Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Odd (oppositional Defiance Disorder)


Fiddle-Faddle

Recommended Posts

Fiddle-Faddle Community Regular

I've noticed a couple of posts on this issue, and thought I'd throw the question out there in case any of you have come up with research, or links, or if you just have your own observations to share!

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dreamindarlin Rookie

Well my son was diagnosed about 2 years ago. I'm not sure if it is related to Celiac's or not. We are still unsure if our son even has Celiac's. But I'm intrested to see what others have to say.....

momofboys05 Newbie
I've noticed a couple of posts on this issue, and thought I'd throw the question out there in case any of you have come up with research, or links, or if you just have your own observations to share!

Thanks!

What is oppositional defiance disorder? Where can i get info on it? My son is going in for a biospy on thursday to check for celiac disease.

Fiddle-Faddle Community Regular
What is oppositional defiance disorder? Where can i get info on it? My son is going in for a biospy on thursday to check for celiac disease.

Oppositional Defiance Disorder seems to be an official diagnosis of a neuro/mental condition that results in an abnormal state of constant defiance and hostility.

I do think that doctors, especially psychiatrists, are awfully quick to paste labels that result in medication--and psych medications rarely address the cause of the symptoms; instead they mask the symptoms, so the cause is still there.

So I think it is perfectly possible that most diagnosed cases of oppositional defiance have their root causes in environment and food intolerances. And I bet a study on whether these children were breastfed or formula-fed would be fascinating, especially in the light of recent information about tainted milk from China--as melamine causes neuro problems.

In fact, I knew a little boy who was diagnosed with depression AND ODD; he had practically NO physical exercise or outside time whatsoever. He spent every afternoon playing Gameboy. When I spoke with his mother and suggested exercise and fresh air (I'm SO old-fashioned :rolleyes: ), she said, "Oh, but we have him signed up for golf lessons once a week!"

And his father is a doctor. :blink:

Anyway, this is from the Mayo Clinic:

*****************************

Oppositional Defiance Disorder

Symptoms

It may be tough at times to recognize the difference between a strong-willed or emotional child and one with oppositional defiant disorder. Certainly there's a range between the normal independence-seeking behavior of children and oppositional defiant disorder. It's normal to exhibit oppositional behaviors at certain stages of a child's development.

However, your child's issue may be oppositional defiant disorder if your child's oppositional behaviors:

* Are persistent

* Have lasted at least six months

* Are clearly disruptive to the family and home or school environment

The following are behaviors associated with ODD:

* Negativity

* Defiance

* Disobedience

* Hostility directed toward authority figures

These behaviors might cause your child to regularly and consistently show these symptoms:

* Frequent temper tantrums

* Argumentativeness with adults

* Refusal to comply with adult requests or rules

* Deliberate annoyance of other people

* Blaming others for mistakes or misbehavior

* Acting touchy and easily annoyed

* Anger and resentment

* Spiteful or vindictive behavior

* Aggressiveness toward peers

* Difficulty maintaining friendships

* Academic problems

Related mental health issues

Oppositional defiant disorder often occurs along with other behavioral or mental health problems such as attention-deficit/hyperactivity disorder (ADHD), anxiety or depression. The symptoms of ODD may be difficult to distinguish from those of other behavioral or mental health problems.

It's important to diagnose and treat any co-occurring illnesses because they can create or worsen irritability and defiance if left untreated. Additionally, it's important to identify and treat any related substance abuse and dependence. Substance abuse and dependence in children or adolescents is often associated with irritability and changes in the child or adolescent's usual personality.

Causes

There's no clear cause underpinning oppositional defiant disorder. (2) Contributing causes may include:

* The child's inherent temperament

* The family's response to the child's style

* A genetic component that when coupled with certain environmental conditions

Fiddle-Faddle Community Regular

I just wanted to add that many people on this board have posted about their children's behavior, describing behavior that sounds just like the description above (but with no diagnosis or label attached to it), and they have reported that the problems miraculously disappeared on the gluten-free diet.

This is anecdotal evidence,not "scientific research." But I consider anecdotal evidence to have a lot of weight when there are no products (i.e., DRUGS) being studied or pushed, as most drug studies are funded by the pharmaceutical industry, who have everything ($$) to gain from reporting that their drug works.

I read in Discover magazine that it is common practice to have patients in a study who request to stop taking their drug because of severe adverse side effects--and these patients are reported on the study as non-compliant. Their adverse side effects are never listed, because they didn't complete the study.

