Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Think I'll Opt Out Now... Can I Do That?


MNBeth

Recommended Posts

MNBeth Explorer

(Yes, I know I can't opt out; just had that "this isn't what I signed up for" feeling.)

So here's the story. My 15 yo daughter has been wanting to go to Olive Garden, just to see what it's like. We don't usually go because my son and I are both celiac, and there aren't really options that would appeal to him. So today it was just my daughter and I, and we were sort of celebrating her birthday, so I took her there for lunch. I just had the garden salad, explained about the need for clean mixing bowls and all, and the server even decided on her own that the since the croutons were kept right next to the dressing container, she'd use dressing from packets for me instead.

Then, about an hour later I was walking into Target and, forgive me, thought I'd discreetly let slip a little gas. But it wasn't gas. I was completely stunned, mortified, and panicked! I hadn't felt the least bit sick, and had no idea that was coming.

Fortunately it wasn't much, I was fairly close to the bathroom, and I was able, then, to get home w/o further disasters and w/o anybody knowing. But YUUUUUUCK!

This doesn't usually happen to me, and even now I'm not entirely sure it's gluten. I still don't feel sick. (Just totally paranoid!) I'm sure I'm not done w/ the D, but I just feel rumbly, not ill.

It's maddening not knowing what's happening, whether it's gluten, or, if it is, how the next glutening is going to manifest itself. I've only been gluten-free about a year, and I feel like my reactions are less predictable than ever. I'm supposed to go on a 5-day school trip with my daughter in a couple of weeks, and I'd like to think I could get through the 12 hour bus ride w/o this kind of thing happening!

Sorry; just needed to say it, and who else am I gonna say that kind of thing to?!

Thanks for listening!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Make sure you pack plenty of your own food on that 5 day trip. Even if you mostly eat nuts and fruit brought from home. Canned tuna. Your own gluten-free crackers. Be prepared. Be very prepared. :o

My Mom actually has this happen fairly regularly. But refuses to look into Celiac or gluten-free. I used to have it happen now and again. You are right.....yuck!! But have not had it since gluten-free.

ArtGirl Enthusiast

My gluten reactions have been less and less severe - but even so, they still take 15 hours to manifest. I've had the same "gas" issue, too.

Other foods give me the yukky feeling, gurgley bowels and unpredictable GI responses (being delicate here!) but not severe D as does gluten.

Re: your trip....If I were in your shoes, I'd take along all my own food - and supplement fruits and raw veggies at grocery stores. I did just this on a 2-week vacation. I only ate out at restaurants that had gluten-free menus, and then only toward the end of our trip. I wasn't about to ruin it with the big D. The only thing I missed was the gluten-free breads, but life can be lived without them.

MNBeth Explorer

I am definitely planning on bringing my own food. I'll have access to a P.F.Chang's and a Chik-fil-A a lot of the time, but I'm that's all I'm sure about so far. Still need to call the dinner theater, but I can watch the show w/o eating if they don't seem to get it. Otherwise, I'll be eating pretty weird all week, but I can live with that.

purple Community Regular

Sorry...what about packing extra clothes and wipes and sanitary pads...you never know?!?!

MNBeth Explorer
Sorry...what about packing extra clothes and wipes and sanitary pads...you never know?!?!

...and a few Ziplock bags and hope I won't need any of it!! Thanks.

(This makes me feel waaaay older than 41.)

ravenwoodglass Mentor

If you tolerate immodium and don't have a problem with getting bound up you could take a single caplet in the morning as a prophylactic and keep a couple more in your purse just in case you need them later in the day. I wouldn't reccommend that on a regular basis but it would be a little extra insurance on the bus.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular
If you tolerate immodium and don't have a problem with getting bound up you could take a single caplet in the morning as a prophylactic and keep a couple more in your purse just in case you need them later in the day. I wouldn't reccommend that on a regular basis but it would be a little extra insurance on the bus.

This is a technique I've had to employ on a number of occasions. It does bind me up, but it's better than ruining all my pants.

henny Explorer
This is a technique I've had to employ on a number of occasions. It does bind me up, but it's better than ruining all my pants.

Me too!

It makes me wonder what percentage of Immodium's annual sales are Celiac or Crohn's (my spouse took it every day for years) sufferers.

The other tip I have is: don't ever pass gas unless you're on the toilet! I have learned the hard way never to assume it's just gas.

debmidge Rising Star

Olive Garden: you didn't miss much --- as Italian food goes, their stuff is an American interpretation of Italian food (I'm Italian descent and lived with grandparents who were from Italy who cooked authentically)

(Yes, I know I can't opt out; just had that "this isn't what I signed up for" feeling.)

So here's the story. My 15 yo daughter has been wanting to go to Olive Garden, just to see what it's like. We don't usually go because my son and I are both celiac, and there aren't really options that would appeal to him. So today it was just my daughter and I, and we were sort of celebrating her birthday, so I took her there for lunch. I just had the garden salad, explained about the need for clean mixing bowls and all, and the server even decided on her own that the since the croutons were kept right next to the dressing container, she'd use dressing from packets for me instead.

Then, about an hour later I was walking into Target and, forgive me, thought I'd discreetly let slip a little gas. But it wasn't gas. I was completely stunned, mortified, and panicked! I hadn't felt the least bit sick, and had no idea that was coming.

Fortunately it wasn't much, I was fairly close to the bathroom, and I was able, then, to get home w/o further disasters and w/o anybody knowing. But YUUUUUUCK!

This doesn't usually happen to me, and even now I'm not entirely sure it's gluten. I still don't feel sick. (Just totally paranoid!) I'm sure I'm not done w/ the D, but I just feel rumbly, not ill.

It's maddening not knowing what's happening, whether it's gluten, or, if it is, how the next glutening is going to manifest itself. I've only been gluten-free about a year, and I feel like my reactions are less predictable than ever. I'm supposed to go on a 5-day school trip with my daughter in a couple of weeks, and I'd like to think I could get through the 12 hour bus ride w/o this kind of thing happening!

Sorry; just needed to say it, and who else am I gonna say that kind of thing to?!

Thanks for listening!

MNBeth Explorer
Olive Garden: you didn't miss much --- as Italian food goes, their stuff is an American interpretation of Italian food (I'm Italian descent and lived with grandparents who were from Italy who cooked authentically)

Oh, I know! I'm from the Chicago area, and we had wonderful Italian neighbors, and no end of great real Italian restaurants. I only went because my daughter's been wanting to go, it was her birthday, and it was a rare chance to go where she wanted - not where it works best for her gluten-free brother and I. I won't miss it a bit.

MollyBeth Contributor
Oh, I know! I'm from the Chicago area, and we had wonderful Italian neighbors, and no end of great real Italian restaurants. I only went because my daughter's been wanting to go, it was her birthday, and it was a rare chance to go where she wanted - not where it works best for her gluten-free brother and I. I won't miss it a bit.

You know... I have alwas wondered what people thought was so great about the Olice Garden? I obviously can't eat it now but when I could I never wanted to go. People are too into chains these days. Give me a ma and pop hole in the wall with authentic food!! I grew up south of Chicago...that city is great for real food!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,995
    • Most Online (within 30 mins)
      7,748

    Naner4
    Newest Member
    Naner4
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
    • Scott Adams
      They are a sponsor here, and I did noticed a free shipping coupon: GFships
    • Scott Adams
      In general if it is labelled gluten-free then it should be ok for most celiacs, however, those who are super sensitive (which is most who have dermatitis herpetiformis) may want to eat only certified gluten-free items, which are supposed to test down to 10ppm (but don't always!).
    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.