Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Couple Questions...


pewpewlasers

Recommended Posts

pewpewlasers Rookie

Hey everyone! I have been on a gluten and wheat free diet for about two weeks now and started feeling better after years and years of having serious stomach issues, headaches, and fatigue. My husband has been doing a great job keeping me on track and trying to stay away from gluten and wheat himself. We have been having a difficult time trying to find foods that I can eat and we double check the labels on everything. Lately I have started feeling sick to my stomach again and have been getting horrible headaches, and most embarrassing...running to the bathroom after some meals. Is there something I'm missing? I couldn't understand why after last nights meal of two small pieces of BBQ chicken and an ear of corn would send me running to the bathroom right after finishing my last bite and then feeling sick to my stomach and getting a horrible headache.

I looked up on a gluten free medication website and did not find my birth control listed on there. Maybe that is problem? Also, can deodorants have gluten in them that can irritate the skin?

Are there certain hidden ingrediants that I should be looking for other than the bold text that says contains: wheat and gluten label? Or could this be something different entirely?

I haven't stopped consuming dairy, but now I am considering. I used to be lactose intolerance as a child and have a suspicion that I could be having problems again. I have heard that sometimes celiac and lactose intolerance goes hand in hand.

If you have any information or can point me in a direction where I can find some, I would gladly appreciate it.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
Hey everyone! I have been on a gluten and wheat free diet for about two weeks now and started feeling better after years and years of having serious stomach issues, headaches, and fatigue. My husband has been doing a great job keeping me on track and trying to stay away from gluten and wheat himself. We have been having a difficult time trying to find foods that I can eat and we double check the labels on everything. Lately I have started feeling sick to my stomach again and have been getting horrible headaches, and most embarrassing...running to the bathroom after some meals. Is there something I'm missing? I couldn't understand why after last nights meal of two small pieces of BBQ chicken and an ear of corn would send me running to the bathroom right after finishing my last bite and then feeling sick to my stomach and getting a horrible headache.

I looked up on a gluten free medication website and did not find my birth control listed on there. Maybe that is problem? Also, can deodorants have gluten in them that can irritate the skin?

Are there certain hidden ingrediants that I should be looking for other than the bold text that says contains: wheat and gluten label? Or could this be something different entirely?

I haven't stopped consuming dairy, but now I am considering. I used to be lactose intolerance as a child and have a suspicion that I could be having problems again. I have heard that sometimes celiac and lactose intolerance goes hand in hand.

If you have any information or can point me in a direction where I can find some, I would gladly appreciate it.

Thanks!

Welcome!

Gluten can be very tricky and it hides well. "Natural Flavors" is one of those hiding places. By law, wheat needs to be listed in the ingredients or in the allergin information. Barley, malt and rye do not need to be listed.

Until your insides heal, you may be symptomatic to all foods.

Here is a listing of companies who will clearly list all forms of gluten, and not hide them in "natural ingredients":

Open Original Shared Link

Yes, easing up on the dairy it would be wise. And, calling you manufacturer of your BC pills to check on its gluten free status would eliminate that issue.

Here is another link:

https://www.celiac.com/categories/Safe--Gluten-Free--Food--List--_____--Unsafe--Foods--____--Ingredients-c-3383

Lisa Mentor

Welcome!

Gluten can be very tricky and it hides well. "Natural Flavors" is one of those hiding places. By law, wheat needs to be listed in the ingredients or in the allergin information. Barley, malt and rye do not need to be listed.

Until your insides heal, you may be symptomatic to all foods.

Here is a listing of companies who will clearly list all forms of gluten, and not hide them in "natural ingredients":
Open Original Shared Link

Yes, easing up on the dairy it would be wise. And, calling you manufacturer of your BC pills to check on its gluten free status would eliminate that issue.

Here is another link:
https://www.celiac.com/categories/Safe--Gluten-Free--Food--List--_____--Unsafe--Foods--____--Ingredients-c-3383

larry mac Enthusiast

Did you make the BBQ chicken yourself or buy it? Sometimes those rotisserie chickens give me problems even though they don't have gluten listed in the ingredients. They tend to be pretty greasy for one thing. Plus, they are injected with various chemicals ala marinades.

I'm curious as to your user name. It's quite unusual. Care to enlighten us?

best regards, lm

GlutenGalAZ Enthusiast

I couldn't understand why after last nights meal of two small pieces of BBQ chicken and an ear of corn:

**Have you ever had a problem with corn before? I sometimes have a problem with corn but not corn tortillas. Also the BBQ sauce you used was it gluten free? Did you make the chicken you had or buy it somewhere. Chicken and meats that have added seasonings you need to be careful that gluten ingredients were not added

I looked up on a gluten free medication website and did not find my birth control listed on there. Maybe that is problem?

