Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Before You Felt Better?


anerissara

How long did it take on the diet until you felt better most of the time?  

17 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

anerissara Enthusiast

HI! Ok, I have no idea if I did that poll right, guess I'll see when I post it!

Just wondering how long it takes before you feel like yourself again. It doesn't have to be 100% better, just better most of the time. I felt so good the first 3 weeks I was sure I'd be totally better by now, but it's been 2 months and I still go up and down and although most of the other symptoms are better I'm still getting D and still have one spot of rash that hasn't quite cleared up. Thanks!

Oh, oops! I guess if you're on the gluten-free diet and don't feel better, you could just respond to the post and write in how long it's been and that you're still not better.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator
;) the poll worked----and i think you will get answers all over the place----some people feel so much better after just a few days--i do feel that it has a lot to do with your frame of mind--some people see the glass as half full and some as half empty---the half empty thinkers take longer to convince----when i went gluten-free and little minute change was terrific to me----i wanted my life back--i wanted to go wherever i wanted whenever i wanted and celiacs had taken that right away from me---i found it very difficult somedays and even impossible at times to drive 25 miles to work---25 miles seemed like the other end of the state to me and could set panic in that youwould not believe---now--i live 800 miles away from that job and i love to travel--i still have rough days sometimes, but they are few and far apart----gluten free gave me back life and its so good------ :lol: deb
celiac3270 Collaborator

I put 9-12 months, but if this is for research or something, don't use my number :). I just took much longer cause I had another problem which gave me terrible, but celiac-like symptoms. So for all I know, I could have lost my celiac symptoms in two weeks and then my malrotation caused the problem for the remaining months. I know that in reality, it should have been under six months for me, because I had an endoscopy about six months in and it said that my villi had grown back 100%--and some people feel better before their villi have grown back--people shouldn't still feel sick once they're completely healed--which is why I started getting tested for other problems.

flagbabyds Collaborator

SORRY I don't remember because I was so little but I think it will be interesting

plantime Contributor

It took a few weeks for all of the junk to clear my system, and I am still healing, but I felt SO MUCH BETTER!!! within a month of starting the diet! My sister felt better two weeks after starting the diet, but she doesn't want to give up bread and pasta, so she goes back on gluten, and has to start all over again. As for me, one crumb of bread is not worth all that pain and misery.

Carriefaith Enthusiast

I can't vote because I still don't feel better

rmmadden Contributor

Great question! I will be interested to see the results as everyone is different.

I didn't vote because I am still healing. I have been gluten-free for the past 3-months and have noticed that I am feeling a bit better (everytime I say that something happens to set me back :angry: ) these past 3-weeks or so. Anyways, all anyone can do is to take each day as it comes and hope that eventually you will be feeling consistently better somewhere down the road.

Best Of Luck To Everyone.

Cleveland Bob :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

I got better in about 3 months. I still experienced some symptoms but in 3 months I was feeling a lot better. Of course even now whenever I accidentally have gluten I feel bad for about 2 weeks. It took me longer then that to really get back to 100% though. That was a long process.

lshaffer1 Newbie

I feel better after only 2 weeks. Better is relative. I only have diarrhea 1x every few days...when I used to have hourly BMs. I feel like nutrition is actually getting back into my body.

anerissara Enthusiast
Better is relative. I only have diarrhea 1x every few days...when I used to have hourly BMs. I feel like nutrition is actually getting back into my body.

Yes...This is my experience too. I feel so much better, but after 2 months gluten-free I am having D once a day (usually) instead of several times. I have also had 4 pretty normal bms! That's 4 more than I'd had in the last year, so I guess that's good!

However I do notice now that if I get some wheat in accidentally....wow! I'm *really* sick. Much worse than before!

Maggie1956 Rookie

I've put 1-3 months. I started on the gluten-free diet last December and in a lot of ways I am feeling a bit better. Still have a long way to go though.

It's a good Poll. :)

Guest gillian502

I've been gluten-free for about 18 months now, and have come to accept that with a life-threatening auto-immune disease, sadly, a person isn't ever really going to be 100%. At least that's been my experience. I am much better, but still unable to work or really get on with life as I previously knew it. I have a few other health probs, too, though, so that factors in as well. As far as the celiac disease, I'd say I'm about 75% better, and have stopped waiting for that "100%" day.

lotusgem Rookie

I started to feel better almost immediately, as far as the bloating, gas and cramps. After two weeks, though, major changes were coming about; things that I never dreamed were related to Celiac disease. Such as: my skin...I had always lamented that it wasn't very healthy looking or feeling. But after just two weeks on the diet it became soft and smooth. Also, I had been going through agony every morning, having to drag myself out of bed because I had widespread muscular back pain that stayed with me all day long. One day, I realized that the pain had TOTALLY vanished, and it has not come back! Also, no more constipation. I'm even starting to gain a little weight. I feel very sorry for the people that have been on the diet but still feel sick. It doesn't seem fair.

I wish for them wellness and happiness!

anerissara Enthusiast

That's exactly how I felt! Within a week or so, no more bloating or gas. The first thing I noticed after that was mood...I wasn't anxious, which had been bad enough to wake me up at night. I hadn't realized how moody I had been until I felt better! Then, my skin cleared up! People keep saying I look healthier. I would never have connected celiac disease and back pain, and didn't notice that the pain was gone at first (I had lower back pain, too)...but boy when I got glutened and it came back I sure noticed! It's good to know that someone else had that experience.

lotusgem Rookie

Dear Anerissara,

thank you so much for your post, because now, I too know that someone else had this experience. Also, during the 7 months that I have been gluten-free, I've had 2 accidents, and both times my reaction was, like yours, worse than before. So this is also something I had wondered about; it's interesting to compare notes!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,200
    • Most Online (within 30 mins)
      7,748

    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...