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How Long Does It Take To Have A Dh Reaction?

lobita

By lobita
in Dermatitis Herpetiformis

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lobita Apprentice
lobita
Posted

I'm trying to figure out how long it takes for a possible gluten-ingestion to turn into a DH outbreak. Does anyone have a specific time they know of when they react to gluten through DH?

I've been having trouble with my DH spot (on my fingers and palms), and I don't know what's causing it. I cut out iodine salt last year, which (I think) made the outbreaks go away for several months. But it's back now.

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RoseTapper Newbie
RoseTapper
Posted

I usually react rather quickly--within 30-60 minutes or so. However, the blisters form one by one over a period of days after I've accidentally ingested gluten. By any chance, do you take thyroid meds? If so, they contain iodine, and even the smallest ecposure to gluten will cause DH to recur.

lobita Apprentice
lobita
Posted
  • Author
I usually react rather quickly--within 30-60 minutes or so. However, the blisters form one by one over a period of days after I've accidentally ingested gluten. By any chance, do you take thyroid meds? If so, they contain iodine, and even the smallest ecposure to gluten will cause DH to recur.

I don't take thyroid meds, but I think I identified what happened...I drank some Rice Dream last Fri. and Sat. and the topic of that having barley traces in it just came up in the forum (coincidentally, since I've never had the stuff before). So I think that did it, but the DH troubles continued into yesterday, so I didn't know if it was something else too.

snaparella Newbie
snaparella
Posted
I usually react rather quickly--within 30-60 minutes or so. However, the blisters form one by one over a period of days after I've accidentally ingested gluten. By any chance, do you take thyroid meds? If so, they contain iodine, and even the smallest ecposure to gluten will cause DH to recur.

Can i ask a nieve question? what does iodine and thyroid medication have to do with DH? i'm new to the forum, i definitely have a gluten intolerance. i was tested for celiac sprue and was negative, but all signs show a sensitivity to gluten including DH.

lovegrov Collaborator
lovegrov
Posted

Generally speaking it takes days for blisters to form. On average, it's slower than other celiac disease reactions. Of course everybody's different.

As for the iodine question, iodine can aggravate or trigger DH even though there's no gluten, but once you're completely gluten-free, it shouldn't cause problems. It never did cause any problems for me, but it has for others. If you're eating high-iodine items now and there's no problem, you don't need to worry.

richard

carolyn s Newbie
carolyn s
Posted

:huh:

I'm trying to figure out how long it takes for a possible gluten-ingestion to turn into a DH outbreak. Does anyone have a specific time they know of when they react to gluten through DH?

I've been having trouble with my DH spot (on my fingers and palms), and I don't know what's causing it. I cut out iodine salt last year, which (I think) made the outbreaks go away for several months. But it's back now.

I can flare up within 24 to 48 hrs. if I don't take my medication, Dapsone. I have a thyroid issue, which goes along with having DH. I also have celiac disease and just diagnosed with lymphocytic colitis. I have had DH for 40 yrs. and have been studied at Stanford & Univ of Utah. Gluten seems to be the enemy.

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      That sounds like really encouraging progress, and it is great that you are narrowing things down so carefully. It can be surprising how something like added iodine in a milk alternative might make a difference for some people with dermatitis herpetiformis-type symptoms, so your note may definitely help someone else who is still dealing with that last bit of itching. It also sounds like you are finding a more comfortable routine with almond and soy milk, simple safe meals, and watching individual triggers like tuna without feeling completely restricted. This really is a learning curve, and keeping track of what improves or worsens symptoms is often the only way to spot patterns. I hope the dermatology appointment goes well...let us know.
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