Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling So Sick After Going gluten-free


climbmtwhitney

Recommended Posts

climbmtwhitney Apprentice

Hello all.

O.K., so I'm completely new at this. My 10-year old daughter and I were diagnosed celiac last month -- which explains SO VERY MUCH!

Anyway, my daughter and I both felt great for about a week after going gluten-free. Then she went through withdrawl for about a week. Now she's feeling better each day. But I am NOT! I feel achy all over, headaches, terrible night sweats, really tired & cold, irritated throat, on and off grumpy, etc. It's been nearly 4 weeks since I went gluten-free. When will this end? My husband (gotta love him anyway) is really losing patience. I know I need to stick with this. I realize everyone is different, but on average, am I in for a few more weeks of this or months? Please help.

Thanks!

Sonya


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

It took me a SOLID 6 weeks to get through all that crap.....then I started feeling MUCH better!!

Hang in their sweetie....there is light at the end of the tunnel. :)

Just be mindful to avoid CC. Dont eat out and muck it up. Stay focused. Tell your husband that once you get through the poop, he will have a new and improved wife. Might even make you more frisky. ;) This might help him be more patient.

Lisa Mentor

Hi Sonya,

I would revisit your diet. Check you meds, vitamins, shampoos, makeup and lipsticks. In other words, anything that can get near or in your mouth.

Do you have a dedicated toaster just you for you and your daughter. Wooded spoons, scratched pots and pans, wooded cutting boards and colanders can be a good source for hidden gluten.

It is near impossible to begin this diet and be knowledgeable of every sneaky source. It took me many months to master the diet, and mistakes were frequent.

If you have any specific concerns, please feel free to ask.

And welcome to the Club!

climbmtwhitney Apprentice

Thanks much for the advice and hints! 6 weeks is a LONG time. Crap.

Here's another question.....If I handle, cook, prepare foods that have gluten for my other 2 children and my husband, is that cross contamination? Would that be different than using a gluten-containing hand creme for example? I did get a gluten-free toaster, cutting board, pots/pans, etc., but I'm still handling the gluten food for others. I do wash my hands a lot when I'm cooking, but should I not be handling the regular food at all? Thanks!

ShayFL Enthusiast

I wouldnt use ANY gluten containing "flours" in your house EVER. That stuff gets everywhere. Personally, I didnt want to have to always worry and feel sick, so I took my whole family gluten-free (including the dogs). There needs to be one place in the world where I can feel safe. It is my home.

Check your fingernails. Dont use teflon that has had ANY gluten foods in it. Same for cutting boards.

Amyleigh0007 Enthusiast

It is much easier to have a completely gluten free home. That's what we did after my son was dx.

Lisa Mentor

I can handle gluten, but I am always careful to wash my hands well and wipe down any counter top that is used.

I don't impose my restrictions on my husband and he is always courteous of mine.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Puddy Explorer

I, too, handle gluten items with no problem. But like Momma Goose, I am very careful to wash my hands and wipe up crumbs.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,612
    • Most Online (within 30 mins)
      7,748

    Heather P
    Newest Member
    Heather P
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.