Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shouldn't Celiac3270 Be Back On Line By Now?


Canadian Karen

Recommended Posts

Canadian Karen Community Regular

I thought for sure celiac3270 would have visited here to give us an update. I am kinda worried now.

I am sending more prayers his way that everything is okay.....

Hugs,

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

I think he said wednesday or thursday. I wish I had some kind of update. I hope everything went well. Hopefully he'll be back here soon :D

mela14 Enthusiast

I was thinking the same thing too..........hope all went well.

Guest barbara3675

Was on vacation for a week, what's up with celiac3270--what type of surgery is he experiencing? I sure will keep him in my good thoughts and look forward to his return.

Barbara

stef-the-kicking-cuty Enthusiast

Hey, I was gone for a few days, too. And I was wondering, if he's already back. Hm, it might have taken a little longer than everybody expected. I hope, he's fine.

Stef

flagbabyds Collaborator

he said that he would be in the hospital for like a week so he should be back sometime soon

celiac3270 Collaborator

I'm back! I can't give a complete update, but I just wanted to inform you :). In the next hour I hope to get back here and I'll give you the full story.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mela14 Enthusiast

welcome back,

let us know how you are just as soon as you can.

hope you are on the road to wellness now!

celiac3270 Collaborator

Monday -- Surgery Day -- The doctor told me I was very lucky to have gone 14 years without a serious problem. Any one of the hundreds of times I've been sick, my intestines could have coiled around a vein cutting off the blood supply and essentially killing an organ. I had to sit around in the waiting room all day until about 4:00 in the afternoon (since they were squeezing me in on an "emergency basis." In the procedure, they made three incisions--one in the bellybutton, one about halfway between my belly button and the left-most part of my abdominal area, one on the right. The incisions were small--maybe three centimeters each. They stretched out my intestines (side to side) as much as possible in the "LADS Procedure". They also took out my appendix since it's in the wrong spot as a result of all this and as a result of this, if I ever got appendicitis they would never find it--too dangerous so they took it out since it doesn't do much for me anyway. When I woke up I had a tube that went from my stomach through my throat and up into my nose and out into a container. They had suction on it so it was removing a greenish liquid from my stomach. The doctors said that since they had to touch the bowels and intestines so much, they sort of froze up. My throat and nostril got really sore from the tube over the next few days. I also had an IV of course, and some oxygen since I wasn't breathing as deeply as they wanted. The oxygen tube was removed a day later. I was in a room with a little child and I couldn't sleep much because to ladies on the other side of the curtain had loud childs music playing all night and were talking in Spanish extraordinarily loud--the way I might yell, or at least raise my voice--plus the child cried a lot. I got moved to a private room the next day by the nurses who felt sorry for me :):lol: .

Tuesday, Wednesday -- Recovery -- They took the oxygen tube out, but the other tube hurt so much. I still wasn't allowed to eat or drink anything. The cuts weren't as bad as the throat pain...I had morphine to control any pain I had, but I stopped using it when I was told it could slow up bowel progress--I didn't want to sit there for days waiting. They moved the tube about an inch higher since it was a little low in my stomach--really painful. I sat in a chair for a half hour Tuesday, but it made me nauseous and dizzy. Oh, and I started walking Wednesday since that would also help me to recover and get things moving--with a stand of all the drips and pain meds.

Thursday -- I walked a tremendous amount (for post-operation)--49 laps around the floor, which consisted of four long hallways--with my stand of meds again :). Still the tubes down my throat, but they were, to my relief, removed late in the day--due mostly to my walking-- and they let me eat a lemon ice (gluten-free) and a little chicken broth--hot water with an unopened package of "Herb Ox" powdery stuff to put in it--also gluten-free, of course.

Friday -- The doctors told me that I could start eating solid foods without any restriction--though I made sure to eat slowly and walk after eating to keep things moving so I wouldn't aggravate anything and need the tube put down again. 1st BM....lol....I'm not sparing any details. I did a lot more sitting in the chair--actually, Thursday I spent most of the day walking, second most in a chair, then the least time in my bed and Friday I was a little tired, but I sat in a chair again for most of the day. They disconnected the drip from the IV in my hand and reconnected it later to give me something else. I was extremely surprised when the doctors came in around 5:30 and said I could go home if I wanted to, since on Wed./Thurs. had been predicting Saturday--maybe late afternoon--and only that soon because I was so diligent about walking and sitting up and trying to recover.

Carriefaith Enthusiast

That tube thingy sounds painful :(

I'm really glad that you are home and doing well though :D

I wish you a great recovery and hopefully you will be symptom free forever B)

Best wishes

angel-jd1 Community Regular

Welcome back kiddo!! Now get off the computer and GO REST!!!! You just had surgery silly. Take care of yourself.

-Jessica :rolleyes:

stargirl Apprentice

Feel better quickly celiac3270!

mela14 Enthusiast

glad you're back! You will get better and stronger each day. Just give it time and rest a lot. Your body need it. You've been through a lot!

I've had 7 surgeries for abdominal adhesions and it takes evrything out of you but you WILL recover.

Hang in there and keep us posted!

celiac3270 Collaborator

Thank you ;)

P.S. What was really cool was that one of the nurses--she added the medications to my drip and stuff on--Wednesday, I think--was celiac herself! Had never heard of celiac.com, checked for celiac sites on the internet, or known that there were gluten-free restaurants in NYC. She asked if I could e-mail later, which I will--and visited the message board while I was in the hospital

stef-the-kicking-cuty Enthusiast

Wow, good to see you back and on the way to recovery :D . Interesting story, that with the tube indeed does sound very painful :( . That with the nurse, that she had celiac, that's just one proof, that there are more and more patients with celiac out there :lol: . I don't wish it to them, but our world gets much better through that though. I'm glad to hear, everything went well at the end. Keep us posted about your recovery :D .

