Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Confused

sugarsue

Recommended Posts

sugarsue Enthusiast
sugarsue
Posted

I posted a week or so about my almost 6 yr old dd and her test results. We see her doctor tomorrow and I don't really know what to ask for.

The suggestions from those who responded was that I should continue to search for some more answers since the test said that it could not rule out celiac for her and she had the high IgG and lower normal IgA....

AGA IgG result was 84 with the range of >11

TTG IGA AB result was <3 with negative lab range of <5

AGA IGA result was <3 with negative lab range of <11

IGA result was 64 with the range of 33-235 mg/dl

EMA IGA AB - Negative

but I spoke to one of the labs that do DNA testing today (Kimball) and they said all they do is look for the gene that would not say whether she had celiac or not but only if she had a marker. Is this helpful because if she had a negative DNA test that it would mean she did not have celiac but if it was positive then we'd be back at the maybe stage?

She's been on gluten free for almost 2 weeks and doing very well. I see improvements in her already and so we will stay on gluten-free. I feel certain that the gluten is the problem but I would like to know if it's celiac or not so I will know how careful I need to be and prepare her for her future appropriately.

Any suggestions on things I should ask her doctor for? He is very open to the gluten-free diet (he is a Dan! doctor and treats lots of Autism patients) but he is not a celiac specialist.

Thanks a lot!

Susan

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mtndog Collaborator
Mtndog
Posted

It's been awhile since my testing but basically I was diagnosed by genetic marker and positive response to the diet. I had a negative biopsy and slightly elevated IgG but felt much better on the diet. For me, knowing that I had the gene was it for me- I felt that if the diet was working and I had the gene, that was the all the diagnosis I needed.

I would ask your doc for the gene test- either way, keep us posted!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,315
    • Most Online (within 30 mins)
      7,748
    Paul1128ali
    Newest Member
    Paul1128ali
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Soosieque
      Low tTG IgA and IgG - I'm so confused...

      By Soosieque · Posted

      Thank you! It does help.
    • trents
      Low tTG IgA and IgG - I'm so confused...

      By trents · Posted

      Welcome to the forum, @Soosieque! Immunoglubulin A, Qn, Serum (aka, "total IGA") is a test run to check for IGA deficiency. If you are IGA deficient, the other IGA tests (the ones ordered to specifically check for celiac disease) will give artificially low scores and cannot be trusted. You were not IGA deficient. The two tests specifically run to check for celiac disease in your case were IGA (short for tTG-IGA) and IgG. So, one of the two tests specifically run for celiac disease was an IGA test (and it looks to be negative from the low score) and the other was an IgG test. So, it does not look like you have celiac disease from the limited testing you have had done. There are other tests that could have been run, however, and if you were already on a gluten-free diet or a low gluten diet when the testing was done then the testing is invalid. Here is a primer on blood antibody testing for celiac disease:    There is also the possibility that you suffer from NCGS (Non Celiac Gluten Sensitivity) rather than celiac disease. They share many of the same symptoms but NCGS is 10x more common. NCGS does not damage the lining of the small bowel, however. Hope this helps.
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      Welcome to the forum, @barb simkin! How does it affect you when you eat chocolate and drink alcohol? I'm asking because these are common migraine triggers and migraines are a common in the celiac population.
    • Soosieque
      Low tTG IgA and IgG - I'm so confused...

      By Soosieque · Posted

      Immunoglobulin A, Qn, Serum is normal and Endomysial Antibody IgA is negative but <2 IgA and IgG. What would this mean?
    • Suze046
      Reintroduction of Gluten

      By Suze046 · Posted

      Hi, so just to put you in the picture, I’ve had lots of digestive issues over the past 6 months, diarrhoea, constipation, gut ache, cramps, head aches, lost 2 stone in weight am perimenopausal.. need I go on. I know some of this is caused by stress and I’ve always had to watch what I eat so noting too processed of fatty and rich. I’ve had blood tests, stool tests gall bladder scan, repeated tests and nothing showed up (which is good) I tested negative for celiac back in March. I’ve just done 6 weeks gluten free and I have to say things got better. My doctor told me to reintroduce it so I did this 9 days ago but gently and I’m still keeping some gluten out of my diet. My question is how long can it take for a reaction because my diarrhoea constipation and cramps are back but only in the last 4 days and it started with a slight unsettling tum feeling first like it might kick off but not sure. So I’m wondering if this is just a coincidence or if it can take your body that long to react? Anyone else been through this? Advice needed! 
×
×
  • Create New...