Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Washington State?

hacilar666

Recommended Posts

hacilar666 Newbie
hacilar666
Posted

Hello, I'm in Bellevue, WA anyone from the area?

  • 3 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


PaulaJ Newbie
PaulaJ
Posted

Hi Hacilar - I am from Seattle, WA. Good to know that there are at least two of us in WA that have this problem ;) How long have you been at this and how are you getting along? I've only been "confirmed" since June of this year, so I have some mental adjusting to this to do yet.

cruelshoes Enthusiast
cruelshoes
Posted

We are in South King County just north of Tacoma. There are several from the Evergreen State here. :)

Jestgar Rising Star
Jestgar
Posted

Bainbridge island, but I work in Seattle

tarnalberry Community Regular
tarnalberry
Posted

I'm in Newcastle, just south of Bellevue. :)

Juliebove Rising Star
Juliebove
Posted

Bothell here.

Generic Apprentice
Generic
Posted

I'm in the Puget Sound area but prefer not to give an exact location.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted
I'm in the Puget Sound area but prefer not to give an exact location.

:lol: :lol: :lol: this response totally suits your name!

rick-spiff Rookie
rick-spiff
Posted

:( Nobody by us.

Good 'ol Tri-Cities.

Not much celiac action on this side of the mountain.

sickchick Community Regular
sickchick
Posted

Born & Raised

BallardWA Rookie
BallardWA
Posted

As my tag implies, I am indeed a Seattelite in Ballard, WA. Please, please, please contact me with any and all news re: gluten free in this town. The Flying Apron is an abomination in my opinion. Impromptu is wonderful but pricey. PF Changs - good but not for more than once a month. I recently was in Portland and was amazed at the choices available. It's not that I eat out every night, but when we do go out, I want to eat. You had to see the gluten-free menu Red Robin presented to me yesterday. The entire front page was a disclaimer. I left, telling the befuddled waiter that I was going to get sick if I ate in his restaurant. I'd really love to have someone locally who can help me navigate these waters, so message me! I was finally diagnosed in March via a genetic test. I had been sick since childhood, but no-one had ever put all of the pieces together. Hope to hear from you.

Karen, in Lovely Ballard

lonewolf Collaborator
lonewolf
Posted

I'm from South King County.

Karen - sorry I can't help with the restaurant question. I only eat out at the local health food store deli and Outback (very occasionally). You might want to take a trip to Kent to try out Haley's Corner bakery. I think their stuff is way better than the Flying Apron.

tarnalberry Community Regular
tarnalberry
Posted

I like the stuff at Flying Apron in Fremont. (The packaged stuff in the store isn't as good, imho. But the fresh stuff, including just going their for lunch, is good.)

There's Open Original Shared Link in the u-district (the soy cheese isn't very good, but the rest of it's fine ;) ).

There's Open Original Shared Link between Fremont and the U-District.

There's DaVinci's bakery (I don't know the neighborhood), which I don't like as much as Flying Apron myself, which mostly demonstrates that you just have to figure out what *you* like, since gluten-free foods can be so different.

There's Sunlight Cafe just west of Ravenna that has a number of options.

I like the sushi options at Rolls & Rolls Sushi Plus in Bellevue.

I haven't been to Cafe Flora, but I hear it's good, if expensive.

There's regularly a few things I get at Thai Ginger, one in Bellevue, Redmond, or Seattle.

There's a Pizza Works in Bothell.

I hear Portage Bay Cafe has gluten-free options as well.

And there's Sunny Valley Wheat Free in Maple Valley, which I haven't been to yet.

Of course, there's often a number of gluten-free options at the Whole Foods hot bar too. ;) (The one in Ravenna is my favorite, the one near REI is good too.)

The stuff at Haley's Corner in Kent is good too.

Z'Tejas has a gluten free menu as well, and I've enjoyed a couple of meals there.

Remember that a lot of places don't necessarily have "gluten free menus" but may still know about gluten and can help you - at least, this can be the case in small places that are picky about their ingredients.

  • 4 weeks later...
gfseattle Newbie
gfseattle
Posted

I am newly diagnosed and new to the board of course, :D I live in Mill Creek.

I am only into week three of figuring this all out so any help would be greatly appreciated!

Generic Apprentice
Generic
Posted

Madame K's in Ballard offers a gluten-free rice tortillia crust pizza and some gluten free pasta. (I haven't been in a long time so you may want to call and confirm they still have it). Garlic Jim's in Mukilteo on Mukilteo Speedway has a gluten free pizza crust. Manna Mills health food store in Montlake Terrace has a huge selection of gluten-free stuff, including rolls, doughnuts, pastas, crackers, cookies, etc.

Generic Apprentice
Generic
Posted
:lol: :lol: :lol: this response totally suits your name!

<_< I've have an e-stalker issue and try to remain annonymous. It sucks

Juliebove Rising Star
Juliebove
Posted
I am newly diagnosed and new to the board of course, :D I live in Mill Creek.

I am only into week three of figuring this all out so any help would be greatly appreciated!

Hi neighbor! Central Market has a lot of gluten-free stuff. Also Tru Health in Bothell. The owner has celiac. They are very good to special order things if they don't have them in stock.

Juliebove Rising Star
Juliebove
Posted
I like the stuff at Flying Apron in Fremont. (The packaged stuff in the store isn't as good, imho. But the fresh stuff, including just going their for lunch, is good.)