Hugs, Stef

MySuicidalTurtle Enthusiast

Hello, celiac3270!

mommida Enthusiast

Glad to hear everything went well.

My family wishes you a speedy recovery.

Laura

Canadian Karen Community Regular

Well, Mister Readingracer!!!!

I sure is a relief to hear from you!!!!

I am glad you are home safely and it sounds like it's wasn't exactly a walk in the park, eh? Oh well, it will all be worth it once you start feeling so much better than you have in years!! God was watching out for you in regards to the doctors telling you that you were very lucky that some much more serious didn't happen.

Now make sure you get some rest and recoup your strength....

Hugs,

Karen

celiac3270 Collaborator

I was back at the hospital a little sooner than expected: about 2:30 (Eastern time). This morning I had some swelling....I'm pretty open about things, but I won't go into a tremendous amount of detail here--just the scrotum becoming very enlarged and they told me to come in. It's some sort of infection with the epidydimus (sp?) ...antibiotics for 10 days....released around 6:30, though and hoping I won't be leaving home again for a little while.

Maggie1956 Rookie

So glad you're on the mend celiac3270. :D It sounds like you've been through quite an ordeal, so take it easy for a while, ok?

Please keep us posted. We're looking forward to hearing about your progress toward total good health. ;)

lbsteenwyk Explorer

Welcome back, celiac3270. I'm so glad your surgery went well. You've been in my thoughts these past few days. As someone else said, it does take time to recover from surgery, so take it easy!

cdford Contributor

Been praying for you. Glad you are better and home again. Those tubes are awful. What was even worse for me was not being able to communicate well. Maybe that is the last time you will ever have to experience it.

Twister2 Contributor

Hi celiac3270! Glad to hear you are recovering well, what an ordeal! I hope you feel better soon and hope the surgery works well for you in the long run.

Keep us posted!!

Hugs,

Twister

plantime Contributor

{{{Hugs}}}!! Rest and recover. Give yourself time. Take care of yourself! I'm glad you were able to reach out to that nurse, maybe now she doesn't feel so alone with celiac.

mela14 Enthusiast

boy...it's always something. don't get discouraged. take the antibiotics and rest. you'll be be on your feet soon enough. don't foget to take probiotics with the anitbiotics!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      My Journey Continues some notes

    2. - Cecile replied to Cecile's topic in Related Issues & Disorders
      3

      Symptoms

    3. - Jmartes71 posted a topic in Introduce Yourself / Share Stuff
      0

      Not validated

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      4

      New issue

    5. - Jmartes71 replied to chrish42's topic in Doctors
      3

      Doctors and Celiac.com

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,191
    • Most Online (within 30 mins)
      7,748

    LynnF98
    Newest Member
    LynnF98
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I have increased my vitamin intake Vitamin B Complex plus 2 Thiamax, NeuroMag, Benfotiamine with breakfast. I continue reading and watching gluten free items that I eat. Breakfast is Bobs Redmill gluten-free oatmeal with Chobani zero sugar yogurt a banana and blueberries. Lunch since im at a deli gluten-free is hard to come by so I stick with turkey with gluten-free Promise bread. Dinner varies like gluten-free pasta, tacos, chicken, sausage, meat etc. rice or take out from gluten-free places. I have decided to stay away from gluten-free pizza as I feel I felt weird with it unless its store bought frozen. I am going to try to make my own gluten-free bread, Bagels. I have been good with baking gluten-free treats like cookies, muffins. Snacks if its not fruit, veggies I grab a protein bar or chocolate guilty pleasure reeses, hersheys, York PP. I am going to start to use my fitness pal app to track what I eat and note when I feel off to see if I can pinpoint if a trend of a certain gluten-free food is a culprit. I noticed once in a while I feel a little bloated, gassy that I think is from the pizza so I am going to avoid it and continue narrowing it down. I have been doing very well and I have learned even if you think you are doing everything 100% gluten-free eating it can sneak in without you knowing. This year is more traveling which im afraid of but have already looked into gluten-free places in Nashville which they have and back to Aruba I went last year and have the gluten-free places already selected. Most restaurants I have been to have been very helpful with what to stay away from to avoid CC. If a place states they don't have any gluten-free the I stick with a salad or when I took my kids to breakfast as much as I miss the breakfast this place serves I played it safe with yogurt and a fruit bowl so at least my kids were happy to go there again. Local farmers market has great gluten-free items that I treat myself to like different types of breads, baked goods. My journey continues...
    • Cecile
      Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time. 
    • Jmartes71
      After waisted time of new care team, yet again EXHAUSTED saw new gi today in Modesto, though all my ailments im not getting any kind of concern of me being celiac and sentive to just about everything since menopause. Dr daid why don't I go see you guys because my blood shows zero for celiac. I told him im glutenfree since 1994 by colonoscopy with biopsy positive celiac sprue by GI.Its RIDICULOUS when im bringing in material from this site of knowledge as well as the autoimmune institute,and  there's zero interest on their part.Medical IS causing me depression.Im view as a disability chaser, IM STILL RECOVERING from being a bus driver that im still healing and having more issues, now I may have multiple sclerosis or meningioma. Ive reached out, wrote letters, NOT feeling well. This is inhumane. 
    • Jmartes71
      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I  get the shakes.I have to take the crappy stuff and get injected always more than 4 times always.Its infuriating 
    • Jmartes71
      I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.