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Oh Canada!

theceliachusband

Recommended Posts

theceliachusband Rookie
theceliachusband
Posted

Being new to this forum, what jumped out at me first is, how active the folks from down under are in this forum. Very impressive. Not that I would like to be called a copy cat or ME TOO man, but I think in the Gluten free world Canada has so much to offer. Kinnikinnick, Glutino, Rizopia to just name a few of the best.

My wife and daughter are both Celiacs and we just moved back to Canada. One of the best places on earth.

Let's see how many Canadians are in here and can get active. Let's post things we don't have up here (Brown Cow Yoghurt the best of all, Cocoa Pebbles, the best rice based cereal), or things we found when travelling the world (Schaer products from Germany), or just plain simple exchange info.

Talk soon, :P

Peter

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Ursa Major Collaborator
Ursa Major
Posted

Hi Peter! Well, we have El Peto products (located in Cambridge, Ontario) and Little Streams Bakery (Perth, Ontario). El Peto has just brought out a new bread, which is called 'Gourmet Bread' and it is delicious! It tastes just like light rye bread. Even my daughter, who hated all other gluten-free breads, will eat it.

psawyer Proficient
psawyer
Posted

Hi, Peter, I am also Peter.

There are a number of Canadians who are regulars here, including two moderators (I am one of them).

:( In Canada, Lea & Perrins Worcestershire sauce is not gluten-free. It is in the US.

:( Rice Chex are now gluten-free, but they have not been sold in Canada for many years.

Welcome aboard.

theceliachusband Rookie
theceliachusband
Posted
  • Author

Hi Peter,

glad to hear that are some Canadians in here. I am actually Austrian. Married to a Canadian.

So let's see what comes of it in here.

I believe that gluten free foods will become not only better, but also more widely available, as more companies become aware of the loyalty that Celiacs display.

solittletime Newbie
solittletime
Posted

Checking in from Mississauga... just learning this stuff but I'm so glad for Highland Farms and their huge selection of gluten free products, especially fresh bread - Sterk's Bakery (gluten-free Italian Hi-Fibre bread) from Vineland, Ontario. :rolleyes:

Chicklet Rookie
Chicklet
Posted

Hello, I'm just outside of Edmonton and have been to Kinnickinick a number of times. Great stuff.

Cattle Boyz BBQ sauce is gluten free and made in Calgary. Yum. :DOpen Original Shared Link

Chicklet Rookie
Chicklet
Posted

Cool, I liked your blog. :)

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elye Community Regular
elye
Posted

Hi, Peter!

I'm in Ottawa. I used to order my Kinnikinnick products form their website and have it delivered, but I've since found a health food store in town that carries almost everything in their frozen section....a great find!

The one chain that hasn't made it up here, and boy, do we need it, is Whole Foods. We went shopping in one while we were on holiday in NYC......what a terrific source for our food!

If you are ever in the nation's capital, you must have dinner at Bella Vista Restaurant. The most delicious gluten-free pizza and pasta dishes....and gluten-free beer! :)

theceliachusband Rookie
theceliachusband
Posted
  • Author

We used to live in the USA for a while and yes, Whole Foods is a tremendous place to shop. We miss it very much. Not close to you. but int eh same province they do have one.

Toronto is the only place where you will find a Whole Foods market.

H.Peter

Hi, Peter!

I'm in Ottawa. I used to order my Kinnikinnick products form their website and have it delivered, but I've since found a health food store in town that carries almost everything in their frozen section....a great find!

The one chain that hasn't made it up here, and boy, do we need it, is Whole Foods. We went shopping in one while we were on holiday in NYC......what a terrific source for our food!

If you are ever in the nation's capital, you must have dinner at Bella Vista Restaurant. The most delicious gluten-free pizza and pasta dishes....and gluten-free beer! :)

theceliachusband Rookie
theceliachusband
Posted
  • Author

I am glad you liked my scribbles. Any ideas how to make it better, just let me know

H.Peter

Cool, I liked your blog. :)
theceliachusband Rookie
theceliachusband
Posted
  • Author

Guten Tag,

I am from Austria originally, moved here in 1995. Love it in Canada. Stay in touch.

