Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ritz Crackers & Wheat Thins


drjsparker

Recommended Posts

drjsparker Newbie

First let me aplolgize for being relative moron when it comes to this subject. Secondly, I believe this is a question I know the answer to but am just looking for affirmation.

We initially started about a year or so ago with a concern that he had Celiacs or a Gluten allergy...he threw up a couple of times after having wheat products (a goldfish and a cheerio).

Soon thereafter, we had blood tests done that came back positive to Peanut (severe), Dairy, Wheat & Eggs.

We recently had him skin tested for Wheat. It came back negative.

In the last 2 days I've fed him 10 Whole Wheat Ritz Crackers and 6 Wheat Thins. He has had no external reaction and his poopies have been normal.

Is it now definitaly safe to say that he does not have Celiacs or a Gluten Allergy?

Thanks,

John


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

How long has he been off of wheat or the other allergens that you mentioned. I could be that he has healed and is not OUTWARDLY showing symptoms. Should he have Celiac, he is having internal damage. Celiac is an autoimmune disease. It's not the amount of gluten that he may consume, but rather, the autoimune reaction to the smallest amount of gluten that will do the damage, which may be evident down the road with diareaha.

If he does have Celiac, it might take repeted attempts for a reaction such as diarrhea.

I would encourage you to have him tested specifically for Celiac Disease. (Although the blood test is not as reliable for children under the age of five).

Here is what you doctor should order: (all of these)

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

Secondly, there are no stupid questions here and welcome!

drjsparker Newbie
How long has he been off of wheat or the other allergens that you mentioned. I could be that he has healed and is not OUTWARDLY showing symptoms. Should he have Celiac, he is having internal damage. Celiac is an autoimmune disease. It's not the amount of gluten that he may consume, but rather, the autoimune reaction to the smallest

amount of gluten that will do the damage, which may be evident down the road with diareaha.

If he does have Celiac, it might take repeted attempts for a reaction such as diarrhea.

I would encourage you to have him tested specifically for Celiac Disease. (Although the blood test is not as reliable for children under the age of five).

Here is what you doctor should order: (all of these)

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

Secondly, there are no stupid questions here and welcome!

Thanks for the info...

Off of wheat for about a year, then after the wheat test we gave him some of the 'Earth's Best' baby food that did contain wheat (I forgot to mention that)...this has been about a month or 2 ago. He didn't like it so we didn't continue to feed it to him. He did however have some, and had no outward reaction to it....never any diarrhea

Something else I didn't mention is that he did have the following test almost a year ago and both came back negative:

-Endomysial Antibody IgA

-t-Transglutaminase (tTG) IgG

The IgE Food Antibody Assay test that we had done almost a year ago showed the:

-Peanuts (severe)

-Milk (High)

-Wheat (Moderate/High)

-Egg and Mustard (Moderate)

-a few others were mild

As I said the allergist did a skin test for Wheat a couple of months ago...came back negative. I did a skin test (topical) of milk and a stirred up egg....egg was essentially negative...milk was positive. We gave him some eggs, he only ate a little, but there was not rxn.

I'm trying to come to a conclustion on this without having to have him stuck again (or proded) if at all possible.

One other question, if I continue giving him some wheat/gluten each day, how long would you expect it to take for him to start having some diarrhea if in fact he does have Celiacs?

Thanks again for you insight!

Jestgar Rising Star

I went to an interesting conference about food allergies. The first point was that food allergy reactions tend to be respiratory, that is, people react by not being able to breathe. The second point was that the type of reaction that you have this time does not indicate the type of reaction you'll have next time. This means, if your son really has an IgE response to wheat, and you're giving him wheat, you could have no reaction one day, and put him in the emergency room the next day.

Also, an antibody test won't be positive if he hasn't been eating the food. If he's been wheat free, the test wouldn't necessarily show a positive response.

You might want to spend some time figuring out exactly what the issue is. Celiac will give him diarrhea, a wheat allergy could kill him.

gfpaperdoll Rookie

Welcome to the group. Actually you could feed him gluten for however long & he could have or develope complete villi atrophy & never get diarrhea. Some people have no GI symptoms & some people have constipation.

