Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Insurance Issues


wsieving

Recommended Posts

wsieving Contributor

I am so frustrated right now I could scream!!! My husband is a truck driver and makes a pretty good living that way, well enough for me to stay at home (oh bless him). But he had to have shoulder surgery for a work related injury at the very end of July. He has been at home ever since, doing physical therapy, and drawing workman's comp. We can still live on what work comp gives him, but it is tight. We still have to pay his insurance premiums out of that, plus put money back in the savings, put back bill money, then live through the week on the rest.

Well, we pay 75 a week to keep his company insurance active. They raised their premiums this year, and raised copays along with it. Used to be 20 for doc visit, 35 for specialist, 100 for ER, and we paid around 60 a week for family coverage. Now it is 55 to see a specialist. So we were really freaking out, not knowing how many visits DD was going to need, already dipping into savings for several of her pediatrician visits leading up to see the specialist. On top of all of that we know that we are going to have to spend a boat load of money on gas because the specialist is 2 hours away, and our van gets really crappy gas mileage. But we have savings, and were going to make it work.

My Mom suggested that we try to get her on Medicaid. I told her we probably didn't qualify, and that I didn't think that kids who already had insurance would be approved anyway. Well, she insisted that I go apply, that all they could say is no, and if they said yes it would be a huge help. So I went, and to my surprise, they allow it as a secondary insurance meaning they pick up everything my primary doesn't including copays. I was so ecstatic! My caseworker told me her insurance should be effective September 1 which is great because her appt is this coming Friday.

Well, I got a letter in the mail today. I guess I gave to much information at the Medicaid office. I told them what she was needing a specialist for and when her appointment was. Wouldn't you know the letter I got in the mail says her coverage is effective 9/20/08..... her appointment is 9/19/08!!!! I had a nice little pity party for myself, and sucked it up. I just don't understand why these insurance companies have to be so cold hearted.

There was a number on the paper so I called it requesting an earlier date. They said it would take two weeks to move up her date, and that if I wanted to do that then I need to reschedule her appointment... I told her there was no way I could do that, I've already waited 3 weeks to get her in, and she was just weighed a few days ago and lost another couple of ounces. She said that DD should have straight Medicaid until then and that I should have received a card already for that. Which I don't have a card, and don't expect I'll be getting one.

It is just so frustrating because I really had to suck up my pride to even go in there, and then I get treated like I'm begging for handouts in the process. I just hope that I do not have any trouble getting them to cover any additional appointments with the specialist. I guess if that is the case, we'll just have to do what we can, our daughter is what is important here.

Sorry for the long rant, but I really needed to vent.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer

I've just had a summer from H__ dealing with insurance about my own stuff, so I can totally relate. Its to the point that any email about bills or insurance claims triggers anxiety and physical symptoms.

The next thing you know, your appointment and diagnosis on the day before will be used to exclude a prior condition! Maybe you better check on that...

Oh, also I found that the billing office of the various providers are sometimes really helpful and call insurance for you; you might check on that too.

ravenwoodglass Mentor

Check back with Medicaid. They will at times make coverage retroactive and they should cover the appointment. If you have not yet gotten a card call the office and find out why. There are sometimes different levels of coverage and if your insurance has dropped her that would qualify as an emergency need and may get the card or at least the coverage available sooner.

debmidge Rising Star
I am so frustrated right now I could scream!!! My husband is a truck driver and makes a pretty good living that way, well enough for me to stay at home (oh bless him). But he had to have shoulder surgery for a work related injury at the very end of July. He has been at home ever since, doing physical therapy, and drawing workman's comp. We can still live on what work comp gives him, but it is tight. We still have to pay his insurance premiums out of that, plus put money back in the savings, put back bill money, then live through the week on the rest.

Well, we pay 75 a week to keep his company insurance active. They raised their premiums this year, and raised copays along with it. Used to be 20 for doc visit, 35 for specialist, 100 for ER, and we paid around 60 a week for family coverage. Now it is 55 to see a specialist. So we were really freaking out, not knowing how many visits DD was going to need, already dipping into savings for several of her pediatrician visits leading up to see the specialist. On top of all of that we know that we are going to have to spend a boat load of money on gas because the specialist is 2 hours away, and our van gets really crappy gas mileage. But we have savings, and were going to make it work.