H.Peter

Hi Peter! Well, we have El Peto products (located in Cambridge, Ontario) and Little Streams Bakery (Perth, Ontario). El Peto has just brought out a new bread, which is called 'Gourmet Bread' and it is delicious! It tastes just like light rye bread. Even my daughter, who hated all other gluten-free breads, will eat it.
Gerri Explorer
Gerri
Posted

Hi

Gerri, here from Kichener, Ontario not far from Cambridge, Ontario where the El Peto products are made.

Hugs

  • 3 weeks later...
hlmac Newbie
hlmac
Posted

Hi everyone

My name is Heather I am in Newfoundland Canada

I was diagnosed 4 years ago and at first it was really hard to find food but I am happy to say it is much easier now and in fact there is quiet a variety here now.

For anyone else from Newfoundland or traveling to....there is a great Bakery in St. John's called Manna Bakery you are required to call them a day ahead to place your order but they make gluten free bread, kaiser rolls, carrot muffins, partridge berry muffins, blueberry muffins and then best chocolate chip cookies I have ever found.

A number of restaurants have gluten free menus as well but the best I have found is The Old Mill Ruins in Campbellton NL the father of the owner is Celiac so they almost everything they have is gluten free and they are really careful with the products that are not. They even have a separate gluten free fryer for cooking french fries and things.

I'm so glad I finally found this forum it is great to have a place to ask questions and just read how other people are dealing with the disease.

Cheers

Heather

Rondar2001 Apprentice
Rondar2001
Posted

Hi and welcome Calgary!! This is my home town too and there are alot of great options here.

There is a fully gluten free restaraunt on 17 Avenue SE called A Tasty Menu. I also do quite a bit of shopping at Superstore, Community Natural Foods, Lakeview Bakery, and the Purified Water Stores as they all carry quite a bit of pre packaged gluten free foods. A couple of these places even hold gluten free pancake breakfasts during stampede week.

Enjoy the site and welcome.

NorthernElf Enthusiast
NorthernElf
Posted

I'm in British Columbia.

I too love some of the Kinnikinnick stuff. I buy their sunflower & flaxseed bread mix and make it, slice it, & freeze it. I also eat their english muffins and cinnamon buns. Ugh, didn't like the cinnamon buns the first time I tried them but they grew on me. ;)

I also like Quejos out of Vancouver - they make a mannioc/cassava based "bun". I first tried them out of the freezer at Whole Foods in Vancouver. They have varieties from cheese to jalepeno. Unfortunately shipping to where I live is a tad pricey.

I LOVE Riceworks chips. Costco has a large bag of sweet chili flavor but Safeway carries several other flavors. I've taken to the plain ones for salsa after some hit & miss experiences with Tostitos.

I am also glad Walmart has that Great Value brand - some things I can find there that are gluten-free. Also - Classico & Healthy Choice pasta sauces, Cattle Boyz bbq sauce, Grimms sausages (many varieties) from Costco...sliced ham too. I buy a large bag of brown rice from Costco that say glute free as well.

I am SO happy that new labelling laws are coming in...

theceliachusband Rookie
theceliachusband
Posted
  • Author

Holidays are coming to an end....there are more posts again in some topics. :P

Not much new, I am off to Europe for a while, back to Calgary mid September.

  • 1 month later...
Mommy2Ellie Rookie
Mommy2Ellie
Posted

Hello! Also from Canada here! A tiny town about 5 hours east of Vancouver, BC. I have a 16 month old daughter that has been "tentatively" diagnosed with celiacs. We're trying out the diet to see! We don't have a lot of the "big-name products", but we have a lady in town that makes all gluten-free frozen foods so we order a ton from her! Anything you can think of, muffins, lasagna, breads......all yummy. Oh, and we have some El Peso stuff at the health food store. Glad to see there are a bunch of Canadians here!

