Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint Pain


Lpa

Recommended Posts

Lpa Rookie

How long might it take for joint pain to subside after going on a gluten free diet?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

If the joint pain were caused by gluten I would think it would improve fairly quickly as the toxins were eliminated from your system. But if it's due to something else, say rheumatoid process or osteo artritis I would not expect it to change much. Have you been checked for other causes? A lot is blamed on gluten. I worry that celiacs make gluten intolerance a catch all for whatever happens to be wrong with their bodies when they should be looking in another direction.

Steve

ravenwoodglass Mentor

I had incredible bone and joint pain and although I had some joint deformity I do not produce the RA factor so I was labeled with osteo. I should note that my celiac genes are thought to be genes for RA, that is what I would have been diagnosed with if they had gene tested and they then would have stopped looking. I thought after 10 years of progressive joint pain that moved through my joints from my hands to my knees to my feet to my hips that I would be on my canadian canes forever. My hands had gotten so bad I could no longer type or hold any of my art tools. When I was diagnosed I didn't have this board and was just overjoyed to have my daily D (IBD) finally go away. I was astounded when within 6 months I had no joint pain whatsoever and was considered to be in complete remission. Within just a month or so gluten-free the pain was down so much that all I needed for it was baby asprin. I haven't even needed that now for years. I can not guarentee that you will have the same results, and I am, some think, a real nut about being absolutely gluten free and checking everything whether I eat it or put in on my skin or work with it in the studio but for me the gluten free diet ended the joint issues. My right hand still looks knobby but everything works and I can dance again and do anything I desire without pain.

*lee-lee* Enthusiast

i was diagnosed with trochantaric bursitis (read: pain in my hip joints) about 4 or 5 months before i started on my Celiac quest. i was tested for everything under the sun when dealing with my hip pains. Rhumatoid arthritis, lupus, mono, thyroid diseases, Lymes in addition to tons of xrays and an MRI...most tests were done more than once. at one point, they suspected fibromyalgia and wanted to put me on Celebrex but i said no. i also went through cortisone injections and physical therapy with virtually no relief.

finally the doctors said it's bursitis and to start some light cardio with lots of stretching before and after. i think at that point no one had any idea and that was their best guess. i was so sick of seeing doctor after doctor so i did as i was instructed and with the help of 800mg 3x/day, the pain slowly became tolerable. not good by any means but i was resigning myself to a life of pain. then i started to explore Celiac and came across the idea that my joint pain could possibly be attributed to that.

i'm nearly 2 months gluten free and i have no pain whatsoever in my left hip. that one was the better of the 2 so i'm hoping the other side will be good as new in a few more months.

i have no evidence that my pain is due to gluten...it just seems awfully coincidental.

RiceGuy Collaborator

As others have stated, it may just take time, but you could probably quicken the recovery process with some supplements. Many on this board have found certain nutrients do a world of good. In my experience, magnesium and a sublingual methylcobalamin (vitamin B12) have practically worked miracles. Some of the other commonly suggested supplements are B-complex, vitamin D (cholecalciferol), zinc, calcium, and probiotics. I've also found glucosamine to be very helpful for joints.

Also, some find it necessary to avoid other foods at first, until things heal sufficiently. Dairy is often a problem, especially in the beginning.

Lockheed Apprentice

I had osteoporosis at 20 which is what caused a further investigation and resulted in the celiac disease diagnosis. My joint pain didn't subside for a good six months but I think a lot of that was because I was on Fosamax for the next two years trying to actually grow bone again. My bones are now relatively normal, but I was still achy for a while waiting for my density to catch back up. It was a good deal of joint achiness but I was really just achy all over. I guess the saying is all things heal with time.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,670
    • Most Online (within 30 mins)
      7,748

    CDR40
    Newest Member
    CDR40
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.