Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Dh?


desccc

Recommended Posts

desccc Rookie

I had previously asked about DH in another thread.."new here with 12yr old daughter..."

My 12 yr old d has been diagnosed with gluten intolerance..her Gliadin Antibody IGG result was >100 with >17 being positive.

She tested negative to GAntibody (IGA) <3 and TTGA (IGA) <3, although we may be doing the other tests for the panel.

SHe has had atopic dermatitis starting at 2 months old with food allergies and had it moderate-severe as infant and toddler.

Since she was 5 yrs old her AD has been almost non existent, except for chronic itchy knees on the front. I have seen correlation of eating pasta and the next day having more itchy knees with little tiny tiny red bumps but also sometimes non read tincy tiny bumps. She also has these on the back of elbows but does not itch at all. She did have these sometimes on buttocks when young but not anymore.

My 9 yr old son also has the itchy knees and thighs bilaterally, and I see it more after pasta, the next day.

He also had eczema and food allergies when younger.

Can a pediatrician biopsy the skin to check for DH and does it need to be really flared, since the bumps are so tiny and not always red? If they test positive for DH does this mean that they most likely have celiac?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

If a biopsy proves that a rash is DH (based on IgA deposits), that gives you an automatic celiac diagnosis regardless of any other symptoms.

Eczema (AD) is itchy too. If I eat even the tiniest bit of casein, my breastfeed son gets eczema with little red bumps right across his cheeks :( My three-year-old daughter also had eczema as a baby (on her legs and the sides of her face). Gluten and dairy (casein) are the most likely culprits. It's worth trying to figure out, because babies with eczema are at a higher risk for asthma as they get older. A lot of people think kids outgrow their allergies, but I've read that your body just adapts. You're still allergic/intolerant, but the symptoms change... so eventually (if you don't change your diet) instead of eczema you get something like asthma or an autoimmune disorder.

  • 2 weeks later...
desccc Rookie

I wanted to do an update as I started this thread.

My daughter's pediatrician has agreed to do the other celiac tests that she did not order several weeks ago, after I gave her info on the Columbia University EDU site a member here gave me. We are going to wait and do the other tests in a few weeks after she has had a significant amount of gluten.

She has been taking an enzyme for gluten "gltuenzyme" for several weeks. The blood tests she had came back negative, but we are using the enzymes mostly 3 meals a day now. In the beginning she was only taking it at breakfast and supper.

Tonight, she did not take her gluten enzyme at supper and this was a first. Within an hour and a half or so, she started itching rather intensly on her right knee and I took pics to show the ped as I think it looks like mild dh to me compared to what images I have seen o the internet. She did not have pasta and in the past the only times she would scratch both knees was usually the NEXT day after the pasta. Tonight she had some stuffing and mashed potatatoes turkey gravy but no bread.

BUT, it was only on on her right knee but it was more pronounced and red and itchy than usual.

My thoughts are that the gluten zyme was breaking down the gluten rather effectively and missing a dose when she usually has it 2-3 times a day has now set it off.

Rest assured we will not rely on the enzyme if we find out she does have DH. But this is quite fascinating.

From what I read if you have DH, there is an 80-90% chance you have celiac?? IN the past, she only had the knee breakouts when she ate pasta, but this incident tonight was redder and more itchy than usual..came on shortly after dinner instead of next day.

Thanks for your replies

ravenwoodglass Mentor
From what I read if you have DH, there is an 80-90% chance you have celiac??

Thanks for your replies

A diagnosis of DH is a diagnosis of celiac.

  • 4 weeks later...
JenLawrence Newbie

I have JUST begun research on this. My 9 year old has had eczema forever. A friend is going through testing for celiac, and is convinced that my son's itchy skin is actually dh. His first cousin was just diagnosed with celiac. The cousin is off dairy and gluten. That mom suggested I eliminate dairy first - because it's easier and may be all that's necessary. Any advice?

Thanks!

Eczema (AD) is itchy too. If I eat even the tiniest bit of casein, my breastfeed son gets eczema with little red bumps right across his cheeks :( My three-year-old daughter also had eczema as a baby (on her legs and the sides of her face). Gluten and dairy (casein) are the most likely culprits. It's worth trying to figure out, because babies with eczema are at a higher risk for asthma as they get older. A lot of people think kids outgrow their allergies, but I've read that your body just adapts. You're still allergic/intolerant, but the symptoms change... so eventually (if you don't change your diet) instead of eczema you get something like asthma or an autoimmune disorder.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,340
    • Most Online (within 30 mins)
      7,748

