Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Headaches


texas

Recommended Posts

texas Apprentice

Do anyones experience headaches even with being gluten free? I also gave up dairy and know I haven't been glutened.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mariela Newbie
Do anyones experience headaches even with being gluten free? I also gave up dairy and know I haven't been glutened.

Hi Texas!

Three years ago I was eating gluten without knowing it and I had vertigo attacks, migraines and general weakness. The neurologist said that I had some "Partial Convulsive Syndrome", nothing conclusive, and did not care about the fact that I am Celiac.

On my own I checked everything I ate and found gluten in Dannon Yogurt, which I had almost every day. Now, three years later, I do not have all of those balance problems but I still get bad headaches about twice a month. Only migraine pain relievers help, but sometimes they can only lessen the pain. They are pretty bad. I eat dairy, soy, anything else, I do not think those affect me, but I could not find a link between a certain food and my headaches. And I know I am gluten-free, but I the headaches always come back.

Have you noticed anything that you may eat before having an episode? They say that cheese and chocolate may trigger them, although I do not think that I have eaten them before my episodes. May be you have some kind of migraine. Why did you give up dairy?

Good luck!

veggienft Rookie
.......On my own I checked everything I ate and found gluten in Dannon Yogurt, which I had almost every day.......

According to Dannon:

Open Original Shared Link

------------------------------------------------------------------

.....DANNON yogurt products are not

formulated to contain gluten, but they cannot be labeled as

gluten safe because DANNON

LuvMoosic4life Collaborator

I have been getting more headaces since being gluten free...maybe its withdrawl/body re-adjustment??

But I have also had a few other problems as a result of going gluten-free so the headaces could be related to that too, its so hard to pinpoint exactly where problems come from....

Shelly D. Newbie

Your profile and your name don't really specify a gender so I'll pass on my migraine problems and what I do to help. Some of my migraines are because I was in a carwreck about 25 years ago (that started them) and the only relief I've found is regular Chiropractic adjustments. Another reason I get migraines is related to hormomal shifts during my monthly cycle. Estrogen can be a bear sometimes! Hormone levels peak and drop 2x per month (ovulation and menses). I also get headaches when the weather changes quickly. I use Maxalt-mlt for these headaches with some success. The best thing you can do is to keep a log of signs and symptoms for a few months to see what kind of a pattern develops.

darlindeb25 Collaborator

Just a note about Dannon yogurt--Dannon can't be trusted. They have been notorious over the years for being unsafe and the only yogurts they will list as safe are plain yogurts...most of us do not want plain. Besides the fact, they do not dedicate their lines.

Now, for the headaches. There are many reasons for headaches, outside of celiac disease. My neurologist just diagnosed me with sleep apnea, which I had never thought about, and yes, headache is a major symptom. I also am getting physical therapy on my neck and shoulder, the muscles are all very tight, another cause for headaches. Work stress is a very big cause of headaches, stress of any kind, for that matter. Other allergies too.

ShayFL Enthusiast

I have suffered from migraines for about 7 years. I never had them until I was in a car accident. But I only got them right around ovulation and menses. So I dont know if the car accident was an initial trigger with hormones taking over.

I went gluten-free the beginning of April this year and have not had a single migraine so far. And I was at 2 a month. So this is great news for me!!

I also have vertigo/balance problems. And neuropathy in my hands and feet. The neuropathy is improving. And the vertigo was also becoming less pronounced.

However, I glutened myself on Friday night and have spent the entire weekend praying to God, Alah, Buddha and all the saints to make the room stop spinning. I am back to normal today.

Now back to the headaches. I did remove gluten, but at the same time started taking 400 mg of vitamin B2 and 200 mg of CoQ10 (both of which have been proven in trials to reduce migraine attacks and intensity). So mine was a three pronged approach and I cannot say for certain which one did the most to help.

But after being glutened and seeing how it affects me neurologically, I know it def. played a part in getting rid of the headaches.

I am in the process of lowering the B2 and CoQ to see what happens.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



marie06 Rookie

Hello, I think you are suffering with migraines. If so have you ruled out them being caused by MSG (Mono sodium glutamate)? I get migraines from MSG, NitrAtes (not nitrites) and sudafed. Keeping them out of my diet keeps me migraine free. I have just recently been gluten and casein free and I am HOPING that it will eventually rid me of the tension headache that I have had since early 1999 (24/7). Good luck!

PS MSG in all its forms (that *I* know of):

* Food Additives that ALWAYS contain MSG *

Monosodium Glutamate

Hydrolyzed Vegetable Protein

Hydrolyzed Protein

Hydrolyzed Plant Protein

Plant Protein Extract

Sodium Caseinate

Calcium Caseinate

Yeast Extract

Textured Protein (Including TVP)

Autolyzed Yeast

Hydrolyzed Oat Flour

Corn Oil

From Autism book:E621, sodium hydrogen l-glutamate, flavour enhancer, aji-no-moto

* Food Additives That FREQUENTLY Contain MSG *

Malt Extract

Malt Flavoring

Bouillon

Broth

Stock

Flavoring

Natural Flavors/Flavoring

Natural Beef Or Chicken Flavoring

Seasoning

Spices

* Food Additives That MAY Contain MSG Or Excitotoxins *

Carrageenan

Enzymes

Soy Protein Concentrate

Soy Protein Isolate

Whey Protein Concentrate

Also: Protease Enzymes of various sources can release excitotoxin amino

acids from food proteins.

veggienft Rookie
Dannon can't be trusted.

You did not source or document this statement. Please do so.

Has Dannon lied about their yogurt?

..

darlindeb25 Collaborator
You did not source or document this statement. Please do so.

Has Dannon lied about their yogurt?

Years of experience, that's my source. We used to call Dannon, ask gluten free status, they would never answer. Then they told us (my sister and I) they do not use dedicated lines--they told us, THEY are the source. Dannon states they will not say gluten free, and this is from your own post:

.....DANNON yogurt products are not

formulated to contain gluten, but they cannot be labeled as

gluten safe because DANNON

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.