  • 2 weeks later...
Wonka Apprentice
Wonka
Posted

Hello from a Vancouver Celiac. One of my 13 year old triplets is also in the process of getting her diagnosis (positive ttg and rising and has the DQ2 gene, biopsy scheduled for Dec 4). We have 2 rice bakeries here, Panne Rizo and Choices Rice Bakery. I tend to make all of my own baked goods though, as I also can't have soy, all legumes(including cashews - who knew it was a legume), nightshades(tomato, potato, peppers and eggplants), carregeenan(found in commercial icecreams, sour cream, cream cheese and most dairy alternatives) and I'm off dairy because I'm not sure about it at this point.

Lots of gluten-free food to be found here. I don't buy the Capers or Choices gluten free flours because they are bought in bulk and repackaged in a non designated facility (they just aren't safe for a Celiac person to consume). Best to ask your local grocery store to bring in flours from companies that have a designated facility (ie Bob's Red Mill).

If you live in the Lower Mainland or Kelowna, there is a Gluten Free Health Fair being put on by Choices Market. See flyer Open Original Shared Link

theceliachusband Rookie
theceliachusband
Posted
  • Author

Those Fairs look pretty interesting. I googled some of the exhibitors, very good stuff some of them have.

Hello from a Vancouver Celiac. One of my 13 year old triplets is also in the process of getting her diagnosis (positive ttg and rising and has the DQ2 gene, biopsy scheduled for Dec 4). We have 2 rice bakeries here, Panne Rizo and Choices Rice Bakery. I tend to make all of my own baked goods though, as I also can't have soy, all legumes(including cashews - who knew it was a legume), nightshades(tomato, potato, peppers and eggplants), carregeenan(found in commercial icecreams, sour cream, cream cheese and most dairy alternatives) and I'm off dairy because I'm not sure about it at this point.

Lots of gluten-free food to be found here. I don't buy the Capers or Choices gluten free flours because they are bought in bulk and repackaged in a non designated facility (they just aren't safe for a Celiac person to consume). Best to ask your local grocery store to bring in flours from companies that have a designated facility (ie Bob's Red Mill).

If you live in the Lower Mainland or Kelowna, there is a Gluten Free Health Fair being put on by Choices Market. See flyer Open Original Shared Link

  • 3 weeks later...
vcSmall Newbie
vcSmall
Posted

Hi. I live in Calgary, AB. Born and raised! I'm new to all this celiac stuff. I just received the results of my biopsy yesterday. My symptoms are quite mild - just bloating after meals - no other discomfort.

Has anyone heard anything in the news in the last couple of days about the Canadian food labelling law? I read something in the Calgary Herald today indicating that the bill had been dropped. Not having reason to follow this until recently, I'm not familiar with what this is all about.

I have so many questions! What about oat flour as an ingredient in a cereal (Capt'n Crunch)? What about my face cream that contains some kind of barley extract and oat extract? If I apply it and wipe off my lips is that OK? What is the scoop on natural and artificial flavours? What about caramel colour or flavour? What about rye whiskey?

OK, that's enough questions for now. I'm not handling this well and want to try to figure this out.

Thanks for listening to me.

Wonka Apprentice
Wonka
Posted

Hi vcSmall,

Even though you have mild symptoms, you will still be creating damage if you do not adhere to a very strict gluten free diet (my symptoms were not severe until I went gluten free and now I react strongly to any exposure to gluten). Stay away from mainstream cereals, the oats can have cross contamination issues (they get processed, transported etc with/around other grains including wheat so you are taking a big risk consuming them). There are some other cereals that are specifically labelled gluten free and these are safer choices (most mainstream cereals also use barley malt, a big no no for us).

