Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Argh Stupid Doctor (test Results)


samcarter

Recommended Posts

samcarter Contributor

My husband picked up my lab results from the doctor's office. He only did ONE celiac-related test: for EMA. It was negative. He didn't do any other IgA, IgG, or Ttg tests. The jerk.

He did test a whole wad of other stuff, though, including glucose, cholesterol, and a few things which worry me (but naturally the doctor didn't mention those when he called with the results):

BUN/Creatinine level: 29 (normal range 7.0-25.0)--mine is the low side of high

Neutrophils: 78.2 (normal range 40-75)--mine is the low side of high

Lymphocytes: 16.9 (normal range 18-47)--mine is just under a low normal

I looked up the last two and an elevated neutrophil count can be a sign of acute inflammation in the body. :huh: A low lymphocyte count can be associated with malnutrition or high stress level (we have had some personal stress around the home lately).

All my CBC and red blood cell counts were normal, so no anemia.

My husband doesn't trust the results, and is going to see if our insurance will cover a trip to the allergist. Would an allergist be able to do a full celiac blood panel and a gene test as well? Problem is i don't want to go back on a gluten diet to get the celiac panel....but at the same time i want to know for sure.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



neesee Apprentice

Well.... He did use the most specific test for celiac disease, however, it is subject to human error. The tests that seems to be the most highly favored right now are the total Iga along with the ttg. Igg seems to point to some sort of gluten intolerance, but not usually celiac.

I know i had extremely low cholesterol with my celiac. 96 total. 20 years later, I'm around 150. I eat a fair amount of fat. I just don't seem to absorb it all that well.

Good luck whatever you decide to to.

neesee

samcarter Contributor

He didn't even do a total IgA. The lab report says "Endomysial IGA". And that was negative. No idea whether I'm IgA deficient, or anything.

My cholesterol was spiffy, though: total was 152.

ohsotired Enthusiast

Call them up and ask why they didn't do the whole panel, and then calmly but assertively request that they do the rest of the tests. I'm right there with ya.........on my way out the door to the doc's office now..........good luck!

salomeh7 Newbie
Call them up and ask why they didn't do the whole panel, and then calmly but assertively request that they do the rest of the tests. I'm right there with ya.........on my way out the door to the doc's office now..........good luck!

I called ahead last week to ask for the celiac panel from my doctor. The medical assistant said, "okay," on the phone and I made certain to list the five tests I wanted. She sounded as if she wrote them down but strangely didn't ask me how to spell them. I should have known at that point. How many people who are unfamiliar with these tests know how to spell them. So, I went today and there were only two tests ordered, the EMA and the ttG. Needless to say I didn't get my labs drawn today because of course the doctor was busy with patients and could not be asked about the additional labs. My baby was fussing and it was so frustrating. Medical offices seem to have little regard for other people's time. Perhaps if I charged per visit they would pay more attention.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,694
    • Most Online (within 30 mins)
      7,748

    Aanhmcbride
    Newest Member
    Aanhmcbride
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.