Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):
    GliadinX

    Celiac.com Sponsor (A1-M):
    GliadinX

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

To All Members

mikespeanut

Recommended Posts

mikespeanut Newbie
mikespeanut
Posted

:D TO ALL THE MEMBERS OF CELIAC.COM,

THANK YOU FOR GIVING ME THAT SPARK I NEEDED TO RESTART MY FIRE.

I was waiting for my boyfiend at his job, so I decided to check out glutenfreemall and celiac.com. I was amazed at the format, the topics and information. My doctor told me of the site but I just put it to the side. I was diagnosed 9-04 and lost all motivation around 9-05. I just didn't care anymore. I would get upset and just eat anything. (I live alone in Altanta, GA and family lives in Queens,NY and Palm Bay,FL) My family understands what's going on but then again they don't. This becomes so frustating and then depression kicks in. :( I was so moved by the site that I joined and here I am posting this message.

Thanks again,

Charmaine

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Little Northern Bakehouse
Little Northern Bakehouse

Celiac.com Sponsor (A8-M):
Daura Damm

Guest Viola
Guest Viola
Posted

Hello Charmaine, welcome to the site!

We all know how frustrating this disease can be, especially if you don't have support. Please hang in there and keep trying to stick with the diet, it is so important to your health both now and in the future!

There is lots of super people in this forum that will try and help you :)

Carriefaith Enthusiast
Carriefaith
Posted

Welcome! We are always here to help!

Don't hesitate to ask if you have any questions or need any meal ideas!

mrsfish-94 Apprentice
mrsfish-94
Posted

You know I have to say the same thing!!! I was very frusterated with all the no gluten stuff. I wasn't going to try it for a while. (putting my daughter on it) But I posted in the DH area about my daughters condition. And because of another parent who's child had the same problems...it gave me courage and hope that I could do this. I have been so excited to get my daughter well. She loves the new foods she is eating. And my stress is far less than a few months ago.

Thank you to this site TOO!!!!! :D

Canadian Karen Community Regular
Canadian Karen
Posted

I'm so glad you guys have found us here.

There are a bunch of really great people here who are both very supportive and knowledgeable and are always willing to answer any questions you might have.

Welcome to the forum!

Karen

chronic Newbie
chronic
Posted

HI,

I too live alone and in a area where gluten is rarely known or understood. It has been a long learning curve but after two years of perserverance things are nearly under control. One word of warning is after being gluten free for a long period of time and then make a food error the after affects are more severe then previous attacks.

Good luck and keep trying. It does get easier.

Chronic :D

pixiegirl Enthusiast
pixiegirl
Posted

I was diagnosed on 9/04 too... most of my family is clueless too and really don't have the drive to figure it out for me... I was pissed about that over thanksgiving but I've come to a far better place about it. Hey its my disease and my issue and they all have their own problems... I decided I can stay mad at my family forever or just do what I have to do. So I choose to love them and I'll deal with my Celiac issues.

I tend to think every that happens to us in our lives will turn out exactly how we embrace it. If you think having Celiac is a pain or hassle, thats exactly what it will be. If you look at it like a new challenge then thats what it will be.

Someone (I think on this list) said they were so glad when they found out it was Celiac and not some terrible disease.. heck this can be controlled with diet, so essentially its curable. My brother has mouth and tongue cancer.... he has 4 months to 4 years left (odd time table, I know) so in comparison to that, wow did I get off easy!

If you look at it like a path to good health its just easier. If you decide to go totally gluten-free keep in mind you will have slip ups, I've read of some on this list by people who have had Celiac for years... it happens but its no reason to get depressed, you just learn from it and go on! Enlist your boyfriends help... I did that with mine and he is so supportive, he goes to bat for me all the time in resturants and he carries a gluten free card I made on my computer with him so he can show it to the chef at resturants..

You can do this, its not so hard. Also if you have a Whole Foods market around you (check on their web site for locations, they are really almost everwhere) they carry gluten-free baked goods which are really tastey (and lots of other gluten-free stuff) I drive an hour to get to the closest one but its way worth it for me.

Best, Susan

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Lakefront Brewery
Little Northern Bakehouse

Celiac.com Sponsor (A8-M):
Food for Life

Guest Viola
Guest Viola
Posted

Those are all good points Susan. I've been gluten free for over 15 years and there are still slip ups. When you live in a gluten world, it's impossible to avoid them all. When your family or friends get annoyed when you question something. Just explain that it is your responsibilty to look after your own health (diet), and your health depends on double checking everything that goes in your mouth. You are not doing it to affend anyone. After all, we can't go out and enjoy activities with them, if we are in the bathroom ill! :o

Hang in there and stay healthy!

Maggie1956 Rookie
Maggie1956
Posted

:D welcome mike'speanut. This is an awesome forum with great people who are willing and available to give support and advice.

We're in this together and here to help.

;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse


  • Member Statistics

    • Total Members
      130,246
    • Most Online (within 30 mins)
      7,748
    Jbamf8791
    Newest Member
    Jbamf8791
    Joined
  • Celiac.com Sponsor (A20):
    Holidaily Brewing Co.

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):
    GliadinX


  • Celiac.com Sponsor (A21):
    Holidaily Brewing Co.


  • Upcoming Events

  • Posts

    • knitty kitty
      Hypothetical question about antibodies

      By knitty kitty · Posted

      @Zuma888, The antibodies produced in response to gluten are made in the intestines.  When the body is provoked sufficiently, the antibodies overflow out of the intestines and into the blood stream.  Once in the blood stream, the antibodies can be measured with tTg IgA tests.  Three grams of gluten per day for two weeks minimum is enough gluten to make you feel the symptoms of having been glutened, but the antibodies are not in sufficient quantity to be measured in the blood. Ten grams of gluten per day for a minimum of two weeks is required to get the anti gluten antibodies at a high enough level in the blood stream to be measured by tTg IgA tests. So, no, occasional cross...
    • Scott Adams
      Hypothetical question about antibodies

      By Scott Adams · Posted

      No, I would not say this at all. If you were diagnosed with celiac disease and were gluten-free for a while, you could have gone into remission. Everyone's body is different, and some celiacs may be able to get regular contamination and not end up with damaged villi and positive antibody tests, while others who ingest tiny amounts will relapse and have full blown symptoms and flattened villi.  Only a full gluten challenge would reveal where you are at this point. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Inflammation and Menier’s disease link?

      By Scott Adams · Posted

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Pablohoyasaxa
      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By Pablohoyasaxa · Posted

      Great  post. The skin issue can be intolerable. I have been taking niacinamide for the past month and have improved with respect to the blistering lesions. 
    • knitty kitty
      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By knitty kitty · Posted

      I've found taking Niacin Vitamin B 3 in the form that causes flushing (nicotinic acid) helps immensely to clear my skin.  The flushing is harmless and goes away the longer Niacin is taken.  The flushing (vasodilation in the skin) helps the body get rid of the tTg 3 IgA antibodies that cause the blisters.  TTg 2 IgA antibodies are found in the blood and are measured in diagnostic testing for Celiac.  People with Dermatitis Herpetiformis make tTg 3 as well as tTg 2 antibodies.  Niacin Vitamin B3 in the non flushing form niacinamide also works without the flushing, but takes a bit longer.   I also avoid foods containing high levels of iodine because iodine activates the tTg 3 IgA antibodies to...
×
×
  • Create New...