Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Couple Questions...

pewpewlasers

Recommended Posts

pewpewlasers Rookie
pewpewlasers
Posted

Hey everyone! I have been on a gluten and wheat free diet for about two weeks now and started feeling better after years and years of having serious stomach issues, headaches, and fatigue. My husband has been doing a great job keeping me on track and trying to stay away from gluten and wheat himself. We have been having a difficult time trying to find foods that I can eat and we double check the labels on everything. Lately I have started feeling sick to my stomach again and have been getting horrible headaches, and most embarrassing...running to the bathroom after some meals. Is there something I'm missing? I couldn't understand why after last nights meal of two small pieces of BBQ chicken and an ear of corn would send me running to the bathroom right after finishing my last bite and then feeling sick to my stomach and getting a horrible headache.

I looked up on a gluten free medication website and did not find my birth control listed on there. Maybe that is problem? Also, can deodorants have gluten in them that can irritate the skin?

Are there certain hidden ingrediants that I should be looking for other than the bold text that says contains: wheat and gluten label? Or could this be something different entirely?

I haven't stopped consuming dairy, but now I am considering. I used to be lactose intolerance as a child and have a suspicion that I could be having problems again. I have heard that sometimes celiac and lactose intolerance goes hand in hand.

If you have any information or can point me in a direction where I can find some, I would gladly appreciate it.

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
Hey everyone! I have been on a gluten and wheat free diet for about two weeks now and started feeling better after years and years of having serious stomach issues, headaches, and fatigue. My husband has been doing a great job keeping me on track and trying to stay away from gluten and wheat himself. We have been having a difficult time trying to find foods that I can eat and we double check the labels on everything. Lately I have started feeling sick to my stomach again and have been getting horrible headaches, and most embarrassing...running to the bathroom after some meals. Is there something I'm missing? I couldn't understand why after last nights meal of two small pieces of BBQ chicken and an ear of corn would send me running to the bathroom right after finishing my last bite and then feeling sick to my stomach and getting a horrible headache.

I looked up on a gluten free medication website and did not find my birth control listed on there. Maybe that is problem? Also, can deodorants have gluten in them that can irritate the skin?

Are there certain hidden ingrediants that I should be looking for other than the bold text that says contains: wheat and gluten label? Or could this be something different entirely?

I haven't stopped consuming dairy, but now I am considering. I used to be lactose intolerance as a child and have a suspicion that I could be having problems again. I have heard that sometimes celiac and lactose intolerance goes hand in hand.

If you have any information or can point me in a direction where I can find some, I would gladly appreciate it.

Thanks!

Welcome!

Gluten can be very tricky and it hides well. "Natural Flavors" is one of those hiding places. By law, wheat needs to be listed in the ingredients or in the allergin information. Barley, malt and rye do not need to be listed.

Until your insides heal, you may be symptomatic to all foods.

Here is a listing of companies who will clearly list all forms of gluten, and not hide them in "natural ingredients":

Open Original Shared Link

Yes, easing up on the dairy it would be wise. And, calling you manufacturer of your BC pills to check on its gluten free status would eliminate that issue.

Here is another link:

https://www.celiac.com/categories/Safe--Gluten-Free--Food--List--_____--Unsafe--Foods--____--Ingredients-c-3383

Lisa Mentor
Lisa
Posted

Welcome!

Gluten can be very tricky and it hides well. "Natural Flavors" is one of those hiding places. By law, wheat needs to be listed in the ingredients or in the allergin information. Barley, malt and rye do not need to be listed.

Until your insides heal, you may be symptomatic to all foods.

Here is a listing of companies who will clearly list all forms of gluten, and not hide them in "natural ingredients":
Open Original Shared Link

Yes, easing up on the dairy it would be wise. And, calling you manufacturer of your BC pills to check on its gluten free status would eliminate that issue.

Here is another link:
https://www.celiac.com/categories/Safe--Gluten-Free--Food--List--_____--Unsafe--Foods--____--Ingredients-c-3383

larry mac Enthusiast
larry mac
Posted

Did you make the BBQ chicken yourself or buy it? Sometimes those rotisserie chickens give me problems even though they don't have gluten listed in the ingredients. They tend to be pretty greasy for one thing. Plus, they are injected with various chemicals ala marinades.

I'm curious as to your user name. It's quite unusual. Care to enlighten us?

best regards, lm

GlutenGalAZ Enthusiast
GlutenGalAZ
Posted

I couldn't understand why after last nights meal of two small pieces of BBQ chicken and an ear of corn:

**Have you ever had a problem with corn before? I sometimes have a problem with corn but not corn tortillas. Also the BBQ sauce you used was it gluten free? Did you make the chicken you had or buy it somewhere. Chicken and meats that have added seasonings you need to be careful that gluten ingredients were not added

I looked up on a gluten free medication website and did not find my birth control listed on there. Maybe that is problem?

