Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Join Our eNewsletter:
    Support Our Content
    eNewsletter
    Donate

Please Point Me To An Online Gf Letter ...


kactuskandee

Recommended Posts

kactuskandee Apprentice

Hi,

I'm sure there is one, and maybe even on this site, but I can't find a form letter you can send to food/drug manufactures online asking if certain products/ingredients they produce are gluten-free or not. I've written some and just came right out and asked if a product was gluten free, which obviously is not enough. Some answer me back, some don't and I suspect it is because they need more specifics.

Thank you so much in advance if you have a link,

Kandee


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

I simply ask if the product has wheat, rye, barley, or oats. It doesn't need to be more complicated than that unless you also don't eat products made in a facility or on a line that has gluten products. And the all you'd do is add that question. Also, I'd call when possible.

Some comapnies don't answer no matter how many specifics you give or how many times you ask. Don't spend your money with them

richard

angel-jd1 Community Regular

Here is a letter that I use sometimes, I found it somewhere and changed a few things in it:

Madam/Sir,

I have Celiac Disease and am unable to eat foods with gluten in them.

Gluten can be found in wheat, rye, barley and oats and their

byproducts. Celiacs do not have problems with corn, rice, tapioca or

potatoes. Can you list for me foods that you make which are gluten

free? Things to look out for and consider are foods containing any

kind of:

whole grain wheat, rye, barley or oats

regular flour (white, unbleached or whole wheat)

rye flour

oats or oat flour

malt

I also need to be concerned about ingredients which may have a

variety of sources, like:

modified food starch (can your supply come from wheat, rye, barley or

oats?)

natural flavors (if HVP is included it may come from toxic grains)

spices (which often use flour as an anti-caking agent without listing

the flour)

vinegar (if its source is one of the forbidden grains, we prefer to

avoid it)

alcohol (same as vinegar)

caramel coloring

Finally, another concern is the environment in which the food is

manufactured and packaged. We need to know if a food is produced on

the same line as any other item which contains any of the above

problem foods, since even trace amounts of gluten damage a celiac's

body, and cross-contamination would be an issue in this situation.

Thank you in advance for your careful research of these issues, and I

look forward to hearing from you.

Sincerely,

Sometimes I just use this:

Dear ______________

I was wanting to know if your products contain gluten? Thank you for your time and careful research.

-_____________

The first letter seems too long, I seem to get better responses from something short and to the point. Hope it helps you out.

-Jessica :rolleyes:

kactuskandee Apprentice

Yes Jessica, That is an enormous help. Just what I was looking for...A keeper for sure. Thank you so much..

My newest item I bought was Sassafras tea (instant) sassafrastea.com -and it listed carmel and natural flavorings. I wondered how to go about asking them about these. Is all carmel gluten based, or does it depend on the source as with "natural flavors"? (confused)

I see what you mean about taking the KISS (keep it simple stupid) approach, and sometimes that is the best way..

Thanks for the advise richard and Jessica...

Kandee

lovegrov Collaborator

Caramel color in the U.S. is in fact always gluten-free. Many people no longer consider it anything to be concerned about. You definitely need to check on natural flavors, although that is almost always gluten-free. If you can, I'd just call their toll-free number and ask. If the company isn't cooperative, find another brand.

richard

celiac3270 Collaborator

Yes--I find that the simpler the letter the better. The only thing I say besides is it gluten-free is that it's really important for me to know because I have celiac disease or because I have a dietary restriction, etc. This way they don't take it lightly, though I wouldn't expect they'd give me wrong information.

The people there, I would expect, just type "gluten" into a database and find something on it--they don't go through the ingredients and investigate into what the modified food starch is made of--so I prefer to keep it simple. I agree :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to yellowstone's topic in Coping with Celiac Disease
      3

      Has someone experienced discrimination because of their illness?

    2. - Scott Adams commented on Scott Adams's article in Spring 2026 Issue
      2

      When Home Isn't Safe: Celiac Disease, Cross-Contamination, and the Right to a Gluten-Free Space

    3. - Flash1970 commented on Scott Adams's article in Spring 2026 Issue
      2

      When Home Isn't Safe: Celiac Disease, Cross-Contamination, and the Right to a Gluten-Free Space

    4. - Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease

    5. - suek54 replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      46

      Shaking/Tremors and Off Balance

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,941
    • Most Online (within 30 mins)
      10,442

    Sensible
    Newest Member
    Sensible
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Regarding the discrimination you asked about, it is a lot more easy now to discriminate when you're supposed to answer whether or not you have celiac disease on job applications, and from what I've seen, MANY companies now include this question on their applications:  
    • Russ H
      People with coeliac disease have an altered gut biome compared with those who do not, which may be associated with gut inflammation. Although the gut biome recovers on a gluten-free diet, there are still significant differences at 2 years. In a mouse model of coeliac disease, supplementation with the soluble dietary fibre, inulin, increased the number of beneficial microbes and reduced gut inflammation. Inulin is used by some plants as carbohydrate store, it is a complex polymer of fructose in the same way that starch is a complex polymer of glucose. Inulin cannot be digested by humans but serves as food source for some gut bacteria. Inulin is present in many vegetables but the richest sources are (g/100g): chicory root 41.6 Jerusalem artichoke 18.0 dandelion greens 13.5 garlic 12.5 leeks 6.5 onions 4.3 The Scientist: Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease    
    • suek54
      Hi Ginger38 Well done you for pushing through the pain barrier of eating gluten, when you know each mouthful is making you poorly.  I went through the same thing not long ago, my biopsy was for dermatitis herpetiformis. Result positive, so 95% certain I have gut coeliacs too. But my bloods were negative, so very pleased I went for the gluten challenge and biopsy.  Hang on in there. Sue
    • Scott Adams
      When symptoms like fatigue, brain fog, or low energy change how we interact, others sometimes misinterpret that as disinterest, rudeness, or negativity—especially if they don’t understand the underlying condition. That doesn’t make their behavior okay, though. You don’t deserve to be treated poorly for something outside your control. Often, it reflects a lack of awareness or empathy on their part, not a fault in you. It can help to explain your condition to people you trust, but it’s also completely valid to set boundaries and distance yourself from those who respond with hostility. Your experience—and your reaction to it—makes sense. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Being HLA-DQ2 positive doesn’t diagnose celiac disease by itself, but it does mean he has the genetic potential for it, so it absolutely deserves careful follow-up if symptoms or concerns are present. You’re right that celiac is often downplayed, but it’s a serious autoimmune condition—not an allergy—and it can affect the brain, nervous system, and overall health if untreated. Given everything your son has been through, you’re doing the right thing by advocating and asking questions. I would strongly recommend getting a full copy of his records, and if possible, consulting a gastroenterologist who understands celiac disease well so you can get clear answers and, if needed, proper testing and monitoring.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.