With natural and artificial flavours, they could be perfectly safe or not. You need to contact the manufacturers to ensure that no gluten or gluten derivitives are used in these flavourings. Same for caramel colour. Most alcohols are distilled and the distillation process renders them free of gluten (there are some that are still wary but many that drink the grain alcohols without incident, I'm a non drinker so I can't give you first hand experience on this). Most vinegars are safe with the exception of malt vinegar.

I haven't heard anything about the bill being dropped. That would be a huge step backwards. I googled and checked out the Canadian Food Inspection site but found nothing about this being dropped (or moved forward).

Are you feeling a bit overwhelmed by your diagnosis? It is overwhelming at first. I started out by making small baby steps. I was overwhelmed with tackling my kitchen so I did it in stages. I cleaned a cupboard a day and designated one counter and one cupboard gluten free (one of my daughters has just been diagnosed recently so we are probably going to go completely gluten free in our house. I have been very sick recently with other food intolerances and, what I think is crosscontamination issues causing me to have leaky gut issues).

I bought a new toaster. It is impossible to clean a toaster well enough to be safe for our use. I replaced any plastic/wood utensils that were scratched. I replaced my sieve and collandar (sp?) and cutting boards.

I buy squeeze bottle condoments, and some that I label as just for my consumption (so that the gluten eaters do not contaminate them).

Cooking gluten free has not been to much of an issue for me as I have always cooked from scratch. I have just switched some of the ingredients that I used to use ( ie. gluten free soy sauce instead of reg soy sauce which contains wheat).

You will need to become a strict label reader, every time you purchase something (manufacturers are often switching ingredients so

they can change).

You will make mistakes. Forgive yourself and move on. This is a process and it does take some time getting used to.

There are some really great gluten free blogs on the internet where people share there experiences and there food/recipe successes. Eating gluten free is very doable, there are good cookbooks out there to help you out. Many good recipes are found on this site as well.

Here are some of my favourite sites:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

I hope I haven't overwhelmed you with too much information. You can email me anytime, through this site, I have lots of tried and true recipes that I have collected and I'd happily be moral support, through this early stage, for you.

Veronica (Wonka)

Treen Bean Apprentice
Treen Bean
Posted
Hi and welcome Calgary!! This is my home town too and there are alot of great options here.

There is a fully gluten free restaraunt on 17 Avenue SE called A Tasty Menu. I also do quite a bit of shopping at Superstore, Community Natural Foods, Lakeview Bakery, and the Purified Water Stores as they all carry quite a bit of pre packaged gluten free foods. A couple of these places even hold gluten free pancake breakfasts during stampede week.

Enjoy the site and welcome.

I'm not from Canada, but my husband and I drove through Calgary on our honeymoon. He did his research and surprised me by taking me to A Tasty Menu.... I cried! It was amazing! The cheese rolls were to die for. We bought extras to take home with us!

theceliachusband Rookie
theceliachusband
Posted
  • Author
Hi. I live in Calgary, AB. Born and raised! I'm new to all this celiac stuff. I just received the results of my biopsy yesterday. My symptoms are quite mild - just bloating after meals - no other discomfort.

Has anyone heard anything in the news in the last couple of days about the Canadian food labelling law? I read something in the Calgary Herald today indicating that the bill had been dropped. Not having reason to follow this until recently, I'm not familiar with what this is all about.

I have so many questions! What about oat flour as an ingredient in a cereal (Capt'n Crunch)? What about my face cream that contains some kind of barley extract and oat extract? If I apply it and wipe off my lips is that OK? What is the scoop on natural and artificial flavours? What about caramel colour or flavour? What about rye whiskey?

OK, that's enough questions for now. I'm not handling this well and want to try to figure this out.

Thanks for listening to me.

There is a couple of Canadian producers of "de glutened" oats.

www.Lame Advertisement.com is one of them.

As for bread and cakes, in Cochrane you can find gluten-free Patisserie.

