Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Pannel

Live2BWell

Recommended Posts

Live2BWell Enthusiast
Live2BWell
Posted

I got my tests results back today.

Two out of the three tests he ran, were positive and indicative of celiac :rolleyes:

Not exactly sure how I feel about that - I mean, I feel optimistic, because things can only get better from here, I hope!

It's a very bittersweet diagnosis.....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kitt1027 Rookie
Kitt1027
Posted
  Live2BWell said:
I got my tests results back today.

Two out of the three tests he ran, were positive and indicative of celiac :rolleyes:

Not exactly sure how I feel about that - I mean, I feel optimistic, because things can only get better from here, I hope!

It's a very bittersweet diagnosis.....

Wow Jessica! I haver read a couple of your other posts and know you were waiting. Congrats on getting clear results...And I know how you feel. I haven't even had my blood tests yet, but part of me wants them to be positive so that I can put a name to all of the symptoms and suffering.

Good luck with going completely gluten-free! Just think about how much better you are going to feel! :D

I'll definitely post my results one I get them. How long did it take for yours to come back?

Kitt

TrillumHunter Enthusiast
TrillumHunter
Posted

Welcome to the club!

There is a learning curve and mistakes will happen, but you'll get the hang of it in time.

Live2BWell Enthusiast
Live2BWell
Posted
  • Author

Hey Guys, thanks for the replies.

TrillumHunter, thanks for the support. I am glad that I was able to ease into it, before I found out my results, because I was prepared (somewhat) so that helped atleast a little bit.. It's a lot to wrap my brain around though.

Kitt1027, (( Hugs )) I so hear you! Hang in there, I know what a futile process it can be. FYI: It took about a week and a half to get my results back. I had been through the ringer up until that point, and actually wasn't expecting them to be positive because I had already been gluten free for 2 weeks (and my doctor told me that in order to get accurate results, if I am Celiac, I need to be glutened.) I was frustrated and impatient though, so I had them draw the labs anyway :rolleyes:

lizard00 Enthusiast
lizard00
Posted

Congratulations... weird, isn't it. :huh:

When I found out my results were negative back in Nov of last year, I was so upset. It had to do with me feeling like I was starting over again and was totally off with the gluten problem.

A few months ago I got my official Celiac dx based on my genetics and positive response. It was the weirdest justificiation ever. I thought why am I happy to have an AI disease??? But, it's always better to know. Now that you're sure, you can really focus on getting better!! YAY!!! B)

lovegrov Collaborator
lovegrov
Posted

Eventually this will feel easy to you. Yes, the social part will always be tough, but feeling better is great.

richard

Jenny (AZ via TX) Enthusiast
Jenny (AZ via TX)
Posted

Jessica,

I'm glad you got your results. You are so far ahead of the game than when I found out. At least you know pretty much what you need to do. Also, it is great that you found this forum early on. I didn't find it for a few months. It would have saved me a lot of trial and error. There is so much knowledge on this forum. Keep up the great attitude :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Live2BWell Enthusiast
Live2BWell
Posted
  • Author

Jenny (AZ via TX), Thanks Jenny! I too am very grateful I found this forum when I did. Although, I've been sick for a long time now, and Celiac is the last of the diagnoses. In a way I wish I would have found this forum sooner, because maybe I would have started getting better sooner than I have, but... there's a reason why things happen the way they do, and whatever that reason is, I am glad I'm on the right path (it seems I am, although, I wish I could trust that without doubt.) Thanks for your support, Jenny :)

lovegrov, Thanks, grov!

lizard00, Yes, Yes, & Yes! It is very weird indeed! It's such a good (and bad) feeling all wrapped up in one, I so relate. I too often question why I'd want to have an illness, but then I think it's not that I want to have an illness, it's that since I have an illness anyway I want to have a name for it, because if there's a name then there's a way to deal with it. That is the good feeling. Ofcourse, the sinking feeling is that it exists at all ... but what is, is .... Thank you for your reply and support :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Nimsay's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Confused about gluten challenge symptoms

      Your experience with gluten is actually not unheard of! Some people with non-celiac gluten sensitivity (NCGS) or even celiac disease report an initial ‘honeymoon phase’ during a gluten challenge, where symptoms temporarily improve before worsening again. This could be due to your body adjusting or even a temporary immune modulation. Since you’re only 2.5 w...
    2. Jacki Espo
      - Jacki Espo replied to Pamp8's topic in Dermatitis Herpetiformis
      2

