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Oh Canada!


theceliachusband

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Felidae Enthusiast
Another Canadian, from Vancouver. Nice to see there's a few of us here :)

I've been haunting the local Choices recently but found that Famous Foods on Kingsway has slightly better prices for most products plus they have a seriously WIDE range of flours!!!

I have positive dietary reaction but negative bloodwork, my GP wont go to a referral for the biopsy without the positive bloodwork :( problem is I had already reduced my gluten intake for about a week or so b4 the blood test (I told him, he said take it that day anyway) and had been relatively gluten lite, by accident really, for the past couple of years.

I'm going to go the Enterolab route at this point and then take the results to my GP to discuss...any other Canucks have a similar experience with their GP?

My blood work tested negative both times I was tested. So, I was not sent for an endo test. I was so fed up and very sick for such a long time, that going gluten-free was a last choice for me and I had no expectations since nothing else had worked. I had a positive dietary response within the first month of being gluten-free. I saw my GP at that point and she was so happy with the complete change in my health that she said to not eat gluten again. As far as she was concerned I had gluten-intolerance and possibly celiac disease but did not think it would be worth the health risks to eat gluten again just for the endo test.


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NorthernElf Enthusiast

Northern BC here (where it's a balmy -36C this am)...

I had a similar experience with my GP - I'm a pretty fit & otherwise healthy person & I think she just decided I couldn't have celiacs...but I call myself one. I had a negative blood test too, a negative H Pylori test and, while she did send me for a scope, she sent me for one to look at damage from reflux. I was very upset when I asked the guy who did the scope if there was gluten damage and he said he hadn't been looking for any, only reflux damage. :angry: And, as is common, I was limiting my gluten when I had the blood test and had to wait several months for the scope, during which I eliminated it altogether since I didn't know any better.

I fit the profile though - I have had "IBS" most of my life and some joint pain issues with no cause. I had a wicked virus that left me unable to eat for over a week and took me a year to totally recover from. It was during this year that I started eliminating gluten - due to headaches, stomaches, joint pain, fatigue, reflux, etc. It all fits the celiac diagnosis route - a big stress and the body's inability to cope with gluten. Now that I am gluten-free I feel much better, less pain, less stomach issues and little reflux (though I take Zantac). Unfortunately, I am also way more sensitive to gluten.

maile Newbie

Thank you both for the feed back! I'm finding this can be a very confusing condition so it's nice to hear from others :)

  • 2 months later...
Mrs-Mama Newbie

Another Canadian here...it's actually my hubby that's been diagnosed with Celiac but I'm the shopper and cook, so he gets me to do all the research and then report back to him.

I'm very happy to have found this forum. It's been a great help to us.

Mrs_Mama

  • 4 weeks later...
Nadia2009 Enthusiast

I am from Toronto :)

If there are others from here, would like to know where are the places to shop for gluten free foods.

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    • trents
      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
    • kpf
      Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease:  fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches neutropenia I never dreamed in a million years she would consider celiac disease. It was a shock to me. It’s definitely not what I went to her for. 
    • knitty kitty
      @Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency.  Your symptoms seem really familiar.  Malabsorption is a real thing that happens with Celiac.  A multivitamin is not going to prevent nor correct nutritional deficiencies.    Doctors do not recognize nutritional deficiency symptoms.  Gastrointestinal Beriberi is not recognized often.  Caused by thiamine deficiency, high dose thiamine supplements or IV administration with other vitamins, minerals and glucose under doctor's care is needed.   Thiamine deficiency is found in anemia.  Thiamine deficiency in the kidneys can result in electrolyte imbalances and cloudy urine.  Thiamine deficiency can cause high blood sugar which can cause cloudy urine.  Dehydration can cause cloudy urine.   I'm linking some PubMed articles.  You see if your symptoms match.  Discuss the possibility of Gastrointestinal Beriberi with one of your specialists soon!  Just to rule it out.  I'm very concerned.   I'm linking some PubMed articles.  You see if your symptoms match.   Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 From Section 3: "In conclusion, TD limited to the gastrointestinal system may be an overlooked and underdiagnosed cause of the increasingly common gastrointestinal disorders encountered in modern medical settings. Left unattended, it may progress to wet or dry beriberi, most often observed as Wernicke encephalopathy.". . And... Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/
    • trents
      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
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