Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Couple Questions...


pewpewlasers

Recommended Posts

pewpewlasers Rookie

Hey everyone! I have been on a gluten and wheat free diet for about two weeks now and started feeling better after years and years of having serious stomach issues, headaches, and fatigue. My husband has been doing a great job keeping me on track and trying to stay away from gluten and wheat himself. We have been having a difficult time trying to find foods that I can eat and we double check the labels on everything. Lately I have started feeling sick to my stomach again and have been getting horrible headaches, and most embarrassing...running to the bathroom after some meals. Is there something I'm missing? I couldn't understand why after last nights meal of two small pieces of BBQ chicken and an ear of corn would send me running to the bathroom right after finishing my last bite and then feeling sick to my stomach and getting a horrible headache.

I looked up on a gluten free medication website and did not find my birth control listed on there. Maybe that is problem? Also, can deodorants have gluten in them that can irritate the skin?

Are there certain hidden ingrediants that I should be looking for other than the bold text that says contains: wheat and gluten label? Or could this be something different entirely?

I haven't stopped consuming dairy, but now I am considering. I used to be lactose intolerance as a child and have a suspicion that I could be having problems again. I have heard that sometimes celiac and lactose intolerance goes hand in hand.

If you have any information or can point me in a direction where I can find some, I would gladly appreciate it.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
Hey everyone! I have been on a gluten and wheat free diet for about two weeks now and started feeling better after years and years of having serious stomach issues, headaches, and fatigue. My husband has been doing a great job keeping me on track and trying to stay away from gluten and wheat himself. We have been having a difficult time trying to find foods that I can eat and we double check the labels on everything. Lately I have started feeling sick to my stomach again and have been getting horrible headaches, and most embarrassing...running to the bathroom after some meals. Is there something I'm missing? I couldn't understand why after last nights meal of two small pieces of BBQ chicken and an ear of corn would send me running to the bathroom right after finishing my last bite and then feeling sick to my stomach and getting a horrible headache.

I looked up on a gluten free medication website and did not find my birth control listed on there. Maybe that is problem? Also, can deodorants have gluten in them that can irritate the skin?

Are there certain hidden ingrediants that I should be looking for other than the bold text that says contains: wheat and gluten label? Or could this be something different entirely?

I haven't stopped consuming dairy, but now I am considering. I used to be lactose intolerance as a child and have a suspicion that I could be having problems again. I have heard that sometimes celiac and lactose intolerance goes hand in hand.

If you have any information or can point me in a direction where I can find some, I would gladly appreciate it.

Thanks!

Welcome!

Gluten can be very tricky and it hides well. "Natural Flavors" is one of those hiding places. By law, wheat needs to be listed in the ingredients or in the allergin information. Barley, malt and rye do not need to be listed.

Until your insides heal, you may be symptomatic to all foods.

Here is a listing of companies who will clearly list all forms of gluten, and not hide them in "natural ingredients":

Open Original Shared Link

Yes, easing up on the dairy it would be wise. And, calling you manufacturer of your BC pills to check on its gluten free status would eliminate that issue.

Here is another link:

https://www.celiac.com/categories/Safe--Gluten-Free--Food--List--_____--Unsafe--Foods--____--Ingredients-c-3383

Lisa Mentor

Welcome!

Gluten can be very tricky and it hides well. "Natural Flavors" is one of those hiding places. By law, wheat needs to be listed in the ingredients or in the allergin information. Barley, malt and rye do not need to be listed.

Until your insides heal, you may be symptomatic to all foods.

Here is a listing of companies who will clearly list all forms of gluten, and not hide them in "natural ingredients":
Open Original Shared Link

Yes, easing up on the dairy it would be wise. And, calling you manufacturer of your BC pills to check on its gluten free status would eliminate that issue.

Here is another link:
https://www.celiac.com/categories/Safe--Gluten-Free--Food--List--_____--Unsafe--Foods--____--Ingredients-c-3383

larry mac Enthusiast

Did you make the BBQ chicken yourself or buy it? Sometimes those rotisserie chickens give me problems even though they don't have gluten listed in the ingredients. They tend to be pretty greasy for one thing. Plus, they are injected with various chemicals ala marinades.

I'm curious as to your user name. It's quite unusual. Care to enlighten us?

best regards, lm

GlutenGalAZ Enthusiast

I couldn't understand why after last nights meal of two small pieces of BBQ chicken and an ear of corn:

**Have you ever had a problem with corn before? I sometimes have a problem with corn but not corn tortillas. Also the BBQ sauce you used was it gluten free? Did you make the chicken you had or buy it somewhere. Chicken and meats that have added seasonings you need to be careful that gluten ingredients were not added

I looked up on a gluten free medication website and did not find my birth control listed on there. Maybe that is problem?