    Linda Whelan
    Newest Member
    Linda Whelan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      While a definitive causal link remains unclear, vitamin D's known role in immune modulation and intestinal barrier integrity suggests that it plays a significant role in the development and progression of celiac disease.  Reduced 25(OH)D levels are associated with celiac disease.  In celiac disease, gluten can damage these tight junctions, and vitamin D may play a protective role in this context. 
    • Ginger38
      I have posted a lot on here and find that the support , advice and information here is much more helpful than anything else.. ever. I am really tired of the back and forth advice in the medical community and I am beyond frustrated and over all of it currently. I will try to keep this as brief as possible. I have positive TTG IGA antibodies - and I have had these every time I have been tested. The first time they were positive I was told I did not have celiac and couldn't have celiac but I was gluten intolerant and to go gluten free. I did this for about 3-4 months, dedicated I might add, and I did feel better. However, my blood glucose went up drastically and since I was already pre-diabetic and insulin resistant already, I was then told to stop the gluten free diet and resume eating gluten as it would be better for my diabetes.I have been on a yo yo diet and roller coaster since between the gluten free and not gluten free. I decided to see a gastro doc and after him promising me I had celiac based on all my symptoms and positive antibodies but we needed that actual diagnosis in order to be treated correctly, and we just needed the EGD with biopsies to have that diagnosis, I reluctantly agreed to go fully on the gluten challenge for 8 weeks prior to having an EGD and colonoscopy, both with biopsies . The gluten challenge was miserable. At first I was horribly constipated, I gained 9 pounds during the challenge, had horrible swelling issues, terrible bloating, looked and felt pregnant, had rashes and itching, couldn't stay awake, had extreme brain fog, exhaustion, speech difficulties, palpitations, tachycardia , menstrual issues, had an insatiable hunger, mood swings, just all the things. All of this to get the tests and biopsies done and they looked "okay" .. so even though I was told to live like a celiac all of the sudden I am no longer at risk.. I am just gluten intolerant.  I also have uncontrolled diabetes that they feel is made worse by the gluten free diet, so again after all these tests, but having all the symptoms and still having positive antibodies I feel like I am stuck with the choice in regards to my health of addressing the diabetes or the celiac (still don't believe I am not actually Celiac).  So I have been having gluten off and on to try and manage my diabetes, even though most recently, because I have been so physically sick again (that can't be good for diabetes either right??)  with stomach pain, burning, diarrhea, stools that are yellow in color and contain mucus, nausea, some vomiting, sour stomach, I was told I need to just eat gluten free so my stomach will improve, and we will just put you on insulin - I don't want to go on insulin yet, and especially if I do not actually have to. I don't understand why I am backed in this corner of feeling like I have to choose to eat for my diabetes or my stomach, but not both, but I am over it.   So currently in regards to GI symptoms - I consistently have nausea, vomiting, diarrhea, abdominal pain, gas , bloating, reflux, sour stomach, yellow stools with mucus.  I am also exhausted and have been itching. I have been having increased swelling, pain, and horrible numbness and tingling, especially in my hands. I am also having an increase in relentless nightmares and night terrors. I have also been having chest pain and palpitations and tachycardia. I have even tried taking digestive enzymes to help break down gluten - (specifically the Gliadin X) and they just seem to make me feel worse. I have trouble with digestion of things like salads, beans, broccoli, etc. on a good day, and that is even worse when I have gluten on any kind of semi-regular basis.   I just can't keep doing this. Mentally, physically and emotionally I am just DONE. I already have a lot of stress in my life.. I am a single mom to a daughter who has her own health issues and is somewhat special needs. I need to be 100% to be what she needs from me, especially with all the running back and forth we have been doing to the doctors and hospitals. So I am no doctor... but I just don't think they are right about any of this. I truly feel I am celiac.. and either the damage just wasn't bad yet, or they just missed the area that has damage, or its all a precursor to full blown celiac (kind of like pre-diabetes/insulin resistance is for actual diabetes). I don't want to live miserable and feel bad all the time. I also don't want my diabetes to be so out of control I have major complications, and I don't feel like insulin is a great option if not truly needed. At this point, if I ever feel like I have a somewhat clear path of what I am dealing with,  I feel like I am looking at MONTHS to YEARS of trying to heal my body. Please help!
    • Ginger38
      No, I have not been checked for any other deficiencies or issues. No one will check these things since my EGD looked normal and there was no damage. I recently saw my gastro doc and it is just frustrating. I have diabetes, which is basically uncontrolled, and I keep being told, stop eating gluten free, because the gluten free diet is contributing to my diabetes worsening. Then I am told oh just eat gluten free and you can go on insulin, which I don't feel like is a good answer either. So I end up eating gluten because they tell me it's okay or that I should bc of my diabetes. I am so sick today - physically mentally emotionally - just tired of this roller coaster ride.  I am open  for any realistic advice... I feel like I get more support here than in real life 
    • somethinglikeolivia
      I will definitely be looking into this! Thank you so much! 
    • trents
      @N00dnutt, been there, done that! Cheers!
×
×
  • Create New...