Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Develop Lactose Intolerance?


Blueberry

Recommended Posts

Blueberry Newbie

Hi everyone. I've been gluten-free for about 6 years now, self-diagnosed. I have heard and read that celiac disease and lactose intolerance go hand in hand, and that after being diagnosed with celiac, you can develop a lactose intolerance. I love diary, (ice cream, chocolate, etc.) and eat alot of it, since it is something that I can eat. Well, until recently that is. Just before the summer, I started noticing symptons similiar to celiac, but different. I am very strict with the glunten, since I am very sensitive, and even the tiniest bit will bother me. I finally traced it back one day to dairy, since the only thing I had eaten that was different, was chocolate milk. I also started noticing it with ice cream, since about 5 min after eating it, I would get terrible shooting pains in my stomach, then have to run to the bathroom shortly afterwards. I have been noticing these symptons more with other diary products, but it is hard to give up, since it will be another thing I can't eat. I have no idea if this is lactose, or something else? Has anyone had any experience with this? Will lactaid pills help me? Or is it like the celiac, where I just have to stay away from it? Should I go see my doctor, and have a test done? Any suggestions, advice?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

It can be lactose, casein, or dairy in general. However, the best thing you can do for yourself is to give your digestive system a break, by not eating any dairy for awhile. A number of people find that over time, they regain the ability to handle dairy to some degree.

However, have you checked that the ice cream, chocolate, etc you've been eating is gluten-free? There are dairy-free chocolate products too, though many contain soy, which many find they cannot eat. There have been many threads about that, which a search should bring up for you. Also, there are dairy-free ice creams, like the ones made with coconut, which are very yummy. You can of course make your own too. A soft sort of ice cream can be made in minutes, using a blender, and it works well dairy-free too.

ShayFL Enthusiast

I agree. Cut the dairy for a trial period of at least a few months to see if those symptoms go away. You can then challenge dairy by eating some pure dairy like milk or cheese. Stay away from processed foods like chocolate milk and ice cream for the challenge (because they have other ingredients you could react to). This way you can know for sure if dairy is a problem.

I myself just last week have challenged dairy. Yogurt. And now I have vertigo again. It is the only new thing I added back in within the last 2 weeks. So I am off dairy again and likely forever. I do fine without it. The Coconut ice cream by Turtlemountain is delicious!!

aikiducky Apprentice

If you haven't had problems with dairy before, and it has just started, I doubt if it is connected to celiac. Some celiacs are lactose intolerant in the beginning of the gluten free diet because their intestines aren't healed yet but in your case that wouldn't make as much sense I'd think. So it could very well be just plain old lactose intolerance which you can also develop with age just because you're getting older and producing less of the enzyme that breaks down lactose.

So I'll just disagree slightly with the previous posts... If you are just simply lactose intolerant it could well be that you are fine with milk products as long as you take lactaid or a similar product with the lactase enzyme that you lack. So you could start with trying that, and then if the issues don't resolve, try cutting out milk completely.

Pauliina

JulesNZN Newbie

I was told by several physicians that the ingredients in grain assist in the digestion of dairy. I have been lactose intolerant since I went totally gluten free, it was about a year later that it became obvious to me that it was the problem. Try a lactose medication when you eat dairy, see if it helps. It takes about 2 or 3 days to see results, but it works for me.

Good luck! :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Blood Test for Celiac wheat type matters?

    2. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    4. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    5. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,145
    • Most Online (within 30 mins)
      7,748

    Marsu
    Newest Member
    Marsu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities.  Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement.  130 times the safe upper limit.  130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms per drop.  It takes 20 drops to reach the safe upper limit. In the US the Safe upper limit is 1100 mcg.  In Europe 600 mcg and in Japan 3000 mcg ( 3 mg).
    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.