Hope that helps

The Celiac Husband (GOOGLE)

  • 1 month later...
JJoan Newbie
JJoan
Posted

Hello,

I am also a Canadian, living in London, Ontario. I was just diagnosed about a month ago and am still adjusting to the changes. I had been lactose intolerant for about 7 years but it has miraculously gone away on the gluten-free diet. I am now hoping that other things change, like my osteopenia, migraines, and fatigue.

Finding appetizing alternatives to bread and cereal have been my biggest challenge besides having to give up some of the things I love. We do have a good health food store here but I have a feeling I'm going to have to start baking.

It's great meeting some fellow Canadians on this forum. I just discovered the site this morning and am delighted to find a resource for help and sharing.

Joan

maile Newbie
maile
Posted

Another Canadian, from Vancouver. Nice to see there's a few of us here :)

I've been haunting the local Choices recently but found that Famous Foods on Kingsway has slightly better prices for most products plus they have a seriously WIDE range of flours!!!

I have positive dietary reaction but negative bloodwork, my GP wont go to a referral for the biopsy without the positive bloodwork :( problem is I had already reduced my gluten intake for about a week or so b4 the blood test (I told him, he said take it that day anyway) and had been relatively gluten lite, by accident really, for the past couple of years.

I'm going to go the Enterolab route at this point and then take the results to my GP to discuss...any other Canucks have a similar experience with their GP?

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      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By Pablohoyasaxa · Posted

      I feel your pain. Grain and gluten intolerant. Hang in there. This forum is very helpful
    • ElisaL
      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By ElisaL · Posted

      IDK how common it is but it does happen. I'm celiac, allergic, and intolerant to the fiber in grains. (Fodmaps) So not only do I get sick from cross contamination, also gluten free wheat statch/fiber, and beauty products with wheat will get me. While I don't stop breathing the full body hives and short breath are not fun. Then once I make through that me and the bathroom become reacquaint. Sigh if I didn't feel so much better with the restrictions on my diet I'd feel sorry for myself. Least it makes for some good jokes about how the gremlin that lives in my gut really hates wheat. 
    • Wends
      Ocd making gluten fears unmanageable. Need advice