The diarrhea, wasting away, vomitting, nausea, are the classic symptoms that doctors look for (bless their hearts). The problem is that most people do not exhibit the classic symptoms. Some people in fact have the opposite symptoms, they gain weight, have constipation, have a "beer gut" etc.

If you are wanting a non invasive test I suggest that you look into Enterolab.com & get their testing & the gene test also. I would guess that with the food allergies that your child has at least one DQ1 gene. My family almost all have two DQ1 genes. We have a lot of food allergies.

Also, note that you can be allergic to wheat & still have celiac or gluten intolerance. I am allergic to barley & oats in addition to being gluten intolerant (celiac really, no difference in my opinion, but I let it go, does not matter what you call it, the treatment is the same & the results are the same if you continue to eat gluten - not good...) Of course I have other food allergies also, but although I had been wheat light for over 10 years thinking that I had an allergy, once I went totally gluten free it made a huge difference in my health for the better. A lot of my food allergies went away at that time! Wow, I would give up wheat any day to be able to eat corn, tomatoes, pork, peaches, and oranges.

Of course I never had the withdrawal that people talk about & I did not have to adjust my lifestyle all that much, I was already used to taking my own food etc.

You are right to check into this for your child. Most people in my family are born with "issues". I was born with it, my son was born sick, & his son was sick at birth & had failure to thrive in the womb which continued.

Some people talk about a trigger, but in my family just being born was the trigger as far as I am concerned.

I have a 10 YO granddaughter that is double DQ1 & has recently put on weight & lost all the enamel on all her teeth. Dental health is a big issue for children. It is not that they are not brushing their teeth it is that they are not absorbing the proper nutrients. Then later comes osteporosis, arthritis, other auto-immune illnesses. She spent her younger life, taking breathing treatments for an asthma like condition (common for wheat) has had many colds, ear infections, hives, rashes, itchy rashes (I suspect DH), walking pneumonia - twice a year or so ago, consitpation her whole life, well you can see - no doctor has diagnosed her & never will although it is fairly plain what her problem is. No wonder the parents refuse for her to be gluten-free, they are waiting on some nitwit doctor to care enough to find out. sorry, I guess I have a small rant here... But it does point out that some people are totally atypical when it comes to symptoms or lack of.

Amyleigh0007 Enthusiast

Would a skin test show a wheat allergy? I always thought that bloodtests were used to determine food allergies and skin tests were used to determine environmental allergies. I ask because I am having food allergy tesing done on the 11th and I figured the doctor would just draw blood.

Anyway, my son has both Celiac and a wheat allergy (and many other food allergies). After his first endoscopy, his GI said he had a rash and hives on his esophagus most likely from the food allergies. We had no idea he even had food allergies. He never had outward reactions. So, you never know. Your son's reactions could be internal.

slmprofesseur Apprentice
Would a skin test show a wheat allergy? I always thought that bloodtests were used to determine food allergies and skin tests were used to determine environmental allergies. I ask because I am having food allergy tesing done on the 11th and I figured the doctor would just draw blood.

Anyway, my son has both Celiac and a wheat allergy (and many other food allergies). After his first endoscopy, his GI said he had a rash and hives on his esophagus most likely from the food allergies. We had no idea he even had food allergies. He never had outward reactions. So, you never know. Your son's reactions could be internal.

My son did react to wheat on a skin test and a blood test. Our allergist did the skin test first and blood test later. As for my son, the reactions used to take a while to develop- rashes- similar to ringworm or eczema, and later wheezing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



drjsparker Newbie
Would a skin test show a wheat allergy?

Yes, they do do skin tests for food. The Dr. was going to check Milk and Eggs as well but decided against it; which is why I did it myself (topically) when I got home...Milk reacted, eggs did not.

drjsparker Newbie
I went to an interesting conference about food allergies. The first point was that food allergy reactions tend to be respiratory, that is, people react by not being able to breathe. The second point was that the type of reaction that you have this time does not indicate the type of reaction you'll have next time. This means, if your son really has an IgE response to wheat, and you're giving him wheat, you could have no reaction one day, and put him in the emergency room the next day.

