Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Dr In Portland Or Area

Meran

By Meran
in Doctors

Recommended Posts

Meran Newbie
Meran
Posted

I'm currently seeing an herbalist, and she's doing well, but insurance is NOT paying. And I have insurance, darn it! I'd like them to reimburse me..

I never got a diagnosis. We went on a gluten free diet as part of a cleansing diet AND because I have FMS (fibromyalgia)... after 3 months, we were so hungry! We went back to eating 'regular', tho we were very careful, and didn't just pig out... We'd lost 15 lbs each.. didn't want to gain it back.

I started having symptoms of gut problems, much more than ever... so we knew. I couldn't get in to see my doc for a test, but in the interest of living comfortably, we switched over to gluten free, both of us. (he has ADHD and has seen MUCH improvement, tho it took much longer)

I finally got tested, and surprise, it was negative.. from what I understand, this test is not a reliable indicator anyway, tho my doc seemed to think so. When I continued having problems, she 'gave up and gave me the recommendation to see the homeopath, because she understood nutrition better'...

But when I look in the phonebook and other online places, the only doc coming up under celiac is many hours away!

Does anyone here have a recommendation for me?

thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac-mommy Collaborator
celiac-mommy
Posted

Dr. Char Glenn @ Nob Hill Internal Medicine Clinic. She specializes in adult Celiac disease and nutrition--she's a primary care doc. I really like her and she spend a lot of time with you.

503 274-9818

Open Original Shared Link

Meran Newbie
Meran
Posted
  • Author

I guess I should have been a little more specific, sorry. ;)

NW Portland will take over an hour for me to get to and same back.. I'm outside the SE area towards Boring (but not as far)

Is no one else in the Portland area gut-positive? I HAVE noticed that they'll gladly scope you, all the way up the large colon, on a whim! but _real looking, no.. not so far...

frec Contributor
frec
Posted

Hi--Did you have the blood tests or the endoscopy? How long were you gluten free before the test? Quitting gluten before the blood tests affects the results.

There is a big gastroenterology clinic in the Tualatin area. They have a branch in Oregon City. (Gastroenterology Specialists of Oregon 503 692 3750---they have a big website) My doctor there was good about the endoscopy and diagnosis; not much help since then though. Stay on the diet; goodbye.

Otherwise I am in the same situation as you. I also have fibromyalgia. I see a really good naturopath (Dr. Noel Peterson 503 636 2734 Center for Traditional Medicine) in Lake Oswego to answer all my nutritional questions and help track down other food intolerances. Naturopaths are not covered on my insurance.

Maybe we both need to drive to NW Portland!

Meran Newbie
Meran
Posted
  • Author

I've never been diagnosed. I went on the diet for another reason, and now do NOT test positive... However, all I read says that that test may not always be accurate anyway. My doc says that I don't have it, because of that negative. And I will NOT eat gluten just to make a doc 'know' that I am what I am... gluten intolerant, at best.

I'm hoping for a doctor who can treat me, knowing all this. and no, haven't had any scoping either.. not upper. As I said before, they're ~quite willing to scope the bottom sections.. At this point, I think my doc has given up on me. I'm already getting pretty major pain pills for the FMS; she may be thinking I want more. (I don't.. I'd love nothing better that to give up all pills and their timetables... and have a nice normal life. hah!)

I may go visit this new doc anyway. Is she still taking patients? Many are not... also, I don't want a doc that probes, says stay on the diet, and goodbye.. I might as well just ask them where to send the money, since I already know all that! :)

So, no one closer to me?

How do y'all find your docs? Hunt and peck? Isn't there a list somewhere of docs 'friendly' to celiac/gluten problems?

and hey you in Lake Oswego.. that's my county, wanna meet for coffee sometime? (or tea, tea works too)

frec Contributor
frec
Posted

I know there is genetic testing that can help confirm what kind of celiac/gluten intolerance you have if you are ever curious. I have no idea how to get it or if it is covered by insurance. My diagnosis was so classic I didn't need it.

I'm seeing a new gastro--Dr. Alan Kaynard--at West Hills Gastro in September. He says he knows about celiac, but we'll see. If he really knows his stuff I'll post something on the forum.

I sent you a private email--it's not spam or a virus, it's me.

Grain-Damaged Newbie
Grain-Damaged
Posted
I see a really good naturopath (Dr. Noel Peterson 503 636 2734 Center for Traditional Medicine) in Lake Oswego to answer all my nutritional questions and help track down other food intolerances. Naturopaths are not covered on my insurance.

IAWTC - I've gone to see him and he's VERY good. Worth the cost when it comes right down to it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Hummingbird4 Explorer
Hummingbird4
Posted

My doctor is the other direction from you - he's Dr. Lake at Hillsboro Gastroenterology. You definitely do NOT want to drive from Boring to Hillsboro. The Hwy 26 traffic would make you crazy! :o

  • 2 months later...
frec Contributor
frec
Posted

Hi again--I wanted to add an update. I saw Dr. Kaynard a few weeks ago and he was super, very impressive. He was knowledgeable and listened well. (He even took my very strong opinions on the connection of fibromyalgia and celiac seriously.) I didn't feel rushed, I didn't have to educate him, and I didn't feel as if he thought I was crazy. What a relief. He is very thorough and ran all kinds of nutritional tests that I should have had six years ago but let's not get into THAT. And his assistant called--amazing--twice about the results and gave me some things to follow through on. I'm getting a colonoscopy next week; we'll see if I still like him after that... ( :

West Hills Gastroenterolgy (now merged with The Oregon Clinic) on Barnes Road in the St. Vincent complex 503 297 8081

mftnchn Explorer
mftnchn
Posted

Good to know if I need a GI.

I got in this summer to see Dr. Glenn as a new patient, and so did my daughter. We both like her. She didn't have much to add to my care. She knows the doctor I am seeing for lyme disease and thinks he is wonderful--he is why she became a doctor, she said. So she didn't think she had much to add.

I had a colonoscopy this summer and was not impressed with the NP who did my intake. If I have to go again, I would seriously consider a change.

  • 1 month later...
caek-is-a-lie Explorer
caek-is-a-lie
Posted
West Hills Gastroenterolgy (now merged with The Oregon Clinic) on Barnes Road in the St. Vincent complex 503 297 8081

Oh that's super close to me! Did it take you long to get in and did you need a referral? I think my insurance will let me go anywhere. I like your description...I need someone who listens and knows I'm not crazy.

frec Contributor
frec
Posted

It didn't take too long to get in. The colonoscopy/endoscopy wasn't bad at all--except for the prep, of course. He discussed the results with me right away and gave me a copy. His assistant called with the lab reports about a week later and helped me with some follow up stuff. As I said before, I was impressed. He didn't even flinch too badly when I swore--loudly--about my test results (hey, I was on drugs and starving as well). He was sympathetic instead.

I think referrals depend on what your insurance is.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Celiac Disease Beyond the Western World: Hidden Populations, Changing Diets, and Growing Awareness

    2. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    3. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    4. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    5. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,356
    • Most Online (within 30 mins)
      7,748
    JAGAPG
    Newest Member
    JAGAPG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.