      By Wends · Posted

      Hi Dora77. “Questions I Need Help With” “1. Is it realistically safe to eat food my mom cooks…” YES - you wouldn’t be here if it wasn’t for your mother. Trust she still knows how to take the best care of you in her own way. Mishaps and cross contamination may happen - will happen on occasion, in fact - that’s life. But for the bulk of it as long as you’re aware of cc and try to avoid it for the most part, don’t sweat the small stuff! See the gluten free diet as a process. Own the process, Do Not let the process own you! “2. Do I need to worry about touching doorknobs, fridge handles, light switches, etc. that family members touched after eating gluten? What about public places like bus handles or school desks? Or like if i went to the gym, I would be touching stuff all the time, so there will be small amounts of gluten and those would get transferred on my phone if I touch my phone while in the gym. But I want to knos if it would be enough to do damage.” NO - this is OCD brain at its best! Hijacking your thoughts and justifying it because of the very real fear of gluten contamination. That’s OCD all over. Like a devil in the driving seat. Fears that are based on some kind of reality are hard to argue with. Boss it back! Recognise this for what it is. OCD using fear of gluten as its excuse to keep you entrapped. Own the OCD in this scenario, don’t let it own you. Normal cleanliness rules apply. Washing your hands before you handle food you’re putting in your mouth is fine. Washing after the gym is normal. Once daily cleansing wipe of your phone etc. Even if you did go rubbing your hands all over surfaces and licking them there might be a trace exposure to gluten possible. But I’m guessing you don’t usually do that sort of thing. Even if you inadvertently were to ingest trace gluten - it won’t be enough to do damage, no. It takes weeks to months of at least a few hundred milligrams of gliadin daily for the innate immune system followed by the adaptive immune system in coeliac disease to kick in and start producing antibodies and cause villous atrophy. “3. Is an endoscopy (without biopsy) enough to tell if my intestines are healed? I’d pay privately if it could help and if i dont get a refferal. Or do i need a biopsy?” Only biopsy, as the gold standard of diagnosis, can tell for certain if villi have recovered. Having said that video capsule etc. can give an indication of any inflammation. “4. Could my job (powder coating, sandblasting, etc.) expose me to gluten or damage my intestines through air/dust?” Assuming your employer provides all necessary PPE - appropriate mask and overalls etc. All you can do is take the precautions that are advised according to risk assessments and regulations of the relevant industry governing bodies? (I don’t know what this would be in the USA. Sorry. But there’s safety and governing regs in the UK for this sort of thing. Assuming it would be very similar over the pond in fairness). “5. Do I need certified gluten-free toothpaste, hand soap, shampoo, or moisturizer? (For example: Vaseline and Colgate don’t contain gluten ingredients but say they can’t guarantee it’s gluten-free.)” This comes down to personal threshold of gluten tolerance. People that are highly sensitive may need certified products. Especially those with dermatitis herpetiformis - the skin manifestation of gluten sensitivity. Listen to your body on this one. “6. Is spices like pepper with “may contain traces of gluten” safe if no gluten ingredients are listed? Or does everything need to be labeled gluten-free?” This one is easy - when following a strict gluten free diet, avoid products that say May contain traces of gluten. But it does not have to be labelled gluten free. There are many foods naturally gluten free. Having said that, there is nuance and personal tolerance threshold. If you’re super sensitive “may contain gluten” labelling is a godsend. But this kind of labelling is more aimed at informing customers with type 1 food hypersensitivity/ allergy reactions. The company is basically legally covering themselves, because there may be a risk of cross contamination. Not to be confused that it means there is cross contamination. In addition to products being labelled gluten free. Many products that are labelled can still contain gluten by the way - in fact any processed products labelled gluten free can still contain the allowable level of gluten (up to 20 parts per million according to Codex). A study was done not too long ago that showed gluten free processed products such as cereals, breads, flours etc. can and some are in fact contaminated and have above the legal allowable amount of gluten in them. While most gluten free products are fine for most celiac patients and tolerated, highly sensitive patients fail to heal fully if relying on processed gluten free products. The trace gluten exposure adds up for someone eating a typical western diet of gluten free cereal for breakfast, gluten free sandwich for lunch, gluten free pasta or pizza for dinner for example day after day, week after week. This is why, at least in the beginning after diagnosis, the gluten free diet should be one of whole real food - food that does not require a label. Meats, oily fish, eggs, beans, natural gluten free complex carbohydrates and vegetables according to custom and taste. Limit fruit as fructose worsens leaky gut and has been hypothetically linked to increased OCD and ADHD - Professor Richard Johnson published study on this recently. “7. Is continuing to only eat my own food the better choice, or could I eventually go back to eating what my mom cooks if she’s careful?” NO and YES. 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White potatoes can be problematic for some, also. It can take six weeks of elimination to see improvements. Note, consult your physician regards insulin adjustment if you reduce carbohydrates in the diet. Dr Bernstein diabetes protocol has worked for thousands. Ketogenic and low carbohydrate diets for mental and neurological conditions have shown improvements. Limited studies have and are being conducted under metabolic psychology and nutritional psychology. In a good proportion of anxiety disorders, mental, and neurological conditions including dementias, the brain is lacking nutrition and usable energy, not a drug. Similar in many autoimmune conditions, including celiacs, the prevailing hypothesis is that gut inflammation and resultant permeability allowing exposure to antigens begets triggering the genetically susceptible immune system response. Modern lifestyle exposure, one of the biggest being the food we choose to eat plays a huge role. 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OCD brain is using gluten as the excuse here. I personally have the habit of using a cleansing wipe or dust cloth on my phone, nightly, that eases this sort of worry. For example a micro fibre dust cloth will do the trick, keep one on your nightstand? They are antibacterial as particles cling to the cloth. “10. Do i need to clean my phone or laptop if theyve been used by people who eat gluten? Even if no crumbs fall onto my keybaord, i mean because of invisible gluten on their fingers.”  NO. But again these OCD thoughts are hard to argue with. If in doubt, just a quick wipe with a cloth daily should suffice. Normal cleanliness practice. But if you don’t, or forget, don’t sweat the small stuff. “11. Does medication/supplements have to be strictly glutenfree? One company said they couldn‘t guarantee if their probiotics don’t contain traces of gluten.” Better if it is gluten free, yes. “12. I had bought supplements in the past, some of them say glutenfree and some of them dont(like the brand „NOW“ from iherb). I bought them and used them when i wasnt washing my hands so often, are they still safe? As I touched and opened them after touching door knobs, water taps etc. It was like a year ago when i bought those and even though i was eating gluten-free, I never worried about what i touch etc.” Still safe if do not explicitly contain gluten grains / derivatives AND if within the use by and use within dates. “I know this post is long. I’m just extremely overwhelmed. I’m trying to protect myself from long-term health damage, but the OCD is destroying my quality of life, and I honestly don’t know what’s a reasonable level of caution anymore.” Really hope these replies to your questions help. Just remember, in the midst of overwhelming thoughts and darkness under OCD clouded vision, the light and sunshine is always shining above. Take a moment or two when you are able in each day - even if it’s last thing at night - to meditate. Focus on something that you enjoy and appreciate. Or sit in a quiet space and try to relax and tune in to your higher self. Ask for guidance and soothing from your guardian angel. Over time it works but don’t worry if your brain is anxious. Eventually it will quieten down some. Try to focus on a real food, nutrient dense and naturally gluten free diet, this will help your anxiety and future health in the long run. Please eat real food - not cornflakes and sandwiches. Eat a steak, eggs or fish for example. Gluten exposures may happen, but don’t sweat it, dust yourself off so to speak, and carry on with a natural gluten free diet as best you can. Own your OCD don’t let it own you! Similarly, when it comes to a gluten free diet for celiac disease, own the process, don’t let it own you! You’re 18. That’s great. I’ve been managing OCD since childhood (in my 40s now. Many years of research, trial and error so to speak. Diet makes a difference. To quote Doc Brown to teenagers Marty and Jennifer, ‘ …your future hasn’t been written yet. No one’s has. It’s whatever you make it. So make it a good one.’
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      Gluten free thyroid medications