**I would call the company that makes the brand you use to double check. You can also do a search for it on here, some people have done posts the last couple of months on the brand they use.

Also, can deodorants have gluten in them that can irritate the skin?

**Some people react to some of the ingredients. I use Thai Crystal Deodorant (doesn't have aluminum in it like most deoderants). I don't know if there are any deodorants with wheat/gluten ingredients though.

Are there certain hidden ingrediants that I should be looking for other than the bold text that says contains: wheat and gluten label? Or could this be something different entirely?

** Wheat, Rye, Oats, Barley. Some people have problems with MSG (monosodium glutamate -- not gluten related) this can also be in some BBQ sauces.

Open Original Shared Link

In regards to dairy. If you had problems in the past I would stop eating/drinking dairy products for a while and see if you can tell a difference (some people remove soy as well). You can always re-introduce it slowly later on.

Good Luck

Gerri Explorer
Gerri
Posted

Hi and welcome

What popped out at me when I read your message, and you being gluten free, that that you may have an allergy to corn. Corn will do the same thing to your duodenem (sp) as gluten does.

Many with celiac, will have problems with gluten, corn, soy, and milk.

Hugs

Gerri

home-based-mom Contributor
home-based-mom
Posted
Are there certain hidden ingrediants that I should be looking for other than the bold text that says contains: wheat and gluten label? Or could this be something different entirely?

Thanks!

Don't just look for the bold text that lists the allergens. The required allergens have to be listed, but if they are part of the ingredient list they don't have to be re-listed in bold. Read the entire ingredient list looking for "the usual suspects." If you are just looking for bold text saying "contains whatever" then you could and probably are missing something.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

This page has some lists of things to avoid that might help, pretty far down the page.

Natural flavorings, modified food starch, spices, HVP, malt, are often listed on ingredients. They can contain gluten from rye, or barley and it wouldn't need to be listed on the allergy contains statement.

Open Original Shared Link

missy'smom Collaborator
missy'smom
Posted

I recently found a BBQ sauce that seemed gluten-free, EXCEPT for the worchestershire sauce that was listed in the ingedients, of course WS isn't a single ingredient but made of several ingedients and they were not individually listed. When I contacted the company they verified that it was NOT gluten-free.

pewpewlasers Rookie
pewpewlasers
Posted
  • Author
Did you make the BBQ chicken yourself or buy it? Sometimes those rotisserie chickens give me problems even though they don't have gluten listed in the ingredients. They tend to be pretty greasy for one thing. Plus, they are injected with various chemicals ala marinades.

I'm curious as to your user name. It's quite unusual. Care to enlighten us?

best regards, lm

I made it myself and used KC Masterpiece BBQ Sauce.

In regards to my name...Lasers go pew pew :P I guess its a nerd thing.

pewpewlasers Rookie
pewpewlasers
Posted
  • Author
Hi and welcome

What popped out at me when I read your message, and you being gluten free, that that you may have an allergy to corn. Corn will do the same thing to your duodenem (sp) as gluten does.

Many with celiac, will have problems with gluten, corn, soy, and milk.

Hugs

Gerri

I'm starting to think that I may have multiple problems with food. It's really hard for me because doctors seem to look past what might really be happening. My mother's side of the family has a HUGE list of stomach problems that have afftected everyone on that side of the family. Such as Celiac Disease, Crohn's Disease, Gerd, Lactose Intolerance...that's all I can think of. For some reason I have never found a doctor that actually put my symptoms together to look at the big picture. I'm trying to find a doctor that will actually go through my history and actually figure out what's wrong.

So.......right now I'm trying to eliminate suspect foods.

You know...thinking of it now I had a really bad reaction to Puffins Peanut Butter cereal this morning. I had a horrible migrane, nausea, and nearly passed out while shopping. I made a post asking if it was gluten free or not because I felt so horrible after eating it. It's made with corn meal, so it could be that. But I grabbed a tostada from Taco Bell and felt fine after that.

I don't know. I am so confused!

I thought taking gluten out of my diet would somehow be some miracle cure to all my problems, but now I am just confused, hungry, suspicious of every twinge in my gut, REALLY hungry, less fatigued (which really is a miracle), but still not 100%. Of course it's only been a couple weeks now, but I'm impatient!

GlutenGalAZ Enthusiast
GlutenGalAZ
Posted
I made it myself and used KC Masterpiece BBQ Sauce.

I would call and check on the KC Masterpiece BBQ Sauce that you are using.

Last year when I first went gluten free my husband and I bought a couple BBQ Sauces that looked safe and then I called them and was told that Jack Daniels was not safe and that KC Materpiece (we had the original if I am remembering right) were not gluten free. Maybe things changed but I would check into the one you are using.

We use Sweet Baby Rays. You will see some posts on here about this BBQ Sauce, some people love it and some people react to something in it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.