The same article reported that the makers of Lipitor reported as successful the outcome of patients who DIED during the study, because their cholesterol was lowered to acceptable levels. :blink:

So I am VERY wary of any drug these days, and doubly wary of psych drugs for children. Remember, there are NO long-term studies on pediatric use of psych drugs--and, if the only studies are funded by the companies who make them, even the short-term studies might be questionable.

RiceGuy Collaborator
I just wanted to add that many people on this board have posted about their children's behavior, describing behavior that sounds just like the description above (but with no diagnosis or label attached to it), and they have reported that the problems miraculously disappeared on the gluten-free diet.

This is anecdotal evidence,not "scientific research." But I consider anecdotal evidence to have a lot of weight when there are no products (i.e., DRUGS) being studied or pushed, as most drug studies are funded by the pharmaceutical industry, who have everything ($$) to gain from reporting that their drug works.

I read in Discover magazine that it is common practice to have patients in a study who request to stop taking their drug because of severe adverse side effects--and these patients are reported on the study as non-compliant. Their adverse side effects are never listed, because they didn't complete the study.

The same article reported that the makers of Lipitor reported as successful the outcome of patients who DIED during the study, because their cholesterol was lowered to acceptable levels. :blink:

So I am VERY wary of any drug these days, and doubly wary of psych drugs for children. Remember, there are NO long-term studies on pediatric use of psych drugs--and, if the only studies are funded by the companies who make them, even the short-term studies might be questionable.

I whole-heartily agree. But if we speak too loudly, "they" might say we're ODD too.

Besides gluten, there are things like artificial sweeteners, food dyes, MSG, pesticides, GMO crops...the list seems to get longer every time I look at it. But these are very real factors which should also be checked out. And of course, other food intolerances need to e considered as well, such as dairy, soy, corn, eggs, nuts, peanuts, and a few others I'm probably not thinking of ATM.

Oh, and do consider also the possibility of a candida overgrowth. I can speak from experience, that candida most certainly can cause all sorts of strange behavioral problems.

nikki-uk Enthusiast
Oppositional Defiance Disorder

Symptoms

It may be tough at times to recognize the difference between a strong-willed or emotional child and one with oppositional defiant disorder. Certainly there's a range between the normal independence-seeking behavior of children and oppositional defiant disorder. It's normal to exhibit oppositional behaviors at certain stages of a child's development.

However, your child's issue may be oppositional defiant disorder if your child's oppositional behaviors:

* Are persistent

* Have lasted at least six months

* Are clearly disruptive to the family and home or school environment

The following are behaviors associated with ODD:

* Negativity

* Defiance

* Disobedience

* Hostility directed toward authority figures

These behaviors might cause your child to regularly and consistently show these symptoms:

* Frequent temper tantrums

* Argumentativeness with adults

* Refusal to comply with adult requests or rules

* Deliberate annoyance of other people

* Blaming others for mistakes or misbehavior

* Acting touchy and easily annoyed

* Anger and resentment

* Spiteful or vindictive behavior

* Aggressiveness toward peers

* Difficulty maintaining friendships

* Academic problems

WOW!

I've got one of those!!....didn't know there was a name for it!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lizz7711 Apprentice
Besides gluten, there are things like artificial sweeteners, food dyes, MSG, pesticides, GMO crops...the list seems to get longer every time I look at it. But these are very real factors which should also be checked out. And of course, other food intolerances need to e considered as well, such as dairy, soy, corn, eggs, nuts, peanuts, and a few others I'm probably not thinking of ATM.

Oh, and do consider also the possibility of a candida overgrowth. I can speak from experience, that candida most certainly can cause all sorts of strange behavioral problems.

I can say from my experience with my 9 year old daughter that absolutely ODD is related (or can be ) to celiac/gluten intolerance.

A year ago my daughter's behavior at home was so bad, rages, opposition, destructive tendencies, perseveration etc, that I started looking up mental conditions online, found ODD< and said, wow that is my daughter. I was thinking I was going to have to find a shrink. But then I found a website called feingold dot org and they had information that many food additives can cause such behavior...so I put her on a no food dyes, no MSG diet...and her behavior improved a bit. About a month later I went to a seminar on celiac disease and got her tested by enterolab after talking to the presenter. She was positive for gluten/dairy/soy/egg sensitivity. I got tested, and I was positive too. I also had a blood test which was positive. Anyway, we went on the Gluten-free Casein-free diet, and after a couple months she was a new girl.