**I would call the company that makes the brand you use to double check. You can also do a search for it on here, some people have done posts the last couple of months on the brand they use.

Also, can deodorants have gluten in them that can irritate the skin?

**Some people react to some of the ingredients. I use Thai Crystal Deodorant (doesn't have aluminum in it like most deoderants). I don't know if there are any deodorants with wheat/gluten ingredients though.

Are there certain hidden ingrediants that I should be looking for other than the bold text that says contains: wheat and gluten label? Or could this be something different entirely?

** Wheat, Rye, Oats, Barley. Some people have problems with MSG (monosodium glutamate -- not gluten related) this can also be in some BBQ sauces.

Open Original Shared Link

In regards to dairy. If you had problems in the past I would stop eating/drinking dairy products for a while and see if you can tell a difference (some people remove soy as well). You can always re-introduce it slowly later on.

Good Luck

Gerri Explorer

Hi and welcome

What popped out at me when I read your message, and you being gluten free, that that you may have an allergy to corn. Corn will do the same thing to your duodenem (sp) as gluten does.

Many with celiac, will have problems with gluten, corn, soy, and milk.

Hugs

Gerri

home-based-mom Contributor
Are there certain hidden ingrediants that I should be looking for other than the bold text that says contains: wheat and gluten label? Or could this be something different entirely?

Thanks!

Don't just look for the bold text that lists the allergens. The required allergens have to be listed, but if they are part of the ingredient list they don't have to be re-listed in bold. Read the entire ingredient list looking for "the usual suspects." If you are just looking for bold text saying "contains whatever" then you could and probably are missing something.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

This page has some lists of things to avoid that might help, pretty far down the page.

Natural flavorings, modified food starch, spices, HVP, malt, are often listed on ingredients. They can contain gluten from rye, or barley and it wouldn't need to be listed on the allergy contains statement.

Open Original Shared Link

missy'smom Collaborator

I recently found a BBQ sauce that seemed gluten-free, EXCEPT for the worchestershire sauce that was listed in the ingedients, of course WS isn't a single ingredient but made of several ingedients and they were not individually listed. When I contacted the company they verified that it was NOT gluten-free.

pewpewlasers Rookie
Did you make the BBQ chicken yourself or buy it? Sometimes those rotisserie chickens give me problems even though they don't have gluten listed in the ingredients. They tend to be pretty greasy for one thing. Plus, they are injected with various chemicals ala marinades.

I'm curious as to your user name. It's quite unusual. Care to enlighten us?

best regards, lm

I made it myself and used KC Masterpiece BBQ Sauce.

In regards to my name...Lasers go pew pew :P I guess its a nerd thing.

pewpewlasers Rookie
Hi and welcome

What popped out at me when I read your message, and you being gluten free, that that you may have an allergy to corn. Corn will do the same thing to your duodenem (sp) as gluten does.

Many with celiac, will have problems with gluten, corn, soy, and milk.

Hugs

Gerri

I'm starting to think that I may have multiple problems with food. It's really hard for me because doctors seem to look past what might really be happening. My mother's side of the family has a HUGE list of stomach problems that have afftected everyone on that side of the family. Such as Celiac Disease, Crohn's Disease, Gerd, Lactose Intolerance...that's all I can think of. For some reason I have never found a doctor that actually put my symptoms together to look at the big picture. I'm trying to find a doctor that will actually go through my history and actually figure out what's wrong.

So.......right now I'm trying to eliminate suspect foods.

You know...thinking of it now I had a really bad reaction to Puffins Peanut Butter cereal this morning. I had a horrible migrane, nausea, and nearly passed out while shopping. I made a post asking if it was gluten free or not because I felt so horrible after eating it. It's made with corn meal, so it could be that. But I grabbed a tostada from Taco Bell and felt fine after that.

I don't know. I am so confused!

I thought taking gluten out of my diet would somehow be some miracle cure to all my problems, but now I am just confused, hungry, suspicious of every twinge in my gut, REALLY hungry, less fatigued (which really is a miracle), but still not 100%. Of course it's only been a couple weeks now, but I'm impatient!

GlutenGalAZ Enthusiast
I made it myself and used KC Masterpiece BBQ Sauce.

I would call and check on the KC Masterpiece BBQ Sauce that you are using.

Last year when I first went gluten free my husband and I bought a couple BBQ Sauces that looked safe and then I called them and was told that Jack Daniels was not safe and that KC Materpiece (we had the original if I am remembering right) were not gluten free. Maybe things changed but I would check into the one you are using.

We use Sweet Baby Rays. You will see some posts on here about this BBQ Sauce, some people love it and some people react to something in it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    3. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,076
    • Most Online (within 30 mins)
      7,748

    Deb baker
    Newest Member
    Deb baker
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.