Also, an antibody test won't be positive if he hasn't been eating the food. If he's been wheat free, the test wouldn't necessarily show a positive response.

You might want to spend some time figuring out exactly what the issue is. Celiac will give him diarrhea, a wheat allergy could kill him.

Thank you for your insight.

Regarding the respiratory issues, he has had none...or any diarrhea for that matter.

Regarding the anitbody test, now that you mention it, I remember being told that same thing in the past.

Jestgar Rising Star
Regarding the respiratory issues, he has had none...or any diarrhea for that matter.

Good. They didn't mention if non-respiratory could switch, but you would think not. Still, it's worth knowing.

drjsparker Newbie
Welcome to the group. Actually you could feed him gluten for however long & he could have or develope complete villi atrophy & never get diarrhea. Some people have no GI symptoms & some people have constipation.

The diarrhea, wasting away, vomitting, nausea, are the classic symptoms that doctors look for (bless their hearts). The problem is that most people do not exhibit the classic symptoms. Some people in fact have the opposite symptoms, they gain weight, have constipation, have a "beer gut" etc.

If you are wanting a non invasive test I suggest that you look into Enterolab.com & get their testing & the gene test also. I would guess that with the food allergies that your child has at least one DQ1 gene. My family almost all have two DQ1 genes. We have a lot of food allergies.

Also, note that you can be allergic to wheat & still have celiac or gluten intolerance. I am allergic to barley & oats in addition to being gluten intolerant (celiac really, no difference in my opinion, but I let it go, does not matter what you call it, the treatment is the same & the results are the same if you continue to eat gluten - not good...) Of course I have other food allergies also, but although I had been wheat light for over 10 years thinking that I had an allergy, once I went totally gluten free it made a huge difference in my health for the better. A lot of my food allergies went away at that time! Wow, I would give up wheat any day to be able to eat corn, tomatoes, pork, peaches, and oranges.

Of course I never had the withdrawal that people talk about & I did not have to adjust my lifestyle all that much, I was already used to taking my own food etc.

You are right to check into this for your child. Most people in my family are born with "issues". I was born with it, my son was born sick, & his son was sick at birth & had failure to thrive in the womb which continued.

Some people talk about a trigger, but in my family just being born was the trigger as far as I am concerned.

I have a 10 YO granddaughter that is double DQ1 & has recently put on weight & lost all the enamel on all her teeth. Dental health is a big issue for children. It is not that they are not brushing their teeth it is that they are not absorbing the proper nutrients. Then later comes osteporosis, arthritis, other auto-immune illnesses. She spent her younger life, taking breathing treatments for an asthma like condition (common for wheat) has had many colds, ear infections, hives, rashes, itchy rashes (I suspect DH), walking pneumonia - twice a year or so ago, consitpation her whole life, well you can see - no doctor has diagnosed her & never will although it is fairly plain what her problem is. No wonder the parents refuse for her to be gluten-free, they are waiting on some nitwit doctor to care enough to find out. sorry, I guess I have a small rant here... But it does point out that some people are totally atypical when it comes to symptoms or lack of.

First off, thank you for taking the time elaborate in such detail.

My first thought is, without any potential external signs, how would one know that there is a problem? I suppose that's the whole point in all of this...that's it is potentially overlooked quite frequently.

The 'common sense' side of me feels that if his diet consists of wheat, dairy, eggs, etc... yet he has no signs at all of anykind of distress (vomiting, diarrhea, constipation, respiratory issues, eczema, rash, being crabby, etc...) including lack of nutrient issues, that that would be a pretty good indicator that he does not have a problem processing these foods.

For example:

-2 days ago: 4 Ritz Whole Wheat crackers, and a couple of bites of bread

-Yesterday: 5 more Ritz crackers, 6 Wheat Thins, couple bites of bread

No reaction of anykind

Obviously, I'm right smack in the middle of the "Trying to talk myself and will him into being fine" phase of all this. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Scatterbrain's topic in Sports and Fitness
      5

      Feel like I’m starting over

    2. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

    3. - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      8

      Related issues

    4. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,297
    • Most Online (within 30 mins)
      7,748

    Pam PA
    Newest Member
    Pam PA
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.