My Mom suggested that we try to get her on Medicaid. I told her we probably didn't qualify, and that I didn't think that kids who already had insurance would be approved anyway. Well, she insisted that I go apply, that all they could say is no, and if they said yes it would be a huge help. So I went, and to my surprise, they allow it as a secondary insurance meaning they pick up everything my primary doesn't including copays. I was so ecstatic! My caseworker told me her insurance should be effective September 1 which is great because her appt is this coming Friday.

Well, I got a letter in the mail today. I guess I gave to much information at the Medicaid office. I told them what she was needing a specialist for and when her appointment was. Wouldn't you know the letter I got in the mail says her coverage is effective 9/20/08..... her appointment is 9/19/08!!!! I had a nice little pity party for myself, and sucked it up. I just don't understand why these insurance companies have to be so cold hearted.

There was a number on the paper so I called it requesting an earlier date. They said it would take two weeks to move up her date, and that if I wanted to do that then I need to reschedule her appointment... I told her there was no way I could do that, I've already waited 3 weeks to get her in, and she was just weighed a few days ago and lost another couple of ounces. She said that DD should have straight Medicaid until then and that I should have received a card already for that. Which I don't have a card, and don't expect I'll be getting one.

It is just so frustrating because I really had to suck up my pride to even go in there, and then I get treated like I'm begging for handouts in the process. I just hope that I do not have any trouble getting them to cover any additional appointments with the specialist. I guess if that is the case, we'll just have to do what we can, our daughter is what is important here.

Sorry for the long rant, but I really needed to vent.

Note to all: I don't know what state in US you are in, keep in mind that not all doctors take Medicaid patients. Just to be safe, call the doctor to see if he/she accepts Medicaid.

More and more doctors are turning away Medicaid (here in NJ).

Here in NJ, all the doctors which take Medicaid are in the inner cities and perhaps only a handful of them are probably competent.

I am sure everything will work out in the meanwhile and hubby will be back at work and doing fine. I have had shoulder surgery and know how long and painful the physical therapy portion is. Best wishes. D.

wsieving Contributor

Ok, well I guess I was getting excited over nothing. It is so hard to really freak when there is a glitch and you are already stressed out over a sick child. I called Children's Mercy today and spoke with someone who assured me that even without a card if her Medicaid was approved that she would be covered. So thank God we should be ok. We would have made it work even if we only had our primary insurance, but it is going to be so much easier without having to worry about the horrid copays.

I really hate the new way that Missouri handles medicaid. I suppose that if I were used to it, the new system wouldn't bother me, but it is so confusing now with the different branches of care. Thanks for listening to me rant!

debmidge Rising Star
Ok, well I guess I was getting excited over nothing. It is so hard to really freak when there is a glitch and you are already stressed out over a sick child. I called Children's Mercy today and spoke with someone who assured me that even without a card if her Medicaid was approved that she would be covered. So thank God we should be ok. We would have made it work even if we only had our primary insurance, but it is going to be so much easier without having to worry about the horrid copays.

I really hate the new way that Missouri handles medicaid. I suppose that if I were used to it, the new system wouldn't bother me, but it is so confusing now with the different branches of care. Thanks for listening to me rant!

As long as you have Medicaid approval but I thought you had a coverage "start date" issue?

Here in NJ (my 87 yr old mother in law is on full Medicaid) most doctors who still take full Medicaid are in

the areas of the inner cities where there are drug dealers, shoot outs, robberies, etc.

My SIL who cares for her mother refuses to drive into those areas and I don't blame her.

My MIL's primary care doctor refuses to take Medicaid and HMO's too. His practice is

in a wealthier area of NJ (he used to be a few blocks from my MIL for many years and he

moved up into the hills).

I had a shoulder injury: torn totator cuff...Is that what your husband ended up with too?

Hopefully your husband will be back to work soon - most workers' compensation insurance

companies require the employer to put the person back to work asap (on a job that would

be compatible with their injury/illness until they have a full recovery). These are

mandatory "return to work programs" . Your husband may want to look into that with his

employer as he'll get a partial workers' compensation payment and pay from his

company and it'll be like he's back to work. Then you will not have to worry so much

and deal with govt. programs.

