Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dairy? Okay Or Not?


Kit.DaMommy

Recommended Posts

Kit.DaMommy Rookie

I have been seeing a lot about people eliminating dairy from their diets as well as gluten. I am not a big dairy person anyways, I rarely have it. But is dairy bad too? :(

Love to All,

Be blessed


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

I had to take dairy out of diet because I'm breastfeeding and my son is very sensitive to casein. :( Last week I got the results from my genetic test... one interesting thing I found out is that the DQ7 gene is associated with intolerance to both gluten and cow's milk (plus thyroid disorders, lupus, and pollen allergies).

Dairy is not an easy food to digest. A lot of celiacs become lactose intolerant when their intestines are damaged, but can have small amounts again after a few months on a gluten-free diet. Some kids with autism do better on a gluten-free, casein-free diet.

Lisa Mentor

Dairy is often suggested to eliminate or limit for a period of time while you are healing. There is a connection between dairy and your villi in your small intestines. If your villi are damaged due to Celiac Disease, dairy may give you symptoms similar to gluten.

Once some healing takes place, dairy can be reintroduces without issue.

GFinDC Veteran

I have been gluten-free for almost a year now, and just last week started being able to eat dairy again without having reactions. Although I do take Lactaid with it. But before this I had been lactose intolerant for 12 years and totally avoided it for the most part. Some lactaid type pills have gluten in them so watch out for that if you are using it. The cheaper store brands are the ones to really check the labels on.

ksymonds84 Enthusiast
I have been gluten-free for almost a year now, and just last week started being able to eat dairy again without having reactions. Although I do take Lactaid with it. But before this I had been lactose intolerant for 12 years and totally avoided it for the most part. Some lactaid type pills have gluten in them so watch out for that if you are using it. The cheaper store brands are the ones to really check the labels on.

I tried to save cost on generic lactaid and vomited both times I tried to use them. I wasn't savvy about calling companies back then, just threw the stuff away. Lactaid brand fast act doesn't cause me to vomit so I am betting gluten was in the other one's so as GFinDC says check the labels or call the company if you decide to try them.

Hummingbird4 Explorer

When I went gluten-free, I did not have to avoid dairy at all. It doesn't bother me a bit, but it seems like it's a fairly common thing for people to have to give up, at least for a while. Your mileage may vary. :P

Darn210 Enthusiast

My daughter didn't seem to have any problems. The doc did recommend a lactaid with dairy for her first two months post diagnosis. She didn't take it everytime . . . only when she seemed to be hitting the dairy products kind of hard. When she had her endoscopy, her lactase levels were checked. They were low but not too far out of range.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kit.DaMommy Rookie

Thank you all for the good advice. I am not a big dairy person anyways, but its good to know.

love to all,

be blessed

one more mile Contributor

I am fine with milk. I gave it up for a while because I thought it cased me to want to binge but now that I am gluten free it seems to not bother me at all. I eat a lot of dairy at this time because I have had to give up other things so that I feel good.

I eliminated most foods then slowly added them back to see what I can eat and what I can not eat. Somethings I am still stumped on such as some raspberry tea makes my tongue swell. But that is another issue.

I am more concerned about staying away from the foods that I know I have issues with at this time. My kid had me bought in to the rights of enslaved cows argument for a while. Yes I think the cows should be treated better but I need to eat.

Some people choose not to consume dairy for political reason.

Right now cheese is my big flavor treat. I love butter cheese and smoked cheese and try to buy a new cheese each time I go to the farmers market, just to stimulate the taste buds.

One more mile.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.