Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

To All Members

mikespeanut

Recommended Posts

mikespeanut Newbie
mikespeanut
Posted

:D TO ALL THE MEMBERS OF CELIAC.COM,

THANK YOU FOR GIVING ME THAT SPARK I NEEDED TO RESTART MY FIRE.

I was waiting for my boyfiend at his job, so I decided to check out glutenfreemall and celiac.com. I was amazed at the format, the topics and information. My doctor told me of the site but I just put it to the side. I was diagnosed 9-04 and lost all motivation around 9-05. I just didn't care anymore. I would get upset and just eat anything. (I live alone in Altanta, GA and family lives in Queens,NY and Palm Bay,FL) My family understands what's going on but then again they don't. This becomes so frustating and then depression kicks in. :( I was so moved by the site that I joined and here I am posting this message.

Thanks again,

Charmaine

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Viola
Guest Viola
Posted

Hello Charmaine, welcome to the site!

We all know how frustrating this disease can be, especially if you don't have support. Please hang in there and keep trying to stick with the diet, it is so important to your health both now and in the future!

There is lots of super people in this forum that will try and help you :)

Carriefaith Enthusiast
Carriefaith
Posted

Welcome! We are always here to help!

Don't hesitate to ask if you have any questions or need any meal ideas!

mrsfish-94 Apprentice
mrsfish-94
Posted

You know I have to say the same thing!!! I was very frusterated with all the no gluten stuff. I wasn't going to try it for a while. (putting my daughter on it) But I posted in the DH area about my daughters condition. And because of another parent who's child had the same problems...it gave me courage and hope that I could do this. I have been so excited to get my daughter well. She loves the new foods she is eating. And my stress is far less than a few months ago.

Thank you to this site TOO!!!!! :D

Canadian Karen Community Regular
Canadian Karen
Posted

I'm so glad you guys have found us here.

There are a bunch of really great people here who are both very supportive and knowledgeable and are always willing to answer any questions you might have.

Welcome to the forum!

Karen

chronic Newbie
chronic
Posted

HI,

I too live alone and in a area where gluten is rarely known or understood. It has been a long learning curve but after two years of perserverance things are nearly under control. One word of warning is after being gluten free for a long period of time and then make a food error the after affects are more severe then previous attacks.

Good luck and keep trying. It does get easier.

Chronic :D

pixiegirl Enthusiast
pixiegirl
Posted

I was diagnosed on 9/04 too... most of my family is clueless too and really don't have the drive to figure it out for me... I was pissed about that over thanksgiving but I've come to a far better place about it. Hey its my disease and my issue and they all have their own problems... I decided I can stay mad at my family forever or just do what I have to do. So I choose to love them and I'll deal with my Celiac issues.

I tend to think every that happens to us in our lives will turn out exactly how we embrace it. If you think having Celiac is a pain or hassle, thats exactly what it will be. If you look at it like a new challenge then thats what it will be.

Someone (I think on this list) said they were so glad when they found out it was Celiac and not some terrible disease.. heck this can be controlled with diet, so essentially its curable. My brother has mouth and tongue cancer.... he has 4 months to 4 years left (odd time table, I know) so in comparison to that, wow did I get off easy!

If you look at it like a path to good health its just easier. If you decide to go totally gluten-free keep in mind you will have slip ups, I've read of some on this list by people who have had Celiac for years... it happens but its no reason to get depressed, you just learn from it and go on! Enlist your boyfriends help... I did that with mine and he is so supportive, he goes to bat for me all the time in resturants and he carries a gluten free card I made on my computer with him so he can show it to the chef at resturants..

You can do this, its not so hard. Also if you have a Whole Foods market around you (check on their web site for locations, they are really almost everwhere) they carry gluten-free baked goods which are really tastey (and lots of other gluten-free stuff) I drive an hour to get to the closest one but its way worth it for me.

Best, Susan

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Viola
Guest Viola
Posted

Those are all good points Susan. I've been gluten free for over 15 years and there are still slip ups. When you live in a gluten world, it's impossible to avoid them all. When your family or friends get annoyed when you question something. Just explain that it is your responsibilty to look after your own health (diet), and your health depends on double checking everything that goes in your mouth. You are not doing it to affend anyone. After all, we can't go out and enjoy activities with them, if we are in the bathroom ill! :o

Hang in there and stay healthy!

Maggie1956 Rookie
Maggie1956
Posted

:D welcome mike'speanut. This is an awesome forum with great people who are willing and available to give support and advice.

We're in this together and here to help.

;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,817
    • Most Online (within 30 mins)
      7,748
    GFDF23
    Newest Member
    GFDF23
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • badastronaut
      Still unsure.....

      By badastronaut · Posted

      hmm, I only had a colonoscopy. Would be interesting to have an endoscopy done then I guess.
    • Beverage
      Still unsure.....

      By Beverage · Posted

      You said the colonoscopy showed no damage. Did you also have an endoscopy? The upper colon is where celiac damage would be detected via endoscopy, not the colon.
    • trents
      4 Years and very little progress

      By trents · Posted

      Welcome to the  forum @maylynn! Have you had a follow-up endoscopy/biopsy of the small bowel to check for healing of the villous lining? If not, it's about time one was done. As Scott mentioned, I also wonder if you have food intolerances in addition to gluten. Oats (even gluten free oats), dairy, soy, corn and eggs are some of the most common ones in the celiac community.
    • Scott Adams
      4 Years and very little progress

      By Scott Adams · Posted

      Is your gluten-free diet strict? Do you eat out in restaurants? If so, you could be getting contamination, and over time that can slow recovery. You may want to get a follow up celiac disease antibody panel done to make sure that your levels have gone down since your last tests. Also, have you had various nutrient levels checked via a blood test, and have you been taking vitamin & mineral supplements since your diagnosis?  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.    Do you still have celiac disease symptoms?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • maylynn
      4 Years and very little progress

      By maylynn · Posted

      Hello!  I am here as a last result, hoping for some advice, similar stories, etc. When I was 17, I was diagnosed with Celiac disease. By the time we figured it out my iron levels were so low I had to get infusions, and I had lost 20lbs. in two weeks going from a 5'11 130lbs woman to a 110 lbs. Now, I am 21 and have gained 4 lbs since. Every time I eat a meal, I get three bites in and feel so full that I feel sick. I can't eat a full meal. Something else has to be wrong right? This can't just be more "normal" right? I have done test after test and no doctor in my area can figure anything else out. They have told me I most likely have shrunken my stomach by now with how little I am eating so that has to do with some of the sick feeling. What have you done to gain the weight back? Foods? Workouts? 
×
×
  • Create New...