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Is Anyone Else Hla-db1 0202; Hla-dq 2,3 (subtype 2,9)?

Amy Hull Brown

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Amy Hull Brown Rookie
Amy Hull Brown
Posted

Are you gluten sensitive or coeliac?

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nora-n Rookie
nora-n
Posted

I have seen some 0202 and at least one 0303 here.

I am planning to have a gene test done in the future, I am DQ2 and DQ8 negative but I have DH, gluten ataxia and lots of intestinal symptoms including malabsorption and slight bleeding while I was on gluten. The test I had sounded like the rapid test which Kimball used to do before. (it missed a DQ8 celiac here) They never told me my actual genes. Just negative.

ravenwoodglass Mentor
ravenwoodglass
Posted

I am DQ9 and a diagnosed celiac. I didn't look for what my genes were until 5 years after diagnosis. I had DH, ataxia and other neuro issues for over 25 years before the GI stuff hit but once the D hit it stayed for 15 years before I was finally diagnosed celiac in the end stages of the disease. IF they had diagnosed me before the GI stuff got severe I would most likely have been labeled gluten sensitive rather than celiac. I did have quite a few autoimmune issues by the time I was diagnosed and almost everything went into remission gluten free.

fedora Enthusiast
fedora
Posted

Hi again.

I have the DQ0202 gene like you,

but my other gene is DQ5

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