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Best Doctor Ever!


betsyabailey

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betsyabailey Rookie

Hi, so I posted a few months ago about a preschool that required a diagnosis for an alternative diet. I decided to try a gluten challange on my son then 18 mo. 4 days later he was sick as a dog and had a diaper rash up to his ears (no joke) so I stopped it and talked to our ped. He reffered us to the best doc I have seen (I have lupus so I've seen my fair share) Dr Kelts in Santa Barbara Rocks! He got us in in 4 days from our referral, was personalble and totally on top of it. I've been reading these books where they say docs make you do multiple gluten challanges and was worried sick about my kid being miserable. He sat and listened and diagnosed him with NO TESTS! not even a blood draw. He said it's not always that easy but Aidan, my son, is classic celiac, I knew when I was breastfeeding. He gave me a note for his school and a bunch of local resources and sent us on our way. He said his philosophy is "do no harm" why get a baby sick if the treatment is working already! (that's what i was thinking) He also said if he ever gets into some gluten and gets a reaction that if we want he could test him then but that he'll never ask for a chalange! Just want to let everyone know, at least one thing was easy!


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*lee-lee* Enthusiast

wow - that's awesome! i'm very happy for you. if only we could all be so lucky as to encounter wonderful doctors like yours.

ShayFL Enthusiast

A good doctor is a gem to treasure. Hold on to him!

dilettantesteph Collaborator
Hi, so I posted a few months ago about a preschool that required a diagnosis for an alternative diet. I decided to try a gluten challange on my son then 18 mo. 4 days later he was sick as a dog and had a diaper rash up to his ears (no joke) so I stopped it and talked to our ped. He reffered us to the best doc I have seen (I have lupus so I've seen my fair share) Dr Kelts in Santa Barbara Rocks! He got us in in 4 days from our referral, was personalble and totally on top of it. I've been reading these books where they say docs make you do multiple gluten challanges and was worried sick about my kid being miserable. He sat and listened and diagnosed him with NO TESTS! not even a blood draw. He said it's not always that easy but Aidan, my son, is classic celiac, I knew when I was breastfeeding. He gave me a note for his school and a bunch of local resources and sent us on our way. He said his philosophy is "do no harm" why get a baby sick if the treatment is working already! (that's what i was thinking) He also said if he ever gets into some gluten and gets a reaction that if we want he could test him then but that he'll never ask for a chalange! Just want to let everyone know, at least one thing was easy!

My son's(11 years) doc (ped) was equally wonderful. I wonder if I didn't even need to do the gluten challenge

with him, which also made him really sick. We only lasted 3 days. Maybe the fact that going gluten free

made him stop throwing up would have been good enough.

She also probably saved my life by suggesting that it might be celiac disease that was making him

throw up. I was more and more often not making it to the toilet. My docs had all said that it is IBS.

My mom died at 47 of lymphomia and I finally went gluten free at 49. All sorts of problems went away. I hadn't even heard of celiac disease.

She has been so incredibly understanding and helpful with problems with the school. She understands immediately all the problems with food, CC, medications containing gluten etc. I think I am in love. My son

was always so skinny and now he is getting a bit fat!

Fiddle-Faddle Community Regular

I'm so glad you found a great ped!

I'm wondering if you are aware that lupus has a strong link with gluten intolerance? Many of us here believe that lupus is one of the things that can happen when you have gluten intolerance without screamingly obvious GI symptoms (which does happen to a lot of us), and therefore continue to eat gluten.

If you are not already gluten-free, please try the gluten-free diet ASAP, and see if it helps your symptoms (you will likely find that giving up dairy will help, too). You might also look up the Lyme disease thread on this board, and/or google "Lyme Disease and lupus" and see what comes up.

Best of luck to you! (And welcome aboard!)

CeliacAlli Apprentice
Hi, so I posted a few months ago about a preschool that required a diagnosis for an alternative diet. I decided to try a gluten challange on my son then 18 mo. 4 days later he was sick as a dog and had a diaper rash up to his ears (no joke) so I stopped it and talked to our ped. He reffered us to the best doc I have seen (I have lupus so I've seen my fair share) Dr Kelts in Santa Barbara Rocks! He got us in in 4 days from our referral, was personalble and totally on top of it. I've been reading these books where they say docs make you do multiple gluten challanges and was worried sick about my kid being miserable. He sat and listened and diagnosed him with NO TESTS! not even a blood draw. He said it's not always that easy but Aidan, my son, is classic celiac, I knew when I was breastfeeding. He gave me a note for his school and a bunch of local resources and sent us on our way. He said his philosophy is "do no harm" why get a baby sick if the treatment is working already! (that's what i was thinking) He also said if he ever gets into some gluten and gets a reaction that if we want he could test him then but that he'll never ask for a chalange! Just want to let everyone know, at least one thing was easy!

I'm so happy that you have a great doctor! =]

betsyabailey Rookie

Yeah I'd heard about the correlation between both and lupus. I had Lyme as a kid... grew up in Ct actually. And have been gluten-free since I started breast feeding my son. (Largely) I did test neg to Celiac though. I find it's easier to tell my kid to eat something I'm eating myself.

Thanks!


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    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
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