Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

First Day gluten-free


artselegance

Recommended Posts

artselegance Apprentice

So I glutenized myself into a coma yesterday to make sure when the bloodwork was done this morning there would be no questions.

But I'm in a panic and confused...Do I just start gluten-free or do I go ahead and eliminate dairy also? And eggs? There are no whole food stores in my town, but after a I get a good diagnosis I will drive 45 to the nearest....I'm going to try and just do whole foods for the time being.

What about bacon? I looked at my Wright's bacon package this morning and didn't see anything, but haven't seen alot of discussion about bacon.

I know I have to start slow and won't be perfect, but I certainly want to be on the road to healing....any help/guidance appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MyMississippi Enthusiast

I would wait for the lab results---- unless you are SURE you are Celiac. Hopefully, you will have a nutritionist consult if you are Celiac--

I would probably only start off getting rid of gluten when the time comes---

You can always fine tune it (get rid of casien, soy, etc. if you need to ) as you go along.

Gluten free is difficult enough without having to get rid of a bunch of other stuff---- :)

But that's just my opinion---

ShayFL Enthusiast

If you are going for a GOLD STANDARD diagnosis, you need to stay on gluten for now because if your bloodwork comes back POS, they will want to do a biopsy on you.

If you dont care about a Dx....and just want to feel better now....then you can start a gluten-free diet.

Stick with simple foods right now: plain meats, pure spices, eggs, plain veggies, plain fruit, nuts & seeds, plain rice, corn on the cob, potatoes and the like. Dry and most canned beans are o.k., but check the ingredients. Look for: Beans, water and salt.

I would avoid dairy and soy for a few months and then once you feel better reintroduce them.

Best of luck!

And please ask questions here. We are happy to help. :)

artselegance Apprentice

I've already had the biopsy and it is positive. Now, the gastro wanted the bloodwork to confirm.

I'm a real snacker and this is whats bothering me....I do eat fruits and veggies, but my family is also used to eating out alot, which needs to stop anyway for all of us healthwise.

Even avoid cottage cheese? I love my cottage cheese and fruit....

Thanks for the responses......I look forward to healing here!

happygirl Collaborator

Do not go gluten free until testing is completed.

Call and ask your doctor what tests were performed for Celiac. Ask what the next steps are.

If you need to go gluten free, we can help you learn to read labels and find safe foods. However, first you need to deal with the testing and diagnosis phase.

Good luck.

ShayFL Enthusiast

Your biopsy shows you have villi damage. The tips of the villi must heal before you can digest dairy properly. You can try just gluten-free and see if you get better. If you dont, then you can take out the dairy and soy.

Getting well is a personal journey. It works differently for each of us. But we are here to help you along the way.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.