Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

H.pylori

lizard00

By lizard00
in Related Issues & Disorders

Recommended Posts

lizard00 Enthusiast
lizard00
Posted

So, I am starting to have this crazy stomach pain again...

I get hungry, I eat, then my stomach feels like it's burning. Then I feel like I need to eat again to make it feel better... my stomach feels good for only a short amount of time. Grrr... :angry:

I wouldn't have even thought of this, but my friend has been treated for H Pylori and her symptoms were very similar to mine.

I know that an active H.pylori infection is pretty common among Celiacs, so I'm just wondering if some of you could share your symptoms. I'm trying to determine if I should try to move up my GI appt that is scheduled for Nov 11.

And no... I have not ingested gluten accidentally. These are foods that didn't bother me before. Yesterday, even water hurt my stomach. <_<

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


debw11066 Newbie
debw11066
Posted

Hi,

If you are in that much pain, I would definitely try to move up your GI appointment. I had an h.pylori infection 3 years ago that caused 5 stomach ulcers- nothing to mess with! The symptoms you're describing certainly sound to me like they could indicate some investigating is necessary by a GI.

Feel better soon,

Debbie

Lisa Mentor
Lisa
Posted

Don't have any imput for you Lizard, but I hope you find the cause quickly, and feel better.

lizard00 Enthusiast
lizard00
Posted
  • Author
Don't have any imput for you Lizard, but I hope you find the cause quickly, and feel better.

Aww.. thanks Momma G! :rolleyes:

I called their office a few minutes ago and left a message with the nurse. So, now it's hurry up and wait.

finally diagnosed Apprentice
finally diagnosed
Posted
So, I am starting to have this crazy stomach pain again...

I get hungry, I eat, then my stomach feels like it's burning. Then I feel like I need to eat again to make it feel better... my stomach feels good for only a short amount of time. Grrr... :angry:

I wouldn't have even thought of this, but my friend has been treated for H Pylori and her symptoms were very similar to mine.

I know that an active H.pylori infection is pretty common among Celiacs, so I'm just wondering if some of you could share your symptoms. I'm trying to determine if I should try to move up my GI appt that is scheduled for Nov 11.

And no... I have not ingested gluten accidentally. These are foods that didn't bother me before. Yesterday, even water hurt my stomach. <_<

Hi Lizard, I have had h-pylori and it isn't fun, so I feel for you pain. My symptoms were awful, raw upper GI pain, chest pain. Sometimes if I ate or drank something it was like acid in my stomach or chest. Lived on Pepto for years, pre celiac diagnosis. Went to my doc and he mentioned maybe h-pylori and I was like what else can I have because they never mentioned celiac. Well low and behold they did a blood test and my panel came back positive for the h-pylori, (at the time, I did not know I had celiac and neither did they, I was just diagnosed 3 years this December). I took the prev-pack of antibiotics and within a couple of weeks I was better. Ironically my sister who always thought of me as a hypochondriac pre celiac was just diagnosed about 3 moths ago with h-pylori. If you can't get in with your GI sooner, maybe your primary doc can order your the blood test for h-pylori. Good Luck

ToddZ Newbie
ToddZ
Posted
So, I am starting to have this crazy stomach pain again...

I get hungry, I eat, then my stomach feels like it's burning. Then I feel like I need to eat again to make it feel better... my stomach feels good for only a short amount of time. Grrr... :angry:

I wouldn't have even thought of this, but my friend has been treated for H Pylori and her symptoms were very similar to mine.

I know that an active H.pylori infection is pretty common among Celiacs, so I'm just wondering if some of you could share your symptoms. I'm trying to determine if I should try to move up my GI appt that is scheduled for Nov 11.

And no... I have not ingested gluten accidentally. These are foods that didn't bother me before. Yesterday, even water hurt my stomach. <_<

Try taking some mastic gum. It may help you as it is reported to kill H. Pylori (before taking this though, make sure you get tested first because it can cause a false negative). Nexium is great and Carafate is also really good too. Protonix is the worst...

BTW, if I am severely glutened this can happen. Only if I ate a whole 16 inch pizza or something though!!!

MollyBeth Contributor
MollyBeth
Posted

Hey! I had an H.pylori infection back when I was in college. It felt like normal acid reflux times ten! I had really bad chest pain. I took the prev pack and that got it all cleared up. I would definately move my apt up. My chest pain got so bad that I had to go the the ER and then they gave me one of those yucky green shots that numb your insides. Best of luck! Hope you feel better soon!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 1 month later...
Kit Newbie
Kit
Posted

Yes, this weird stuff with misunderstanding hunger cues is a really big one for me when my stomach is queasy or upset. At first, food helps, then I feel like crap again. I had the H. pylori test and treatment (the antibiotics are horrible), and did feel a lot better, but couldn't stand the meds to complete the 21 day trial. Most ulcers are caused by H. pylori, which you probably already know.

Good luck!

So, I am starting to have this crazy stomach pain again...

I get hungry, I eat, then my stomach feels like it's burning. Then I feel like I need to eat again to make it feel better... my stomach feels good for only a short amount of time. Grrr... :angry:

I wouldn't have even thought of this, but my friend has been treated for H Pylori and her symptoms were very similar to mine.

I know that an active H.pylori infection is pretty common among Celiacs, so I'm just wondering if some of you could share your symptoms. I'm trying to determine if I should try to move up my GI appt that is scheduled for Nov 11.

And no... I have not ingested gluten accidentally. These are foods that didn't bother me before. Yesterday, even water hurt my stomach. <_<

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,333
    • Most Online (within 30 mins)
      7,748
    Donna Chem
    Newest Member
    Donna Chem
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.