Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Extreme Sleepiness


Beth in NC

Recommended Posts

Beth in NC Contributor

Yesterday I could not stay awake unless I was up and walking. I've had this one other day, a few weeks ago, and I just napped....two naps of two hours each and I was STILL tired. Yesterday I had a lot to do so I fought it, finally getting a Starbucks Latte at 5 p.m. so the caffiene would help.

It just dawned on me today that this might be part of me being glutened. Friday I had slight D, the sleepiness was Saturday and today I have been sore all over and had a stomach ache.

I do not know what I ate, if that is what this is. It would have had to come from CC, because I ate nothing that outright had gluten.

Could the sleepiness be from a glutening? It was like I was drugged!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Crystal Brown Rookie

I just had sort of a "wake up" call - literally..

I was diagnosed back in June of 2007 and followed the gluten-free diet to a T. The only problem.. I kept losing weight, kept feeling TIRED and was still having gastro symptoms..

I ended up in the hospital about 3 weeks ago.

- I was severely malnourished

- Weighed a whopping 93 pounds

- All my vitamin levels were on the floor

Wellllll... there was one little thing I never gave up after my diagnosis. Starbucks.

I always had them wash the blender with scorching hot water.. One day they even gave me my own blender container for my frapp drink.. Well, turns out the Starbucks was the culprit. The simple fact was no matter how hard they tried to keep things free of cross-contamination, the gluten was still sneaking in there. I suspect it was the lid they used or they may have been using the designated container during high traffic times.

So, I'm not sure how often you have Starbucks (I had them everyday), but it could be possible that you're getting contaminated from their equipment. Not so much the drink itself, but it is virtually impossible for them to keep the equipment free of gluten. Especially during the holidays when the spiced hot beverages arrive.

It's just a suggestion :P

How often do you get the sleepy feeling?

YoloGx Rookie

Sounds like a good piece of detective work to me!

Bea

Beth in NC Contributor

It couldn't be that because it was my first one since going gluten-free. The sleepiness started BEFORE I had the latee and was the reason I got it.

I probably won't do it again though because even with a lactaid, my belly gurgled like crazy afterwards.

SillyBoo Newbie

Yes, gluten makes me extremely sleepy. But I found that sleepiness also results from eating anything else to which I have developed a sensitivity, subsequent to the gluten, such as dairy, soy, beans, nightshades, and chocolate. You might want to check out what other foods may be causing the problem, in addition to continued sleuthing into possible sources of gluten (lotion, shampoo, toothpaste, and such).

hawaiimama Apprentice

Oh the starbucks makes perfect sense! We have an espresso maker at home and it sucks in little bits of the drink before until you seem it out (not sure I'm saying this right).

The last time I went to buckies I had a HORRID stomach ache and I realized they had done my friends soy drink before mine. Soy makes me feel SO gross.

And yes, I get sleepy. If fact before I was dx, I used to eat cereal at night because it would make me sleep DOH.

Gaye of PA Apprentice

After taking gluten out of my diet, I was able to realize that CORN makes me dead-dog sleepy. So I'm avoiding that right now, although I don't seem to notice it when I get small amounts, such as in xanthan gum. But if I should have some corn chips or a corn tortilla, it zonks me out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Amyleigh0007 Enthusiast

Yes! I get very tired. If fact, once I had to call my husband who was out on the golf course, to come home so he could watch the kids. I was so tired and kept falling asleep. It was after a gluten challenge. I had been gluten free for about a month and I ate three chicken strips to test myself. I won't be testing myself again.

susanm Apprentice

I always thought that the sleepy feeling I'd get after eating was normal "after-eating groggies". Then I started noticing it was only after I had a lot of pasta that I felt like that (which I love!!)

Do you mean I really have to give up Starbucks when I go gluten free?? :( I'm still waiting for the endoscopy, but I know I have gluten sensitivity.

MNBeth Explorer
Do you mean I really have to give up Starbucks when I go gluten free?? :( I'm still waiting for the endoscopy, but I know I have gluten sensitivity.

Well, I wouldn't think plain coffee would be a problem, but blender drinks would be hard to trust, as the blenders get used for gluten ingredients. As far as steamed or frothed drinks, I'd think they'd be okay, too, unless you have soy or dairy issues.

And, yes, I can hardly hold my head up when I've been glutened.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748

    Betty Siebert
    Newest Member
    Betty Siebert
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.