I must have missed your info, but how often does baby need to see pediatrician?

wsieving Contributor

As long as you have Medicaid approval but I thought you had a coverage "start date" issue?

See, this is what is so confusing and complicated about the new way Missouri Medicaid is. There is straight Medicaid, which mostly nobody has, then once you are approved you have to choose one of 3 or 4 difference insurance carriers (Health Care USA, Mercy Care, Missouri Care, and I think maybe another), and then they give you another effective date. It is a huge mess, and I really think they are heading in a good direction, but need to improve it before it is truly better than the old system.

Here in NJ (my 87 yr old mother in law is on full Medicaid) most doctors who still take full Medicaid are in

the areas of the inner cities where there are drug dealers, shoot outs, robberies, etc.

My SIL who cares for her mother refuses to drive into those areas and I don't blame her.

My MIL's primary care doctor refuses to take Medicaid and HMO's too. His practice is

in a wealthier area of NJ (he used to be a few blocks from my MIL for many years and he

moved up into the hills).

This is a real shame. We have to be really careful which company we choose here because now that there are 3 or 4 branches of our version of Medicaid most docs only take one, while another doc you need to see may take another. I will be so glad when our government finally makes a way for people that truly need help to be able to get it and use it when they need to.

I had a shoulder injury: torn totator cuff...Is that what your husband ended up with too?

Hopefully your husband will be back to work soon - most workers' compensation insurance

companies require the employer to put the person back to work asap (on a job that would

be compatible with their injury/illness until they have a full recovery). These are

mandatory "return to work programs" . Your husband may want to look into that with his

employer as he'll get a partial workers' compensation payment and pay from his

company and it'll be like he's back to work. Then you will not have to worry so much

and deal with govt. programs.

DH had a distal clavicle resection with decompression, otherwise known as the Mumford procedure. Basically his clavicle bone was digging into his rotator cuff, doc said another couple of months and it would have been torn b/c it was really swollen and hemoraging. So they sawed off the tip of his clavicle bone and removed burrs. He was really lucky because they sent him to a surgeon who was skilled enough to do this the arthroscopic way instead of going in with a scalpel. This cuts down on his recovery time, but we still have at least another month of physical therapy. He is a truck driver, but the dedicated route he was on required him to unload his trailer at every stop. Since he has physical therapy 3 times a week, there isn't even an option for light duty anyway (his home office is 2 hours away, so couldn't even do office work), and if he were only driving or doing office type work, he would be making less than he does on work comp. Our biggest struggle here is that we are living on his income alone. He has always made really great money over the road, so I have been so blessed to be able to stay home. It is very important to us that our kids do not have to go to daycare. I know this isn't everybody's ideal lifestyle, but it is what we are comfortable with, and until he was hurt at work, we never required anyone's help or government assistance to make ends meet. I have tried to get temporary work while he is at home, but nobody around here wants to hire someone as temporary as I need the job to be. So we're kind of stuck, but hopefully at his next doc appt he will be released to full duty.

I must have missed your info, but how often does baby need to see pediatrician?

She only sees him once per month, but we went through a stretch before getting her specialist referral that she was going weekly. We won't know until Friday how often our trips to KC are going to be. I've never been through anything like this before and really do not know what to expect.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sarabmore Newbie

I feel your pain on this! My employer does not offer health insurance. I have been on COBRA for the past 18 months. My coverage expires in October. I have been shopping around for insurance for quite some time. If I went to the state, I would pay $500 a month! I have a pre-existing condition (hypothyroid) and that makes it IMPOSSIBLE to get insurance on your own. I was paying $280 a month on COBRA, but it was good coverage. Now, I applied to Aetna. In order to have them, I have to choose a high deductible and I will not be covered for thyroid visits for 6 months. Other company's denied me without even giving me a chance to apply. I am 23 years old and I can't find insurance that is afforable. I am a college student and I live on my own and pay for my own school. I think it is crazy that I can not find someone to cover me. I sent my money and application into Aetna on September 1st and I have not heard anything from them. I am counting on being denied. A young girl with thyroid conditions and celiac disease. Too much of a risk. Heartless.

