Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Celiac, Seeking Good Md In Orange County, Ca. Please Help.

Lindaa

Recommended Posts

Lindaa Newbie
Lindaa
Posted

Hi Everyone,

I am 23 and have been somewhat diagnosed by my family Dr for Celiac Disease. After describing my symptoms to him, he told me that I have celiac disease. But when asked if there were any medical tests and measures I should take, he said that they were not necessary & that a lifetime gluten free diet was the only way to go.

After doing some research online and seeing all the symptoms that I've endured for SOO long ( stomach pains, bowel problems, weight loss, mouth sores, depression, constant fatigue etc), I am certain I am a Celiac.

I want a more knowledgeable & concerned Dr and was wondering if there were any recommendations anyone could make. And what tests should I take? Will seeing a GI specialist be necessary as well? I want to be able to see this through the right way.

thank you in advance for your help.

-Linda

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
Hi Everyone,

I am 23 and have been somewhat diagnosed by my family Dr for Celiac Disease. After describing my symptoms to him, he told me that I have celiac disease. But when asked if there were any medical tests and measures I should take, he said that they were not necessary & that a lifetime gluten free diet was the only way to go.

After doing some research online and seeing all the symptoms that I've endured for SOO long ( stomach pains, bowel problems, weight loss, mouth sores, depression, constant fatigue etc), I am certain I am a Celiac.

I want a more knowledgeable & concerned Dr and was wondering if there were any recommendations anyone could make. And what tests should I take? Will seeing a GI specialist be necessary as well? I want to be able to see this through the right way.

thank you in advance for your help.

-Linda

Welcome LInda,

Celiac can be diagnosed by a Serologic Panel, Endoscopy/biopsy and Positive Dietary Response. And for some with a rash confirming Dermatitus Herpetiformis, a skin condition.

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

It would not be too much effort for your doctor to order these blood tests. If your current doctor will not order this test, I would recommend that you find one that will.

Anyone with a history of intestinal discomfort should be tested for a variety of concerns. Your symtoms are some associated with Celiac or a gluten intolerance. I would continue to eat gluten and pursue further testing.

Some people here have chosen to self-diagnose based on a positive dietary response.

Good luck to you.

Julia's mom Newbie
Julia's mom
Posted

Although we don't know an experienced Celiac physician in Orange County, please let us know what you find out. Without elaboration, my husband has been on and off hospitalized for 6 years until his physician (good friend) just cut our wheat and meat and see what happens. He had a positive response within 2 weeks! We haven't been to the hospital in over a year and with the recent diagnosis of our 5 year with Celiac, we are positive without a doubt that he has it as well. Stay vigilant. Our doctor is Jesus (Chuy) Valadez-Herrera in Laguna Hills. Harvard/UCLA and living our reality!

Lindaa Newbie
Lindaa
Posted
  • Author

Momma Goose-Thank you for your informative & quick response!

I will definitely request those tests from my next MD.

Julias Mom- I will keep you posted on who I find :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,540
    • Most Online (within 30 mins)
      7,748
    Barrie S
    Newest Member
    Barrie S
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.