Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has This Happend To You


cat3883

Recommended Posts

cat3883 Explorer

I am 6 days gluten free. I must say my brain fog is better but I am having trouble sleeping. I go to sleep rather easy but I am waking up around 4 or 5 am the last few mornings a cant go back to sleep. I must say one of my main symptoms of celiac disease was fatigue as I could and would sleep about 12 to 14 hours a day. Please tell me this gets better!! But on a good note I have been told by a few people that I have more coloring in my face.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Yes it does get better. In the early days I was waking up that early because I was "starving". I ate like crazy for the first 6 weeks. My body was playing catch up. I sleep great now!

lisa25 Rookie
Yes it does get better. In the early days I was waking up that early because I was "starving". I ate like crazy for the first 6 weeks. My body was playing catch up. I sleep great now!

Shay,

Kind of off track from the original post, but I saw that you recently became corn free, grain free...etc. What made you decide to do this? Did you get tested? I have been tested through enterolab and came back positive for gluten, dairy, and soy. I am wondering if there are more things since the test only included gluten, dairy, soy, egg, and yeast. I have been feeling better, but not all the way better. I still take excedrine several times a week, still get really tired, still feel nauseas some of the time.

ShayFL Enthusiast

Over time you just realize what bothers you and you cut them out. I have been corn free for years. It always bothered me. I recently tried adding some back in. It still affects my blood sugar but no other symptoms. I am trying to keep my BS stable, so I wont eat it often...hardly ever...if at all. I dont need it in my diet. I cut out the grains because in general I do not tolerate starchy carbs very well. It really messes with my BS and I get digestive symptoms. The SCD diet is what I eventually adopted because it is what I am basically eating/not eating anyway.

ravenwoodglass Mentor
I am 6 days gluten free. I must say my brain fog is better but I am having trouble sleeping. I go to sleep rather easy but I am waking up around 4 or 5 am the last few mornings a cant go back to sleep. I must say one of my main symptoms of celiac disease was fatigue as I could and would sleep about 12 to 14 hours a day. Please tell me this gets better!! But on a good note I have been told by a few people that I have more coloring in my face.

It should resolve soon. One thing that may be going on is that gluten was a neurotoxin for you. Your brain got used to having it's own gluten supplied drug stash, so to speak, and now it has to learn how to sleep without the soporific effect of the gluten. For most this should resolve within a couple of weeks at the most. As long as you don't regluten.

Puddy Explorer

Yes, the same thing happened to me. The first 6-8 weeks I was gluten-free I woke up at 4AM every day! It was driving me crazy, but it gradually stopped happening and now I get a full night's sleep.

Mtndog Collaborator

it happened to me as well and eventually got better. Hang in there- up from here!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MNBeth Explorer

Yup; me too. Now I'm back to sleeping like the dead.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,813
    • Most Online (within 30 mins)
      7,748

    doodlebubbles
    Newest Member
    doodlebubbles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.