I am so frustrated right now I could scream!!! My husband is a truck driver and makes a pretty good living that way, well enough for me to stay at home (oh bless him). But he had to have shoulder surgery for a work related injury at the very end of July. He has been at home ever since, doing physical therapy, and drawing workman's comp. We can still live on what work comp gives him, but it is tight. We still have to pay his insurance premiums out of that, plus put money back in the savings, put back bill money, then live through the week on the rest.

Well, we pay 75 a week to keep his company insurance active. They raised their premiums this year, and raised copays along with it. Used to be 20 for doc visit, 35 for specialist, 100 for ER, and we paid around 60 a week for family coverage. Now it is 55 to see a specialist. So we were really freaking out, not knowing how many visits DD was going to need, already dipping into savings for several of her pediatrician visits leading up to see the specialist. On top of all of that we know that we are going to have to spend a boat load of money on gas because the specialist is 2 hours away, and our van gets really crappy gas mileage. But we have savings, and were going to make it work.

My Mom suggested that we try to get her on Medicaid. I told her we probably didn't qualify, and that I didn't think that kids who already had insurance would be approved anyway. Well, she insisted that I go apply, that all they could say is no, and if they said yes it would be a huge help. So I went, and to my surprise, they allow it as a secondary insurance meaning they pick up everything my primary doesn't including copays. I was so ecstatic! My caseworker told me her insurance should be effective September 1 which is great because her appt is this coming Friday.

Well, I got a letter in the mail today. I guess I gave to much information at the Medicaid office. I told them what she was needing a specialist for and when her appointment was. Wouldn't you know the letter I got in the mail says her coverage is effective 9/20/08..... her appointment is 9/19/08!!!! I had a nice little pity party for myself, and sucked it up. I just don't understand why these insurance companies have to be so cold hearted.

There was a number on the paper so I called it requesting an earlier date. They said it would take two weeks to move up her date, and that if I wanted to do that then I need to reschedule her appointment... I told her there was no way I could do that, I've already waited 3 weeks to get her in, and she was just weighed a few days ago and lost another couple of ounces. She said that DD should have straight Medicaid until then and that I should have received a card already for that. Which I don't have a card, and don't expect I'll be getting one.

It is just so frustrating because I really had to suck up my pride to even go in there, and then I get treated like I'm begging for handouts in the process. I just hope that I do not have any trouble getting them to cover any additional appointments with the specialist. I guess if that is the case, we'll just have to do what we can, our daughter is what is important here.

Sorry for the long rant, but I really needed to vent.

debmidge Rising Star
This is a real shame. We have to be really careful which company we choose here because now that there are 3 or 4 branches of our version of Medicaid most docs only take one, while another doc you need to see may take another. I will be so glad when our government finally makes a way for people that truly need help to be able to get it and use it when they need to.

You're right, that's confusing......

I had a shoulder injury: torn totator cuff...Is that what your husband ended up with too?

Hopefully your husband will be back to work soon - most workers' compensation insurance

companies require the employer to put the person back to work asap (on a job that would

be compatible with their injury/illness until they have a full recovery). These are

mandatory "return to work programs" . Your husband may want to look into that with his

employer as he'll get a partial workers' compensation payment and pay from his

company and it'll be like he's back to work. Then you will not have to worry so much

and deal with govt. programs.

DH had a distal clavicle resection with decompression, otherwise known as the Mumford procedure. Basically his clavicle bone was digging into his rotator cuff, doc said another couple of months and it would have been torn b/c it was really swollen and hemoraging. So they sawed off the tip of his clavicle bone and removed burrs. He was really lucky because they sent him to a surgeon who was skilled enough to do this the arthroscopic way instead of going in with a scalpel. This cuts down on his recovery time, but we still have at least another month of physical therapy. He is a truck driver, but the dedicated route he was on required him to unload his trailer at every stop. Since he has physical therapy 3 times a week, there isn't even an option for light duty anyway (his home office is 2 hours away, so couldn't even do office work), and if he were only driving or doing office type work, he would be making less than he does on work comp. Our biggest struggle here is that we are living on his income alone. He has always made really great money over the road, so I have been so blessed to be able to stay home. It is very important to us that our kids do not have to go to daycare. I know this isn't everybody's ideal lifestyle, but it is what we are comfortable with, and until he was hurt at work, we never required anyone's help or government assistance to make ends meet. I have tried to get temporary work while he is at home, but nobody around here wants to hire someone as temporary as I need the job to be. So we're kind of stuck, but hopefully at his next doc appt he will be released to full duty.

