flour

1/2 C tapioca

1/2 C cornstarch

1/4 C potato starch

4 tsp xanthan

1 tsp unflavored gelatin

directions: combine oil, eggs and water in a food processor and process until the eggs are light yellow in color. add the remaining ingredients and process until thoroughly blended and mixture forms a ball. remove the cover of the food processor and break the dough into egg sized pieces, cover and process until ball is once again formed.

transfer the dough to a pastry board or toher smooth surface. roll dough between two sheets of waxed paper or plastic wrap dusted with rice flour. roll as thinly as possible and cut into desired shapes with a sharp knife or pastry cutter. cook in boiling water until firm but tender to the bite; about five minutes.

other than that her book has some other pasta recipes.. and a killer cheesecake recipe. mmm :)

laundryghost Newbie

Wow, thanks! I'll make sure to try that as soon as my mom gets back next week. I've missed egg noodles! Speaking of pasta, have any of you guys tried the Bionaturae gluten-free varieties? I used to be quite the pasta junkie, and I can't tell the difference between this and regular pasta. Seriously. Sometimes I check the packaging.

Dr-LaTino Newbie

*looks around*

Well, I think my first post would fit snugly in this thread. :lol:

I was self diagnosed (sort of, some friends really helped pull me to it) and age 16, around a month and some days ago. Still in that long, uncertain, foggy recovery phase. Doing my part in battle though, I know I'll pull through this! :)

Other than that there's no telling who I'll meet on the forums and how long I'll be around. I look forward to that.

  • 2 weeks later...
GFgirly Newbie
hey, i'm emma, this is my first post, WOOT! lol. i'm 18 (just now, it's a little past midnight, august 14th and it's my b-day!) so woot woot! haha, i was looking for a good, new chocolate cake.... and then i started reading the teen posts lol so hi! i have been mostly wheat free since i was 8, of course i didnt really understand that when i ate stuff like mac and cheese at my friends houses that it hurt me lol not my mom since i broke the rules lol. but i have been gluten free and dairy free for almost five years now.. and i feel so much better :D

when i first stopped eating wheat, i had been really sick.. like missing an average of 75 days a year out of 180 at school.... the school threatened to hold me back! luckily i was a good little student (when i was there) and my mom was not about to be pushed around lol. but after we went to go see dr. lamson at a clinic that dr. jonathon wright made (he's a pretty major naturopath). i was taken off wheat, then about 3 months later, i slept for almost a month straight.. i mean i got up and went to the bathroom, i would eat (i actually had an appetite! yay! which i didnt before), then go back to bed.... after that month i felt soooo much better.. it was crazy.

before being gluten-free i had emotions like the craziest rollercoaster thinkable, i'm still really emotional but i can handle it better now.. sorta.. haha. all of my friends and family know that i am really sensitive and i cry easily and simple things can just put me in a terrible mood.

i was reading some posts and saw a few comments about being overly emotional... so i just kinda want to talk to some people that are like me because most people i know just don't get how i feel.... maybe its a celiac thing?? lol

but if you aren't emotional i'd still like to talk to you!

Thanks

Emma

Trust me i know what you mean. Sometimes theres just those times when you know that something upsets you a lot, but you have no idea why. It's the worst when I get into fights with my boyfriend because there are those times where he doesn't realize I'm not trying to be emotional and sometimes there's no reason behind it. There are times when I'll fight with him and 5 minutes afterwards its hard for me to even remember what started the fight or even what I said. It's extremely difficult :( but the fact that he's still stood by me through diagnosis, treatment, surgery, and all of my everyday needs really shows character. I'm surprised because there are times when I don't even want to deal with myself. I've found that somedays you need a day to yourself to work it out and calm down, and somedays you just need to keep going with your regular activities. Gluten contact makes me go CRAZY for two days straight. I've been diagnosed with both anxiety and depression and it's lessened serverly since I've been on this diet. However my tolerance has gone way down since then and now when I come in contact with gluten its stress overload city and I snap at anyone who falls in my path. Anyways enough ranting.. haha

My email is Open Original Shared Link if you or anyone else wants to chat :lol:

The only support group in my area meets on saturdays and I always work from 9-5. I'd be happy to chat with anyone who wants to B)

CeliacAlli Apprentice
Open Original Shared Link

this is a link to the recipe i got out of my cookbook from roben ryberg "Gluten Free Kitchen." she really knows her stuff.

i like to change the flour mix though.. last time i did cornstarch equal to the amount called for but subbed half the potato starch for buckwheat flour because i hadnt ever used them. these turn out really well. i roll them out on sugared parchment paper so that you can pick up one side of it to roll them up. the dough is very soft and wet and its really difficult to pick it up to roll haha

good luck i think you'll be happy with them. and im hoping to undertake poptarts really soon :D wish me luck

Thanks for the link!! I made them today and they are so so so delicious!!! I've tried making them before and failed so thanks :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.