      By maryannlove · Posted

      Unfortunately not going to be able to let you know how Amneal is working because I still have almost 3 month supply of Mylan.  Had annual appointment with endocrinologist last week (though get scripts for blood work more often) and since was on my last refill, she sent new script to pharmacist.  Staying on my Mylan until it's gone.  (I tend to build up a supply because after trying a couple of endocrinologists for my Hashimotos, one finally got my thyroid regulated by my taking only six days a week instead of adjusting the strength which had me constantly up and down.  Will be forever grateful to her.  Apparently high percentage of folks with Celiac also have Hashimotos so all this relevant/helpful on Celiac.com.    
    • KimMS
      Gluten free thyroid medications

      By KimMS · Posted

      Thanks for sharing this! Have you started taking the Amneal? I'm curious how it's going for you. My pharmacy gave me the option of Accord, Macleod or Amneal. I didn't realize that Amneal was formerly Lannett, or I might have chosen that one. However, I did read some anecdotal reports that some people had side effects with Amneal, so I chose Accord. I have been taking it for 3-4 weeks and the past 10 days I have developed extreme fatigue/sluggishness, joint pain and some brain fog. I don't know if it is the new levo med, but nothing else has changed. Has anyone else taken Accord levo? Any issues? It seems to fall into the "no gluten ingredients, but we can't guarantee 100%, but it's likely safe category." I'm wondering if it is worth switching to Amneal or at least getting my thyroid levels checked. If the med is causing my symptoms, I'm guessing it's not because of gluten but maybe the potency is different from Mylan and I need different dosing. Accord was recalled for lower potency, but my pharmacist said the pills I have were not part of that lot.  
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