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Anyone Receiving Social Security Disability?


GregC

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kenlove Rising Star

long time no see, hope your doing ok

I have been on SSI since May 2003. I was accepted right away. (it took a total of 3 months for them to get situated)
I hadn't been able to work since 1996? due to my body being out of control! cool.gif
good luck Sweetie


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kareng Grand Master

Just an FYI - this was a 4 year old thread so the original posters may not still be around.

  • 4 weeks later...
Dustygirl89 Newbie

Is anyone receiving social security disability benefits for their celiac disease? If so how hard was it to get and how long did you have to wait. I have been our of work since February 2008 and thought it might be possible to get this coverage as I cannot work right now and need some income. Can anyone with any knowledge of this share their story.

      In January of 2013, the U.S. Department of Justice (DOJ) ruled in a case in Massachusetts that effectively identified celiac disease and gluten intolerance as legal disabilities.

The story is fairly simple - students at Lesley University, in Cambridge, objected to the available meal plan. Those who had gluten-related health concerns were being offered a regular diet of gluten-containing foods, so they had to either go hungry or find another option. Because they had purchased a meal plan with their tuition, however, they insisted that the school find a better solution.

In the legal case, the school agreed to recognize the gluten issues as disabilities and to accommodate this by providing gluten-free meals, dealing with any cross-contamination problems, and even training the kitchen staff about food allergies.

This is unprecedented and made me wonder what it means for food service as well as the millions of people diagnosed with gluten intolerance and celiac.

      

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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