Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Now

christine d

By christine d
in Coping with Celiac Disease

Recommended Posts

christine d Newbie
christine d
Posted

I was diagnosed 3 months ago and have been on the diet ever since. I get severly and instantly sick if i eat it by mistake. The last few days it seems to be getting worse even though im eating the same foods. Could i suddenly be developing a problem with lactose? thats the only thing that i can think of that i am having out of my normal foods. Anyone know? please help im tired of being sick....thanks christine :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
I was diagnosed 3 months ago and have been on the diet ever since. I get severly and instantly sick if i eat it by mistake. The last few days it seems to be getting worse even though im eating the same foods. Could i suddenly be developing a problem with lactose? thats the only thing that i can think of that i am having out of my normal foods. Anyone know? please help im tired of being sick....thanks christine :(

You are among good company!

Once you master the gluten free diet and gluten is removed, then you can hear some other voices of issues.

It's often recommended to you illiminate dairy along with gluten.

Try to give up dairy for a month or two. After some time, I easily reintroduced dairy and I have no problem now.

It might also be helpful to keep a food diary.

christine d Newbie
christine d
Posted
  • Author
You are among good company!

Once you master the gluten free diet and gluten is removed, then you can hear some other voices of issues.

It's often recommended to you illiminate dairy along with gluten.

Try to give up dairy for a month or two. After some time, I easily reintroduced dairy and I have no problem now.

It might also be helpful to keep a food diary.

Thankyou i will try that. i didnt realize that dairy can also be a problem.....

Erin Elaine Newbie
Erin Elaine
Posted

Just don't get discouraged. I've been gluten free for over a year and it's a learning process. You might still be ingesting something with gluten without realizing it - medications, cosmetics, etc. It took me 4 months on the gluten free diet to realize that low fat sour cream often has gluten. Who knew?

Another thing to remember is if you add something new in excess to replace gluten, you might develop an intolerance. After 6 months on the gluten free diet, I started getting sick again and I couldn't figure out what it was. Then it occurred to me that I had doubled dairy in my diet (I'm in my 20s and I have bone loss - that's how I was diagnosed). My doctor told me to double up on diary for the calcium, but I've discovered on my own that your body is really sensitive after so many years of gluten related damage. Try not to eat too much of one thing, but rather a little of everything (except gluten). I now can't tolerate dairy at all and I had no problems with it before so I really wish I had slowly built up to eating it more frequently. I'm trying not to make the same mistake with soy since that is now my dairy replacement.

Good luck and remember, going gluten free is like learning a new language. It takes time.

ShayFL Enthusiast
ShayFL
Posted

And that lactose is a good bet. You might try cutting it out for a few months and then try again. You may heal enough to tolerate it by then.

rsm Newbie
rsm
Posted

Lactose is a major offender. I had to give up dairy about 6 days into my gluten free diet. Even some oils and other foods may be a problem. Keep track and you can weed out the offenders. For me, no gluten, no dairy, no cottonseed oil. 18 months, I feel much better, not 100% yet but getting there. It takes times. Hang in there.

I even take lactaid with some of my medications that are lactose coated. It helps.

I'm lucky I can tolerate soy, soy ice cream, not bad. Try it!

mslee Apprentice
mslee
Posted

Hi

I'm about on month 3 too,

Had to take dairy out of my diet after going gluten free, have tested it a couple times and got really sick so you might want to consider that....I'm not sure if it is the lactose or casein in dairy that bothers me but my GI said to give it 6 months and try re-introducing it.

I have noticed some of the replacement flours bother me I think it's the soy.

Keep a diet diary, it really helps you will start to notice which foods make you feel sick.

I've had to cut out anything greasy too that helped alot!

good luck!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mysecretcurse Contributor
mysecretcurse
Posted

Dairy can be harsh. I feel mildly uncomfortable if I ingest too much. I'm fine with small amounts though.

It certainly is possible that this could be adding to your troubles but also I imagine you may be accidentally

ingesting small amounts of gluten still. It took me a long time to start learning to be 100% free. There is gluten in so many things I had no clue about. It really is a process of going free and you can't do it overnight.

utahlaura Apprentice
utahlaura
Posted
I was diagnosed 3 months ago and have been on the diet ever since. I get severly and instantly sick if i eat it by mistake. The last few days it seems to be getting worse even though im eating the same foods. Could i suddenly be developing a problem with lactose? thats the only thing that i can think of that i am having out of my normal foods. Anyone know? please help im tired of being sick....thanks christine :(

I can really relate!!! Isn't this "healing process" the most confusing anf frustrating pain in the butt??? AAUUGGHH!!! Good luck to us "healers" and especially God speed!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,600
    • Most Online (within 30 mins)
      7,748
    rita jean
    Newest Member
    rita jean
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.