**I would call the company that makes the brand you use to double check. You can also do a search for it on here, some people have done posts the last couple of months on the brand they use.

Also, can deodorants have gluten in them that can irritate the skin?

**Some people react to some of the ingredients. I use Thai Crystal Deodorant (doesn't have aluminum in it like most deoderants). I don't know if there are any deodorants with wheat/gluten ingredients though.

Are there certain hidden ingrediants that I should be looking for other than the bold text that says contains: wheat and gluten label? Or could this be something different entirely?

** Wheat, Rye, Oats, Barley. Some people have problems with MSG (monosodium glutamate -- not gluten related) this can also be in some BBQ sauces.

Open Original Shared Link

In regards to dairy. If you had problems in the past I would stop eating/drinking dairy products for a while and see if you can tell a difference (some people remove soy as well). You can always re-introduce it slowly later on.

Good Luck

Gerri Explorer

Hi and welcome

What popped out at me when I read your message, and you being gluten free, that that you may have an allergy to corn. Corn will do the same thing to your duodenem (sp) as gluten does.

Many with celiac, will have problems with gluten, corn, soy, and milk.

Hugs

Gerri

home-based-mom Contributor
Are there certain hidden ingrediants that I should be looking for other than the bold text that says contains: wheat and gluten label? Or could this be something different entirely?

Thanks!

Don't just look for the bold text that lists the allergens. The required allergens have to be listed, but if they are part of the ingredient list they don't have to be re-listed in bold. Read the entire ingredient list looking for "the usual suspects." If you are just looking for bold text saying "contains whatever" then you could and probably are missing something.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

This page has some lists of things to avoid that might help, pretty far down the page.

Natural flavorings, modified food starch, spices, HVP, malt, are often listed on ingredients. They can contain gluten from rye, or barley and it wouldn't need to be listed on the allergy contains statement.

Open Original Shared Link

missy'smom Collaborator

I recently found a BBQ sauce that seemed gluten-free, EXCEPT for the worchestershire sauce that was listed in the ingedients, of course WS isn't a single ingredient but made of several ingedients and they were not individually listed. When I contacted the company they verified that it was NOT gluten-free.

pewpewlasers Rookie
Did you make the BBQ chicken yourself or buy it? Sometimes those rotisserie chickens give me problems even though they don't have gluten listed in the ingredients. They tend to be pretty greasy for one thing. Plus, they are injected with various chemicals ala marinades.

I'm curious as to your user name. It's quite unusual. Care to enlighten us?

best regards, lm

I made it myself and used KC Masterpiece BBQ Sauce.

In regards to my name...Lasers go pew pew :P I guess its a nerd thing.

pewpewlasers Rookie
Hi and welcome

What popped out at me when I read your message, and you being gluten free, that that you may have an allergy to corn. Corn will do the same thing to your duodenem (sp) as gluten does.

Many with celiac, will have problems with gluten, corn, soy, and milk.

Hugs

Gerri

I'm starting to think that I may have multiple problems with food. It's really hard for me because doctors seem to look past what might really be happening. My mother's side of the family has a HUGE list of stomach problems that have afftected everyone on that side of the family. Such as Celiac Disease, Crohn's Disease, Gerd, Lactose Intolerance...that's all I can think of. For some reason I have never found a doctor that actually put my symptoms together to look at the big picture. I'm trying to find a doctor that will actually go through my history and actually figure out what's wrong.

So.......right now I'm trying to eliminate suspect foods.

You know...thinking of it now I had a really bad reaction to Puffins Peanut Butter cereal this morning. I had a horrible migrane, nausea, and nearly passed out while shopping. I made a post asking if it was gluten free or not because I felt so horrible after eating it. It's made with corn meal, so it could be that. But I grabbed a tostada from Taco Bell and felt fine after that.

I don't know. I am so confused!

I thought taking gluten out of my diet would somehow be some miracle cure to all my problems, but now I am just confused, hungry, suspicious of every twinge in my gut, REALLY hungry, less fatigued (which really is a miracle), but still not 100%. Of course it's only been a couple weeks now, but I'm impatient!

GlutenGalAZ Enthusiast
I made it myself and used KC Masterpiece BBQ Sauce.

I would call and check on the KC Masterpiece BBQ Sauce that you are using.

Last year when I first went gluten free my husband and I bought a couple BBQ Sauces that looked safe and then I called them and was told that Jack Daniels was not safe and that KC Materpiece (we had the original if I am remembering right) were not gluten free. Maybe things changed but I would check into the one you are using.

We use Sweet Baby Rays. You will see some posts on here about this BBQ Sauce, some people love it and some people react to something in it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,022
    • Most Online (within 30 mins)
      7,748

    Pesto
    Newest Member
    Pesto
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.