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Oh Canada!


theceliachusband

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Felidae Enthusiast
Another Canadian, from Vancouver. Nice to see there's a few of us here :)

I've been haunting the local Choices recently but found that Famous Foods on Kingsway has slightly better prices for most products plus they have a seriously WIDE range of flours!!!

I have positive dietary reaction but negative bloodwork, my GP wont go to a referral for the biopsy without the positive bloodwork :( problem is I had already reduced my gluten intake for about a week or so b4 the blood test (I told him, he said take it that day anyway) and had been relatively gluten lite, by accident really, for the past couple of years.

I'm going to go the Enterolab route at this point and then take the results to my GP to discuss...any other Canucks have a similar experience with their GP?

My blood work tested negative both times I was tested. So, I was not sent for an endo test. I was so fed up and very sick for such a long time, that going gluten-free was a last choice for me and I had no expectations since nothing else had worked. I had a positive dietary response within the first month of being gluten-free. I saw my GP at that point and she was so happy with the complete change in my health that she said to not eat gluten again. As far as she was concerned I had gluten-intolerance and possibly celiac disease but did not think it would be worth the health risks to eat gluten again just for the endo test.


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NorthernElf Enthusiast

Northern BC here (where it's a balmy -36C this am)...

I had a similar experience with my GP - I'm a pretty fit & otherwise healthy person & I think she just decided I couldn't have celiacs...but I call myself one. I had a negative blood test too, a negative H Pylori test and, while she did send me for a scope, she sent me for one to look at damage from reflux. I was very upset when I asked the guy who did the scope if there was gluten damage and he said he hadn't been looking for any, only reflux damage. :angry: And, as is common, I was limiting my gluten when I had the blood test and had to wait several months for the scope, during which I eliminated it altogether since I didn't know any better.

I fit the profile though - I have had "IBS" most of my life and some joint pain issues with no cause. I had a wicked virus that left me unable to eat for over a week and took me a year to totally recover from. It was during this year that I started eliminating gluten - due to headaches, stomaches, joint pain, fatigue, reflux, etc. It all fits the celiac diagnosis route - a big stress and the body's inability to cope with gluten. Now that I am gluten-free I feel much better, less pain, less stomach issues and little reflux (though I take Zantac). Unfortunately, I am also way more sensitive to gluten.

maile Newbie

Thank you both for the feed back! I'm finding this can be a very confusing condition so it's nice to hear from others :)

  • 2 months later...
Mrs-Mama Newbie

Another Canadian here...it's actually my hubby that's been diagnosed with Celiac but I'm the shopper and cook, so he gets me to do all the research and then report back to him.

I'm very happy to have found this forum. It's been a great help to us.

Mrs_Mama

  • 4 weeks later...
Nadia2009 Enthusiast

I am from Toronto :)

If there are others from here, would like to know where are the places to shop for gluten free foods.

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      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
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      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
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