Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Very Important, Please Read!


jmcbride4291

Recommended Posts

jmcbride4291 Contributor

It has been some time since I posted a meesaage here. I have been very sick. I still am but not as bad as I was. I went down like a brick and so my family followed. Through research I went gluten free and recoverred a lot but not totally. It turns out we had a severe mold problem. Stachybotry's. This is one of the most toxic molds.

We lost everything, even our cat died from it. The reason for this post is that through research I discovered that mold toxins contain very powerful "Protein Synthesizing Inhibitors". Bascically you will have a problem processing protein. Gluten as we all know is a protein that many researchers are stating that no one should consume or at best is a protein that is hard to process. When you mix mold with gluten it is an explosion. Just like with Gluten, mold can cause skin problems, hair loss, teeth and bone problems, sleep problems, fatigue, constipation & diarrea. It can also cause many digestive problems, vision, fibromyalgia, leaky gut, etc. It also compromises and can destroy your immune system. There is a lot more. Sounds very familiar! If , dependending on you DNA, you are having problems with gluten and you stop and still have some problems, take a serious look in your houes for mold. In fact as research has shown, bacteria increases the symtoms that gluten causes. So, it is possibble that your symtoms have become so severe due to a mold problem. Many times in this forum, I have seen people still stating not getting well even though gluten free. I tell you that this is a very good area to look.

We rented a home a were trapped with no money to escape. The landlord did nothing and the town and all the sates agencies were powerless to do anything. Recently the Asbury Park Press did a story on my families plight. They also reported that I have begun work with the legislature getting laws passed to prevent others from getting hurt like this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

How awful.....I hope you continue to heal. And good for you helping others.

Rachel--24 Collaborator

Thanks for your post and I'm glad you got to the root of your health problems.

I know of many people with a similar story. Toxic mold is harmful for everyone however, some people are more susceptible due to genetics.

The immune system can become severley compromised (as you mentioned) and this increases the risk of infection. Lyme, candida, viruses, etc....they all become more of an issue once the immune system is overwhelmed by chronic exposure to mold. Also, heavy metals (mercury, cadmium, lead, etc) also tend to accumulate because detoxification is usually impaired when a persons body is not able to handle the mold toxins.

Some people are not able to detox the molds....they continue to build up/circulate...its a heavy burden on the immune system.

Food intolerances are a very common symptom of mold toxicity....or any type of "toxic" illness which puts a heavy burden on the immune system and detoxification pathways.

Has your Dr. put you on any type of binder to "mop up" the mold toxins? There are a couple which are good for people dealing with this. It basically helps the body to eliminate these toxins.

sickchick Community Regular

Add some good ole STRESS to the mix.

:rolleyes:

Living out here in the rainy city I have come across some nasty stuff in my lifetime. It's amazing how deep that stuff can seep into drywall and between floorboards!

Be well and hope you all heal very soon

xxx

Fiddle-Faddle Community Regular

Thank you for posting this. You're right, it's very important for all to know.

I'm awfully sorry you've had to endure such a nightmare, and hope things rapidly and permanently improve for you. I really admire that you are using your experience to help others, too!

Can you recommend some web sites to learn more about mold and how to recognize its nasty presence?

home-based-mom Contributor

As I have posted before, I have a customer who is extremely sensitive to molds. After (I think) 2 years on disability she tried to go back to work 3 different times and didn't last a full day in any of them because of mold in the buildings that others were neither aware of nor sensitive to. :blink:

She gave me a couple of web sites for more info.

Open Original Shared Link

and

Open Original Shared Link

Hope these help! :)

home-based-mom Contributor
As I have posted before, I have a customer who is extremely sensitive to molds. After (I think) 2 years on disability she tried to go back to work 3 different times and didn't last a full day in any of them because of mold in the buildings that others were neither aware of nor sensitive to. :blink:

She gave me a couple of web sites for more info.

Open Original Shared Link

and

Open Original Shared Link

Hope these help! :)

It's too late to edit this post so I just need to add to it. :blink: If you read some of the info on those two sites, you will recognize a lot of symptoms that are common to people on this forum. Many of these symptoms seem to be the ones that just don't go away.

If you have symptoms that won't go away, even with the gluten free diet, look into this mold situation. It could be either in your homes or in your work place.

Just as many have finally found relief after dealing with parasites or Lyme, perhaps some of you can finally start to get better after dealing with a mold problem. It certainly can't hurt to look into it!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.