It's now been 9 months, and I can always tell when she's had either gluten or food dyes because within an hour her behavior will revert right back to the crazy days...only difference is it won't last quite as long...and since I know what's going on, I don't usually get angry but rather just focus on getting her brain back by giving her vitamins/magnesium etc. Gluten causes the most significant behavioral issues with her. The others cause problems because with a leaky gut, all kinds of molecules get into the blood stream and cross the blood brain barrier, causing behavior issues. For myself, I also get quite irritable with gluten, and have multiple chemical sensitivity.

I do think she also has candida overgrowth and potentially high mercury load from me (it passes to the fetus) which may be underlying the gluten issue.

I recommend anyone with kids with ADD, ADHD, OCD, ODD, depression etc. to try the gluten-free diet, but also they have to avoid the food dyes, additives, MSG, and aspartame or they will not see as much improvement. Alot of people go gluten-free, but still eat crappy food and drink diet sodas etc. All chewing gum has aspartame these days, and MSG is hidden everywhere...one food that is high in natural glutamate that affects my daughter alot is parmesan cheese..also nutritional yeast, which alot of vegans use. With food dyes, yellow#5,6 and red#40 seem the worst, but we avoid all of them and I buy her organic gummy worms from whole foods and let her have chocolate more often instead of candy.

hope this helps!

Liz

Lizz7711 Apprentice
And I bet a study on whether these children were breastfed or formula-fed would be fascinating, especially in the light of recent information about tainted milk from China--as melamine causes neuro problems.

In fact, I knew a little boy who was diagnosed with depression AND ODD; he had practically NO physical exercise or outside time whatsoever.

My daughter had to have half formula right from the get-go because I had problems with my milk...after 5 months she wasn't breast feeding at all. BUT, she had digestive issues from the moment of birth (constipation). I think her intestines probably got damaged in utero becuase I had to take an anti nausea medication for 7 months of the pregnancy just to be able to function, and it caused me constipation, so it probably did to her as well...leading to leaky gut and consequent food sensitivities...combined with mercury load and my celiac disease (as yet undiagnosed), and then vaccines on top of that...and there you go! What hope do kids have, LOL.

By the way, my daughter is VERY active, runs around like crazy so exercise or lack of is not a factor in her case.

Fiddle-Faddle Community Regular

Fascinating, Liz--I was on Phenergan for my second 2 pregnancies because complications from the hyperemesis almost caused me to lose my first child. However, I begged the doctor to let me take as little as possible, and ended up taking about 1/4 of a pill once a day. Any more than that, and I was unconscious and couldn't function!

In retrospect, I am convinced that gluten was the source of my hyperemesis, as I kept trying to eat those stupid crackers (not knowing I had an intolerance to gluten).

With the first baby, I also had pre-eclampsia, and they gave me magnesium sulfate to prevent seizures--and didn't tell me it inhibits milk production. So I pumped every 3 hours for 5 days and nights before I got a drop of colostrum, which meant that #1 son had formula for those 5 days. After the colostrum came in, though, I threw away the formula; I had to nurse him every hour and a half for 8 months, though. Then he dropped back to every 2-3 hours.

And all my kids had reactions to vaccines. It wasn't until #3 that we knew enough to turn down some vaccines, and delay others. Live and learn....

April in KC Apprentice

My oldest son was very rage-filled prior to going gluten-free. He would rage and then feel awful afterwards. We're talking about a 3-1/2 year old...a 4-1/2 year old. He made threats. When he was sad afterwards, he was deeply depressed. He talked about "wanting to go back into God's tummy" at age 3. It practically broke our hearts. We prayed a lot, and we sought professional help. One of the answers to prayer was getting him diagnosed with Celiac.

He's not the same kid now.

I wish there a way to get the message out to psychiatrists and parents... look for Celiac Disease in these kids. Maybe it isn't all of them, but what a blessing for some who can be helped.

DanaDee Newbie

I don't know that it's related to Celiac, that the two dieseses are co-morbid of each other, but I can see where an undiaged kid may get the diag of ODD if the child were on gluten and reacting to it.

My daughter, now 3, she she gets gluten in her system, it's like a switch get flipped on and she flips out. She goes from the sweetest kid who hums when she colors, and gives randon hugs and kisses, to full out out of control. I am sitting here with 3 very bad bite marks from an accidental glutening over the weekend. ( my own fault, I am new to the diet, I let something get by me) She bite me 3 times, and scratched my face. Once the gluten worked it's way out of her system ( she get's a rash and diareaha as well), she was back to sweet mary sunshine, the perfect little 3 year old princess.

I can see 100% how ODD diag could happen.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,553
    • Most Online (within 30 mins)
      7,748

    Jennifer CCC
    Newest Member
    Jennifer CCC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.