There's <a href="Open Original Shared Link Advertisement/biz/pizza-pi-vegan-pizzeria-seattle" target="external ugc nofollow">Pizza Pi</a> in the u-district (the soy cheese isn't very good, but the rest of it's fine ;) ).

There's Open Original Shared Link between Fremont and the U-District.

There's DaVinci's bakery (I don't know the neighborhood), which I don't like as much as Flying Apron myself, which mostly demonstrates that you just have to figure out what *you* like, since gluten-free foods can be so different.

There's Sunlight Cafe just west of Ravenna that has a number of options.

I like the sushi options at Rolls & Rolls Sushi Plus in Bellevue.

I haven't been to Cafe Flora, but I hear it's good, if expensive.

There's regularly a few things I get at Thai Ginger, one in Bellevue, Redmond, or Seattle.

There's a Pizza Works in Bothell.

I hear Portage Bay Cafe has gluten-free options as well.

And there's Sunny Valley Wheat Free in Maple Valley, which I haven't been to yet.

Of course, there's often a number of gluten-free options at the Whole Foods hot bar too. ;) (The one in Ravenna is my favorite, the one near REI is good too.)

The stuff at Haley's Corner in Kent is good too.

Z'Tejas has a gluten free menu as well, and I've enjoyed a couple of meals there.

Remember that a lot of places don't necessarily have "gluten free menus" but may still know about gluten and can help you - at least, this can be the case in small places that are picky about their ingredients.

I like some of the stuff from Flying Apron. And shame on Central Market for no longer carrying their stuff! Daughter liked the triangular scones and the round berry pastries. Also the cupcakes. More recently we went to PCC in Edmonds. I got her some kind of apricot pastry and she liked it all but the apricots on the top. Got 3 other things that were different than what they used to sell at Central Market, but no report back on those yet.

We have ordered birthday cakes from there several times. They are crumbly, but... We do have additional food allergies and they are the only thing that fit our diet. I couldn't make any better myself. I don't normally like or eat cake, but I do like those. We have only ever gotten the chocolate. Once with mint frosting. I think that was a mistake! But it was good.

I have not actually been to the bakery, but my parents have and they brought us back some stuff. A couple of pizzas. I loved them. Daughter hated. Some sort of thing that I thought would be a cookie, but it was thick and hard. Not so good. And a loaf of bread that was like a brick. They have bought the cinnamon rolls and said they were good but very crumbly.

gfseattle Newbie
gfseattle
Posted

Thank you all so much! This really helps, I am a bit lost.

Jestgar Rising Star
Jestgar
Posted
Thank you all so much! This really helps, I am a bit lost.

So were we all once too. It does get easier.

gfseattle Newbie
gfseattle
Posted
Hi neighbor! Central Market has a lot of gluten-free stuff. Also Tru Health in Bothell. The owner has celiac. They are very good to special order things if they don't have them in stock.

That is awesome to know thanks so much!

  • 5 weeks later...
G-man Newbie
G-man
Posted

Hello All,

I live on the Kipsap Peninsula, and have not yet been diagnosed. My mom has had some tests come back positive, and since doing all my follow up work, I am amazed with all the things that could be explained that I have experienced. My local doctors blow! I have had to re-schedule an appt. twice due to thier neglegence. Could anyone recommend a good doctor that I could visit and skip all the back-country practitioners out here in no-man's land? I am sooooo frustrated right now. I have been seen by incompetent doctors starting in 1990! when I was in the Navy. I managed to escape from the Navy with the loss of only one organ! (Appendectomy) Any and all help would be greatly appreciated. My mom did give me the info on the tests I need......... I will rant more if someone out there is interested! no need to bore most of you with the details, just be assured I have been miserable just like many of you.

Thanks in advance

Jestgar Rising Star
Jestgar
Posted

Are you willing to haul your tushy to Seattle? You have the most options in the big city.

G-man Newbie
G-man
Posted

I would, especially if it means cutting to the chase! I feel like I am wasting alot of my time with the care availible out here. :lol:

Jestgar Rising Star
Jestgar
Posted

Open Original Shared Link

This guy runs the gluten intolerance group in Seattle (on Capitol Hill).

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Celiac.com Sponsored Post
      0

      Recently launched Daura Non-Alcoholic Named One of the Best in the World by Forbes

    2. Iam
      - Iam replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Yes. I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy. Numerous dental visits and several professionally made bite plates did very little to help with symptoms
    3. trents
      - trents replied to Scatterbrain's topic in Sports and Fitness
      6

      Feel like I’m starting over

      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    4. Scott Adams
      0

      New Research Reveals Why the Gut May Stay Sensitive Even After a Gluten-Free Diet

    5. bobadigilatis
      - bobadigilatis replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm. Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,307
    • Most Online (within 30 mins)
      7,748
    Hcon74
    Newest Member
    Hcon74
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Iam
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Iam · Posted

      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
    • trents
      Feel like I’m starting over

      By trents · Posted

      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    • bobadigilatis
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By bobadigilatis · Posted

      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm.  Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate. Oats, wheat, barley, soy, lentils, peas, chickpeas, rice, and buckwheat, almonds, apples, cherries, apricots, grapes, avocados, spinach, and pistachios.   
    • cristiana
      Feel like I’m starting over

      By cristiana · Posted

      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.