I must have missed your info, but how often does baby need to see pediatrician?

She only sees him once per month, but we went through a stretch before getting her specialist referral that she was going weekly. We won't know until Friday how often our trips to KC are going to be. I've never been through anything like this before and really do not know what to expect.

I had burr removal during my rotator cuff surgery too. The surgery and after surgery wasn't painful but the physicla therapy was. I went back to work after two weeks but I do office work, but I was able to drive my car back and forth, but it was a 30 minute drive. The length of the drive is important too. I hope your husband can go back to his work even when he's healed. That lifting could be too much on his shoulder - when I carry too much or have to yank at file folders in file cabinet at work my shoulder hurts.....

It would have been a great idea if the employer could put him on "office" duty during the Physical therapy time. The employer is not supposed to pay an injured employer less money while they are on "lite duty" - that's the point of the employer having a "back to work" program. It's supposed to be partial WC payment and the employer is to make up the difference. Now don't quote me, but that's a NJ WC law; I don't know about your state. The Missouri State Dept. of Insurance could tell you what the law is. My Physical Therapy took 6 months - which was longer than normal. We are a one-income household too, but no children. My husband's celiac & other health problems keep him from working.

Thought for the future: if you need a temp job, never tell employer just how long you need the job. PM me if you wish to talk about this strategy. Another consideration if your huband cannot ever go back to truck driving again: start a business from home --one that you and your husband can do as a team (if that's what you want). This way you can work from home and he can do the "foot" work that will need to be done (visiting customers, etc.).

wsieving Contributor

A home business would be AWESOME! I am thinking of getting into photography when we get income tax. I really have an eye for it, and it is the only thing I can see myself being happy doing from home. I know there are a lot of people who do this, but I am hoping I can come up with a unique kind of service that other photographers do not offer. I doubt it would bring in enough revenue for him to stay home too though. Who knows, but I am still eager to try.

buffettbride Enthusiast
I am a college student and I live on my own and pay for my own school. I think it is crazy that I can not find someone to cover me. I sent my money and application into Aetna on September 1st and I have not heard anything from them. I am counting on being denied. A young girl with thyroid conditions and celiac disease. Too much of a risk. Heartless.

If you are a student, shouldn't your college have a student health plan?

Jestgar Rising Star
It is just so frustrating because I really had to suck up my pride to even go in there...

I just want to point out, that as a taxpayer who ends up paying for the under-insured, YOU ARE DOING ME A FAVOR BY GETTING MEDICARE. The only pride involved here is you being proud enough to take the extra steps here to keep your family healthy, and out of the emergency room.

debmidge Rising Star
A home business would be AWESOME! I am thinking of getting into photography when we get income tax. I really have an eye for it, and it is the only thing I can see myself being happy doing from home. I know there are a lot of people who do this, but I am hoping I can come up with a unique kind of service that other photographers do not offer. I doubt it would bring in enough revenue for him to stay home too though. Who knows, but I am still eager to try.

...my favorite are the specialty photography studios which let you "dress up" in costumes for photos. I like "period costumes." But you could include rock star costumes (with display-type musical instruments) - that would appeal to young and the "young at heart."

You'd have to compete with the "baby photo studios" by taking photos of children on their birthdays from the youngest age new born. It could be a novelty in that the parents would have a whole album of that child of their child of what they looked like every year - on their birthday (except perhaps original date of birth). You'd send them a postcard about 8 weeks before their birthday -- Or every Autumn for Halloween costmes (or traditional Christmas photo). Some quirky angle is needed.

A friend of mine is divorced and supported her 4 children by selling window treatments from home. This would be blinds/shades and curtains/drapes. Her mom would babysit while she was out selling in people's homes and she'd send an installer to put the stuff up. Of course she had to have full insurance. Eventually she wound up doing businesses as well as residential work. It worked for her. If her husband & her stayed married, he'd be doing the installation or at least be home to watch the children while she was out selling. That's how they handled it when they were married.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.