      Dermatitis Herpetiformis

      Hi there @Pamp8 yes I've had dermatitis herpetiformis and a negative test for celiac and a negative biopsy. I had stopped eating gluten before taking the test. I have had an inconclusive genetic (?) test. I developed the same all body rash. It was one of the worst experiences of my life and I am sorry you're experiencing it. What helped me: 1). I stopped...
    3. trents
      - trents replied to Pamp8's topic in Dermatitis Herpetiformis
      2

      Dermatitis Herpetiformis

      Welcome to the forum, @Pamp8! As to your first question, it is possible to have only the epidermal form of celiac disease but it is not common. Most people who have dermatitis herpetiformis also have damage being done to the villous lining of the small bowel. As to your second question, most likely you are getting some gluten contamination from...
    4. Pamp8
      - Pamp8 posted a topic in Dermatitis Herpetiformis
      2

      Dermatitis Herpetiformis

      I'm new here, although in the past I know I've read some of the messages. My doctor and I have long suspected that I have celiac. I have several other autoimmune illnesses. But, my celiac biopsy was negative, so I started eating a lot more gluten. Over the last several years, I've had minor bouts of an extremely itchy rash that I was correlating to gluten...
    5. leenora
      - leenora replied to MagsM's topic in Related Issues & Disorders
      7

      Inflammation and Menier’s disease link?

      P.S. I also suffer from Meniere's and Hashimoto's thyroid disease, osteopenia since 40 y.o. These all were diagnosed before the Celiac Disease! And I believe it is all interconnected.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,937
    • Most Online (within 30 mins)
      7,748
    kazzie21
    Newest Member
    kazzie21
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Confused about gluten challenge symptoms

      By Scott Adams · Posted

      Your experience with gluten is actually not unheard of! Some people with non-celiac gluten sensitivity (NCGS) or even celiac disease report an initial ‘honeymoon phase’ during a gluten challenge, where symptoms temporarily improve before worsening again. This could be due to your body adjusting or even a temporary immune modulation. Since you’re only 2.5 weeks into the challenge, it’s possible more symptoms could reappear if you continue. Celiac testing (bloodwork and endoscopy) is most accurate after a full 6 weeks of gluten, so sticking with it for now is wise. That said, your joint/tendon issues (especially the Achilles stiffness) are interesting—they can be linked to celiac disease...
    • Jacki Espo
      Dermatitis Herpetiformis

      By Jacki Espo · Posted

      Hi there @Pamp8  yes I've had dermatitis herpetiformis and a negative test for celiac and a negative biopsy. I had stopped eating gluten before taking the test.  I have had an inconclusive genetic (?) test.  I developed the same all body rash.  It was one of the worst experiences of my life and I am sorry you're experiencing it.  What helped me: 1). I stopped eating oats of any kind. 2). I also took some anti-biotics that were not prescribed for dermatitis herpetiformis but I read they could help. 3). Salty food exacerbates it for me.  Now I have a small flare up any time I get cross contamination like from french fries or a shared grill at a restaurant but it's not as bad as it used to be.  Wishing you...
    • trents
      Dermatitis Herpetiformis

      By trents · Posted

      Welcome to the forum, @Pamp8! As to your first question, it is possible to have only the epidermal form of celiac disease but it is not common. Most people who have dermatitis herpetiformis also have damage being done to the villous lining of the small bowel.  As to your second question, most likely you are getting some gluten contamination from an unknown source on occasion that you are unaware of and are not suspecting. It could be something like in a medication or supplement you are taking or an oral hygiene product you are using or a spice you are using in your cooking. You might also look into a low iodine diet as iodine is known to exacerbate dermatitis herpetiformis. As to...
    • Pamp8
      Dermatitis Herpetiformis

      By Pamp8 · Posted

      I'm new here, although in the past I know I've read some of the messages.   My doctor and I have long suspected that I have celiac. I have several other autoimmune illnesses. But, my celiac biopsy was negative, so I started eating a lot more gluten.  Over the last several years, I've had minor bouts of an extremely itchy rash that I was correlating to gluten, but it wasn't very bad and would improve in a short amount of time. Last year, I had a bout that was a bit worse, but it went away rather quickly, so I didn't think too much about it. Fast forward to this year. I have had a REALLY BAD case of it, for a few months, so I went to a dermatologist, and she diagnosed dermatitis herpetiformis...
    • leenora
      Inflammation and Menier’s disease link?

      By leenora · Posted

      P.S. I also suffer from Meniere's and Hashimoto's thyroid disease, osteopenia since 40 y.o. These all were diagnosed before the Celiac Disease! And I believe it is all interconnected.
×
×
  • Create New...