Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tingling In Feet


milelj

Recommended Posts

milelj Rookie

Did anyone have tingling/numbness in thier feet before being diagnosed with Celiac Disease? That's another symptom I'm having. It's not constant and doesn't last long, it comes and goes. I did read on one website that tingling/numbness in the legs or arms is a symptom of celiac disease, but haven't really seen anyone mention it. Did anyone on here have this symptom?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Yes, I had tingling in my lower legs and feet as well as a burning sensation on the bottom of my feet and in my mouth.

I also had the tingling and numbness in my left arm--along with an altered sensation, and my face. It took a while after going gluten-free for this to completely resolve but it finally did. The facial numbness took probably 2 years to stop--and even then I still get a bit of it when having a gluten reaction.

Quite a few people here have or have had this symptom (it's called peripheral neuropathy). It's another pretty common stmptom of Celiac--especially in adults.

SGWhiskers Collaborator

Add me to the tingles list. It started off and on in my toes and pinkies. Then as it got more constant, it spread up my feet, fingers, palms, elbows, and the backs of my knees. My tongue tip also went through spurts of numbness. I'm only 10 weeks gluten-free and waiting for symptoms to subside. It has gotten a little better. I had the burning from my tush to my toes almost constantly and my shoulder to fingertips if I raised my elbows past my chest for long periods. I also got fasciculations (quick muscle contractions) all throughout my body. They got worse and worse the longer I went undiagnosed. They are letting up some now. If you are suspecting Celiac, go get tested. It is easier than waiting to see how sick you might get.

digmom1014 Enthusiast

I have had Reynaud's syndrome for years-starts with a tingling in feet and then the blood flow is gone, white & numbness. I also get it in my fingers. However, the longer I am gluten-free, the better it gets. I am 8 months now.

I don't have a link for Reynaud's, but it is easy to google. I guess it is well documented.

curlyfries Contributor

I just went to the chiropractor today........I go every week.

Had to focus on the numbness/tingling in my foot and toes.

I haven't had this problem in some time, but I think mine is more of a muscle issue.( I have fibromyalgia) Several of the muscles in my leg and hip are extremely tight.

Nothing like a good butt massage :D

Before going gluten free, I also would have tingling in my fingers when I would cough or sneeze. :huh:

ang1e0251 Contributor

I certainly did have numbness and tingling in my feet, along with seeping and sometimes infected large toenail. That has all cleared up in the past year. This summer I had the worst glutening so far & both toes infected again after being healed. One healed right away, one just finally healed this week. When I described it to my GP, he laughed about the feet symptom. I'm angry at him but he's a family friend so I'll just let him have it next time I have to see him. He really knows very little about celiac disease.

Those symptoms really do improve or go away on the gluten-free diet so hang in there. Your list sounds a lot like mine before the diet. I also can't really handle much of the processed foods. Simple homecooked is best for me.

  • 3 years later...
poetry4me Newbie

Did anyone have tingling/numbness in thier feet before being diagnosed with Celiac Disease? That's another symptom I'm having. It's not constant and doesn't last long, it comes and goes. I did read on one website that tingling/numbness in the legs or arms is a symptom of celiac disease, but haven't really seen anyone mention it. Did anyone on here have this symptom?

Hi,

This is my first time ever posting on this site. I am a self-diagnosed Celiac. I went gluten-free about three months ago. The last time I accidentally got glutened was about a month and a half ago, and it was a doozy. I was sick for two weeks straight. Before going gluten free, I was sick non stop for over a year. I thought I was dying. I had been pretty healthy before this time period (except for stomach aches and other issues since childhood). During this year my skin would burn, twitch, tingle, go numb...my muscles would spasm and cramp up. I ate primarily organic and mostly vegetarian, worked out...until of course I was so weak I could not walk. I went to every doctor imaginable. They tested me for everything except gluten intolerance. I did find out from being hospitalized that I had pretty bad hypothyroidism. I'm twenty eight years old by the way, with extremely healthy and athletic parents.

So, in response to this four-year-old post here, I want to add that my tingles have not gone away yet. They are better but they are still present in my calves and ankles, sometimes my arms.

Because my insurance ran out several months ago, I have not had the official tests done. I'm aware that now that I am gluten-free, the blood tests would not be accurate unless I eat copious amounts of gluten in preparation. I think that I would die from that, truly. I nearly was hospitalized from a soba-wheat noodle not too long ago.

Since going gluten free, I am walking perfectly fine and my intestines are finally healing. I finally have energy and don't wake up twenty times a night with pains and bile in my throat. But the tingles and leg cramping come and go.

It's great to have this community here. I would love to hear others stories.

Thanks for reading. Thanks for sharing.

I wish everyone the very best.

Lauren~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    2. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    5. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,407
    • Most Online (within 30 mins)
      7,748

    H2HPizzaWagon
    Newest Member
    H2HPizzaWagon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.