Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can You Initionally Feel Worse?


glutenfreegirl

Recommended Posts

glutenfreegirl Enthusiast

Good day

I would never post this any where but here and I am only doing this because I am scared and confussed today..

Is it possible to feel worse before you feel better?

yesterday was my first complete gluten-free day as I was just diagnosed after a year long struggle of suddenly feeling awfull however when I look back now it has been years just very subtle that i never put it all together or knew what celiac was for that matter and I have to say energy wise and bloating I felt much better than before however I had a lot of mucus spitting up from my throat and my nose was draining a fair amount. Could it have been stuck there from the inflammation from the Gluten and now just breaking lose now this AM i am spitting more up and my ears and nose feel fluidy I have been drinking lots of water to try to flush it all out.

Also prediagnosis I was suffering C but yesterday and this AM WOW lots of rumbling and moving down there not D thought is that normal or is somehting else wrong now? I gues I htought I would just start to feel better and better not like this has this happened to anyone else.

I guess I just did not think things would feel worse or have weird things like this happen and I am very scared also noticing my moods off a little feel more sad than yesterday and pressure in my ankles alittle fluidy.

thank you for any advice or help i hate this feeling of fear i thought i would be releaved not scared..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

YES!! I felt worse before better. Think of it this way....anytime you injure your body.....healing can be painful. You stub your toe and it is more sensitive an sore 2 days later. You cut yourself and it hurts while it is healing. Burns are very painful while healing. Your body is healing. So this isnt a bad sign and try not to let yourself think it is. Give it some time....you will feel better!

glutenfreegirl Enthusiast

Hi Shayfl thank you for responding so quickly would it be rude of me to ask what you where feeling when you went throught recovery how did you feel worse and for how long if you remember I hope I am not being rude by asking.

YES!! I felt worse before better. Think of it this way....anytime you injure your body.....healing can be painful. You stub your toe and it is more sensitive an sore 2 days later. You cut yourself and it hurts while it is healing. Burns are very painful while healing. Your body is healing. So this isnt a bad sign and try not to let yourself think it is. Give it some time....you will feel better!
ShayFL Enthusiast

It is the answer that might be rude. :o

I didnt have many GI symptoms before gluten-free. I am mostly neuro. But after I cut it out, I had horrible gas/pains and found myself in the bathroom waaaaaay too much. I was also extremely tired (not normal for me). Moody and irritated for a few weeks. Snappy (also not normal for me) and starving no matter what I ate. It wasnt pretty. But it calmed down after a few weeks and I am still getting better as the days go by.........

samcarter Contributor

Yep---drainage, big time. Your immune system has been working overtime against the gluten, and the drainage is, as my dad so eloquently put it when I was a kid, "the dead soldiers" (white blood cells) left over from the fight. Think of it as a detox. You often feel worse, initially, before you feel better. Without the gluten to fight against, your body can finally work on healing the inflammation.

You will heal fastest if you eat whole, simple foods. Don't jump into gluten-free substitutes for things like bread, crackers, and cereals.

glutenfreegirl Enthusiast

Yes drainage that is a good way to put it :rolleyes:

I feel like i have mucus coming from everywhere!! mylungs my nose and even saw some in my "poop" yes I said it.... I have been peeing tons and feel just down and sluggish and headachey man I htought i was supose to feel better right away but good to know others felt yucky first too...\

thank you

Hummingbird4 Explorer

I wasn't really having symptoms to start with, and after 8 days of being gluten-free, I feel worse. I have bloating, gas, and just feel very blue. Also, I've gained a few pounds that I did NOT need to gain. I'm hoping it's just a transitionary thing, but right now I'm bummed out. I feel your pain, glutenfreegirl. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



glutenfreegirl Enthusiast

Thank you all for your support

Hummingbird4 I know what you mean any time you want to chat I am hear we can either complain about how crapy we feel, cheer eachother up or just be....where in the word are you... litterally :)?

I am in Canada

Hummingbird4 Explorer
Thank you all for your support

Hummingbird4 I know what you mean any time you want to chat I am hear we can either complain about how crapy we feel, cheer eachother up or just be....where in the word are you... litterally :)?

I am in Canada

I am in Oregon. Do you have any support groups near you? There is a support group in my area and I believe they are meeting tomorrow morning. I'm trying to muster up the courage to go.

aprilc Newbie

Yes, It will take a couple weeks to totally notice the difference, its been maybe 5 months since ive cut out gluten and I can now say that I do feel the difference

Good day

I would never post this any where but here and I am only doing this because I am scared and confussed today..

Is it possible to feel worse before you feel better?

yesterday was my first complete gluten-free day as I was just diagnosed after a year long struggle of suddenly feeling awfull however when I look back now it has been years just very subtle that i never put it all together or knew what celiac was for that matter and I have to say energy wise and bloating I felt much better than before however I had a lot of mucus spitting up from my throat and my nose was draining a fair amount. Could it have been stuck there from the inflammation from the Gluten and now just breaking lose now this AM i am spitting more up and my ears and nose feel fluidy I have been drinking lots of water to try to flush it all out.

Also prediagnosis I was suffering C but yesterday and this AM WOW lots of rumbling and moving down there not D thought is that normal or is somehting else wrong now? I gues I htought I would just start to feel better and better not like this has this happened to anyone else.

I guess I just did not think things would feel worse or have weird things like this happen and I am very scared also noticing my moods off a little feel more sad than yesterday and pressure in my ankles alittle fluidy.

thank you for any advice or help i hate this feeling of fear i thought i would be releaved not scared..

Shelly D. Newbie

I read this post with hope. I have been gluten-free for about a month and at first I felt energetic and alive, zip--zoom, now I need a nap every day to get through. I had to quit my vitamins because they had de-fatted wheat germ in them (company says they're gluten-free, but I'm afraid to chance it) and I've tried some others but they didn't keep my energy up. My body seems to react with other foods now and I don't like it; bananas are the worst. I'll keep at it though in hopes of getting better.

Jenny (AZ via TX) Enthusiast

I actually felt pretty good the first 2 weeks after going gluten free (although at the time I wasn't totally gluten-free since it was in one of my supplements). Then after about 2 months or so, I'm feeling very tired. I am extremely careful about being gluten-free (changed out the pots and pans, etc). I still get headaches too. But when I look back, I feel better than before I was diagnosed. So I'm sticking with this thing. I don't even think about cheating. Too scared of getting other autoimmune diseases as well as cancer.

So hang in there. The good times are around the corner, I just know it!!! :D

I am also going to get tested for thyroid, vitamin D and hormones.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,956
    • Most Online (within 30 mins)
      7,748

    Srowton
    Newest Member
    Srowton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.