Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fatigue & Exhaustion


genuis boy

Recommended Posts

genuis boy Newbie

I struggle with fatigue and exhaustion a lot. Does anyone have any suggestions or recommendations? I really don't sleep well either.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Have you had your Thyroid tested? Iron and Ferritin? B12?

Are you Celiac or Gluten Intolerant? If so are you 100% gluten free?

Please tell us more about yourself so we can help you.

ravenwoodglass Mentor

A lot of us have had to struggle with this. How long have you been gluten-free? Are you still consuming dairy? What have you already tried to help with this issue?

For some a sublingual B12 can be very helpful for energy. Try to eat as cleanly and as much naturally gluten free food as you can. Try to keep to a routine for sleeping, go to bed and get up at the same time every day. A warm bath or shower with a lavender scented soap can help as can a eye pillow filled with lavender. Try not to have anything with a lot of sugar of caffine after 12pm noon and try to get some excercise on a regular basis. Before bed try to get a routine down so your body and mind knows it is time to sleep. Do something quiet and relaxing whether it is reading a book or listening to some soft music or watching a nonstimulating TV program.

Welcome to the board and I hope you get some relief soon.

genuis boy Newbie

I am celiac for 7 yrs. I probably am casein intolerant rather than lactose, that has gone on for 30 yrs. Yes I do cheat and consume some diary, mostly yogurt and mozzarella cheese. I was thinking of doing the CBC blood test, so I guess I will try to do thyroid and b12 later depending on cost. I am currently on an antidepressant. I am also a full time student so my hours tend to vary. I will try the lavender before bed as I have gotten interested in aromatherapy. I only have begone to consume a bottle of tea at about 1030 in the morning or at noon with lunch. Before that I never consumed caffeine after becoming celiac. I just tried some b-12 before I went to bed last night and I felt like I actually got some sleep when I got up. I have done b12 in the morning along with zinc and calcium 3 times a day. Thanks very much for your help and support.

aikiducky Apprentice

If you suspect you're casein intolerant, you should try cutting out all dairy products for a while. I know it's a pain, but that might well be keeping you feeling tired, I know if I would have dairy even just now and then I wouldn't be getting out of bed. It can also make you slightly depressed.

Pauliina

happygirl Collaborator

Discuss with your doctor

Open Original Shared Link

Dig Liver Dis. 2007 Oct;39(10):922-8. Epub 2007 Aug 10. Links

L-Carnitine in the treatment of fatigue in adult celiac disease patients: a pilot study.Ciacci C, Peluso G, Iannoni E, Siniscalchi M, Iovino P, Rispo A, Tortora R, Bucci C, Zingone F, Margarucci S, Calvani M.

Gastrointestinal Unit, Department of Clinical and Experimental Medicine, University Federico II, Naples, Italy. ciacci@unina.it

BACKGROUND: Fatigue is common in celiac disease. L-Carnitine blood levels are low in untreated celiac disease. L-Carnitine therapy was shown to improve muscular fatigue in several diseases. AIM: To evaluate the effect of L-carnitine treatment in fatigue in adult celiac patients. METHODS: Randomised double-blind versus placebo parallel study. Thirty celiac disease patients received 2 g daily, 180 days (L-carnitine group) and 30 were assigned to the placebo group (P group). The patients underwent clinical investigation and questionnaires (Scott-Huskisson Visual Analogue Scale for Asthenia, Verbal Scale for Asthenia, Zung Depression Scale, SF-36 Health Status Survey, EuroQoL). OCTN2 levels, the specific carnitine transporter, were detected in intestinal tissue. RESULTS: Fatigue measured by Scott-Huskisson Visual Analogue Scale for Asthenia was significantly reduced in the L-carnitine group compared with the placebo group (p=0.0021). OCTN2 was decreased in celiac patients when compared to normal subjects (-134.67% in jejunum), and increased after diet in both celiac disease treatments. The other scales used did not show any significant difference between the two celiac disease treatment groups. CONCLUSION: L-Carnitine therapy is safe and effective in ameliorating fatigue in celiac disease. Since L-carnitine is involved in muscle energy production its decreased absorption due to OCTN2 reduction might explain muscular symptoms in celiac disease patients. The diet-induced OCTN2 increase, improving carnitine absorption, might explain the L-carnitine treatment efficacy.

ShayFL Enthusiast

Just get your thyroid checked before trying L-Carnitine. It can worsen a hypothyroid condition. Google it. Learn before you try.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



genuis boy Newbie

Sorry I haven't got back to anyone, I have been studying for 5 tests this week. I was taking b12 3 times a day and that seemed to wind me up, so I am doing two a day now. That does seem to help. I did try L-Carnitine a couple of months ago, but that didn't seem to do anything. I think that the best place to start is with some blood work. They place by me has a fatigue panel, but I think I will try a CBC first. I'll hav eto get brave and eliminate dairy for a while and see what happens. :(

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,050
    • Most Online (within 30 mins)
      7,748

    Anna4386
    Newest Member
    Anna4386
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.