Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Start gluten-free


Gutbomb

Recommended Posts

Gutbomb Rookie

You just stop eating gluten right...I know. But then you have your cross contamination, people talking about make up and shampoo. It is so daunting. How did you start?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Katsby Apprentice

I replaced my toothbrush and made sure my toothpaste was safe, checked my lotions, etc. I made sure I had at least 1 saucepan and 1 skillet to start with that were purely for gluten free. I have my own plastic spoons and my own bread/baking pans and cutting board. I never owned a toaster so I didn't have to replace that, but you may have to. Just don't let it overwhelm you.

Gutbomb Rookie

WHy do make up and lotions matterif you don't digest them?

Lisa Mentor

Keep everything simple. Meat, seafood, potatoes, rice, fresh veggies and fruit. Stay away from processed food for a while and limit your seasonings to salt and pepper. Later, you will be able to add addition things when you learn more about what to look for in ingredients.

Scratched pots and pans should be replaced and a shared toaster won't work (gluten crumbs and such). The reason behind this is that gluten can hide everywhere and it would not be wise to risk cross contamination with your cookware. Other cookware can be cleaned well. New wooded spoons and cutting board would be a wise choice.

Some shampoos, lipsticks and lotions can contain gluten. Gluten needs to be ingested to cause a reaction, but so can lotions on your hands or face and lipstick. Some people with DH can react to topical gluten.

There is a lot to learn, but it does get easier.

purple Community Regular

Don't eat out until you learn all the safe places and items you can eat, pack food/snacks, make a trip to the dollar store, wash your hands before eating every time, study...study...study, make notes, take notes to the store, look for labeled gluten-free items until you learn what the labels actually say, when in doubt-don't eat it, look at the foods you can eat rather than the foods you can't eat, freeze mini meals and entrees for emergencies, don't go for junk food b/c there is no nutrition, think of it has a healthy way to eat b/c before, you were getting sick and who knows where that road was taking your body???

Gutbomb Rookie

How soon before I know that it is working? How soon before anxiety lessens or is gone?

Beth in NC Contributor

Amanda, I'm not quite two weeks into my new diet and I can already tell a difference in how I feel. I will say that the first few days after diagnosis I was a panic attack waiting to happen! My anxiety level was sky high and it wasn't because my meds weren't working. I was grieving the loss of how I loved to eat, of the easy lifestyle that was soon to get much more difficult. If you are diligent, you may see results pretty quickly. I could feel my energy level rising after only a few days, my chronic constipation no longer required massive amounts of supplements to "get going" and my pain lessened. It didn't go away, but it lessened. Some things I wasn't even aware had improved until I got glutened a week later. Areas were hurting that I didn't realize had stopped!

It's all worth it. Really, it is.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gutbomb Rookie

So I think I am totally gluten free today. I am sure I am not but hey. Almost had a freak out on the coffee stand girl when she used a spatula to scoop the splenda foam off my Kona. Thought I couldn't go wrong with a cup of kona with 4 splenda.

Anyhoo...LOL

Beth in NC Contributor

I can't remember if this was suggested or not, but keep a food diary, right down to the brand name. I'm also keeping a journal that briefly states my symptoms, or lack of them, each day as well. It will help you pinpoint problem areas.

Gutbomb Rookie
I can't remember if this was suggested or not, but keep a food diary, right down to the brand name. I'm also keeping a journal that briefly states my symptoms, or lack of them, each day as well. It will help you pinpoint problem areas.

I keep track of everything on a diet website called sparkpeople.com. It is meant to keep track of calories, fat and carbs but it works for this as well. They also have a few gluten free groups there to talk with. I can also print out my journals if I need to take them with me anywhere.

Called my doctor and I won't have the test results for like a week so I probably won't know until Monday or so. I don't know why the tech told me the next day.

frec Contributor

I noticed you are from Oregon? You probably have access to Whole Foods, New Seasons, or Trader Joe's. Trader Joe's has my favorite rice bread, especially good for toast. If you are also off dairy they have the best non-dairy prices and lots of choices. They have gluten free frozen waffles and pancakes too. Whole Foods and New Seasons are wonderful but pricier.

If you are in the Portland area, Corbett's Fish House is gluten free.

Definitely carry snacks with you. I think the hardest part of being gluten free is getting hungry away from home. Finding a quick something can be difficult and fast food is pretty much impossible.

Once things settle down as far as shopping and digestion, consider taking some sort of calcium/magnesium supplement, preferably with vitamin D3. Celiacs are at high risk for osteoporosis.

I was really surprised how many things improved when I went on this diet. Some of them were problems I had no idea had been caused by gluten.

Gutbomb Rookie

I already take a buttload of vitamins. Luckily they are all gluten free. I take a good multi, vitamin d with calcium, and omega 3.

I am in Southern Oregon and have no whole foods or trader joes. We have a local place called Food 4 less and they have a huge health foods section. We also have a Fred Myers, Safeway, Albertson, Super Walmart and Winco.

Nothing new today. I am still really tired. Doctor refilled my hycosamine so I have that for emergencies. I hate taking it because it really dries me out, literally.

gfpaperdoll Rookie

unless you have diabetes - I would ditch the splenda & use honey instead.

spenda is totally not good for anyone. When you get your diet adjusted & do not eat the things that you are intolerant to - you will lose weight. Please do not be using the artificial sweetners - I do not care what any company says etc. so, if someone wants to say that it is proven safe, go ahead. it is MY opnion that it is not.

lindajeaninsc Newbie

Nothing new today. I am still really tired. Doctor refilled my hycosamine so I have that for emergencies. I hate taking it because it really dries me out, literally.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,018
    • Most Online (within 30 mins)
      7,748

    Laney71
    Newest Member
    Laney71
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.