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I'm Confused

sugarsue

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sugarsue Enthusiast
sugarsue
Posted

I posted a week or so about my almost 6 yr old dd and her test results. We see her doctor tomorrow and I don't really know what to ask for.

The suggestions from those who responded was that I should continue to search for some more answers since the test said that it could not rule out celiac for her and she had the high IgG and lower normal IgA....

AGA IgG result was 84 with the range of >11

TTG IGA AB result was <3 with negative lab range of <5

AGA IGA result was <3 with negative lab range of <11

IGA result was 64 with the range of 33-235 mg/dl

EMA IGA AB - Negative

but I spoke to one of the labs that do DNA testing today (Kimball) and they said all they do is look for the gene that would not say whether she had celiac or not but only if she had a marker. Is this helpful because if she had a negative DNA test that it would mean she did not have celiac but if it was positive then we'd be back at the maybe stage?

She's been on gluten free for almost 2 weeks and doing very well. I see improvements in her already and so we will stay on gluten-free. I feel certain that the gluten is the problem but I would like to know if it's celiac or not so I will know how careful I need to be and prepare her for her future appropriately.

Any suggestions on things I should ask her doctor for? He is very open to the gluten-free diet (he is a Dan! doctor and treats lots of Autism patients) but he is not a celiac specialist.

Thanks a lot!

Susan

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Mtndog Collaborator
Mtndog
Posted

It's been awhile since my testing but basically I was diagnosed by genetic marker and positive response to the diet. I had a negative biopsy and slightly elevated IgG but felt much better on the diet. For me, knowing that I had the gene was it for me- I felt that if the diet was working and I had the gene, that was the all the diagnosis I needed.

I would ask your doc for the gene test- either way, keep us posted!

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